Cystic Fibrosis Forum (EXP)

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  1. R

    Refusing a picc while pregnant

    Hi there, I'm in the same boat as you...I haven't had IV antibiotics since I was a baby. However, I know the standard treatment for 2-week IV's is getting a PICC. And honestly, I'm not sure that the doctors would even go for you getting a regular IV nowadays knowing that it's not the best...
  2. R

    Refusing a picc while pregnant

    Hi there, I'm in the same boat as you...I haven't had IV antibiotics since I was a baby. However, I know the standard treatment for 2-week IV's is getting a PICC. And honestly, I'm not sure that the doctors would even go for you getting a regular IV nowadays knowing that it's not the best...
  3. R

    Refusing a picc while pregnant

    Hi there, <br /> <br />I'm in the same boat as you...I haven't had IV antibiotics since I was a baby. However, I know the standard treatment for 2-week IV's is getting a PICC. And honestly, I'm not sure that the doctors would even go for you getting a regular IV nowadays knowing that it's not...
  4. R

    My first TV interview!

    Fabulous job Lisa! Great opportunity for awareness and you speak so well!
  5. R

    My first TV interview!

    Fabulous job Lisa! Great opportunity for awareness and you speak so well!
  6. R

    My first TV interview!

    Fabulous job Lisa! Great opportunity for awareness and you speak so well!
  7. R

    Improving lung Function

    Hi Karen, I'm so sorry to hear about your daughter's decline in PFT's. That happened very quickly too. Is she on Advair or Pulmozyme? If her PFT's are improving with a bronchodilator, then she most likely needs a long-acting steroid as well, like Advair. My small airway function incrased...
  8. R

    Improving lung Function

    Hi Karen, I'm so sorry to hear about your daughter's decline in PFT's. That happened very quickly too. Is she on Advair or Pulmozyme? If her PFT's are improving with a bronchodilator, then she most likely needs a long-acting steroid as well, like Advair. My small airway function incrased...
  9. R

    Improving lung Function

    Hi Karen, <br /> <br />I'm so sorry to hear about your daughter's decline in PFT's. That happened very quickly too. Is she on Advair or Pulmozyme? If her PFT's are improving with a bronchodilator, then she most likely needs a long-acting steroid as well, like Advair. My small airway function...
  10. R

    CF doc vs. OB

    Hi Autumn, It's such a pain when the doctors make things so confusing. Although, I had the opposite problem - my CF doctor wanted me on the meds, and my OB wanted me off of them. But after I did research on my own, usually the inhaled antibiotics don't make it into the bloodstream, so the...
  11. R

    CF doc vs. OB

    Hi Autumn, It's such a pain when the doctors make things so confusing. Although, I had the opposite problem - my CF doctor wanted me on the meds, and my OB wanted me off of them. But after I did research on my own, usually the inhaled antibiotics don't make it into the bloodstream, so the...
  12. R

    CF doc vs. OB

    Hi Autumn, <br /> <br />It's such a pain when the doctors make things so confusing. Although, I had the opposite problem - my CF doctor wanted me on the meds, and my OB wanted me off of them. But after I did research on my own, usually the inhaled antibiotics don't make it into the...
  13. R

    Something unusual happened today

    great story <img src="i/expressions/face-icon-small-smile.gif" border="0">
  14. R

    Something unusual happened today

    great story <img src="i/expressions/face-icon-small-smile.gif" border="0">
  15. R

    Something unusual happened today

    great story <img src="i/expressions/face-icon-small-smile.gif" border="0">
  16. R

    Question about CF'ers and alcohol

    The same thing happened with one of my friends - she became allergic to certain alcohols. Not all of them, just certain ones and only at certain times. It was really scary though when she broke out in hives all over her body the first time. So it's not a CF thing, but definitely sounds like...
  17. R

    Question about CF'ers and alcohol

    The same thing happened with one of my friends - she became allergic to certain alcohols. Not all of them, just certain ones and only at certain times. It was really scary though when she broke out in hives all over her body the first time. So it's not a CF thing, but definitely sounds like...
  18. R

    Question about CF'ers and alcohol

    The same thing happened with one of my friends - she became allergic to certain alcohols. Not all of them, just certain ones and only at certain times. It was really scary though when she broke out in hives all over her body the first time. So it's not a CF thing, but definitely sounds like...
  19. R

    Amount of Sleep per day

    I need 8-10 per day, including naps. But during the work week, I tend to only get 7 hrs per night.
  20. R

    Amount of Sleep per day

    I need 8-10 per day, including naps. But during the work week, I tend to only get 7 hrs per night.
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