Cystic Fibrosis Forum (EXP)

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  1. R

    Amount of Sleep per day

    I need 8-10 per day, including naps. But during the work week, I tend to only get 7 hrs per night.
  2. R

    sooooo tired

    I am tired quite often, even when I'm feeling good. If I could take a nap every day, I would. I think being tired is just a normal part of CF.
  3. R

    sooooo tired

    I am tired quite often, even when I'm feeling good. If I could take a nap every day, I would. I think being tired is just a normal part of CF.
  4. R

    sooooo tired

    I am tired quite often, even when I'm feeling good. If I could take a nap every day, I would. I think being tired is just a normal part of CF.
  5. R

    Are you always on antibiotics?

    I have pretty much been on antibiotics non-stop since I was a kid. I think it was pretty rare that I was off of them - I always remember inhaling Gentamycin or taking Keflex or Bactrim. I have been on Tobi and/or tobramycin since i was 13. Currently I am on Zithromax M-W-F and either...
  6. R

    Are you always on antibiotics?

    I have pretty much been on antibiotics non-stop since I was a kid. I think it was pretty rare that I was off of them - I always remember inhaling Gentamycin or taking Keflex or Bactrim. I have been on Tobi and/or tobramycin since i was 13. Currently I am on Zithromax M-W-F and either...
  7. R

    Are you always on antibiotics?

    I have pretty much been on antibiotics non-stop since I was a kid. I think it was pretty rare that I was off of them - I always remember inhaling Gentamycin or taking Keflex or Bactrim. I have been on Tobi and/or tobramycin since i was 13. <br /> <br />Currently I am on Zithromax M-W-F and...
  8. R

    > > March 29, 2011 11:30 UTC > > Phase 3 Study of VX-770 in Children Ages 6 to 11

    > > March 29, 2011 11:30 UTC > > Phase 3 Study of VX-770 in Children Ages 6 to 11 FABULOUS!
  9. R

    > > March 29, 2011 11:30 UTC > > Phase 3 Study of VX-770 in Children Ages 6 to 11

    > > March 29, 2011 11:30 UTC > > Phase 3 Study of VX-770 in Children Ages 6 to 11 FABULOUS!
  10. R

    > > March 29, 2011 11:30 UTC > > Phase 3 Study of VX-770 in Children Ages 6 to 11

    > > March 29, 2011 11:30 UTC > > Phase 3 Study of VX-770 in Children Ages 6 to 11 FABULOUS!
  11. R

    Jewish National in Dever?

    Hi, I don't have any experience with the Denver clinic, but I'm extremely interested in your diagnosis issues. Since you have 2 mutations for CF, why wouldn't you still be considered to have CF? Does the nasal PD trump a genetics test? What is a nasal PD anyway? Wow, that just baffles me...
  12. R

    Jewish National in Dever?

    Hi, I don't have any experience with the Denver clinic, but I'm extremely interested in your diagnosis issues. Since you have 2 mutations for CF, why wouldn't you still be considered to have CF? Does the nasal PD trump a genetics test? What is a nasal PD anyway? Wow, that just baffles me...
  13. R

    Jewish National in Dever?

    Hi, <br /> <br />I don't have any experience with the Denver clinic, but I'm extremely interested in your diagnosis issues. <br /> <br />Since you have 2 mutations for CF, why wouldn't you still be considered to have CF? Does the nasal PD trump a genetics test? What is a nasal PD anyway? Wow...
  14. R

    Sperm Donor

    Hi, Yes, there is the chance the donor could get tested for more mutations. It's particularly easy to get them tested for genetics if they are still "active" with the sperm bank. However, our donor was not active with the bank any longer. But another family, who used the same donor as us...
  15. R

    Sperm Donor

    Hi, Yes, there is the chance the donor could get tested for more mutations. It's particularly easy to get them tested for genetics if they are still "active" with the sperm bank. However, our donor was not active with the bank any longer. But another family, who used the same donor as us...
  16. R

    Sperm Donor

    Hi, <br /> <br />Yes, there is the chance the donor could get tested for more mutations. It's particularly easy to get them tested for genetics if they are still "active" with the sperm bank. However, our donor was not active with the bank any longer. But another family, who used the same...
  17. R

    Sperm Donor

    Hi there, I'll share my story and hopefully it will help you out <img src="i/expressions/face-icon-small-smile.gif" border="0"> I am in a same-sex marriage, so in order to have children we had to look into using a sperm bank. Since I am the one with CF, we chose my wife to get pregnant, since...
  18. R

    Sperm Donor

    Hi there, I'll share my story and hopefully it will help you out <img src="i/expressions/face-icon-small-smile.gif" border="0"> I am in a same-sex marriage, so in order to have children we had to look into using a sperm bank. Since I am the one with CF, we chose my wife to get pregnant, since...
  19. R

    Sperm Donor

    Hi there, <br /> <br />I'll share my story and hopefully it will help you out <img src="i/expressions/face-icon-small-smile.gif" border="0"> <br /> <br />I am in a same-sex marriage, so in order to have children we had to look into using a sperm bank. Since I am the one with CF, we chose my...
  20. R

    Personality

    This is an interesting topic. I guess you could say that I'm a bubbly, completely optimistic person. I tend to have a lot of empathy for people. However, I do get annoyed by people fairly easily, particularly those that complain a lot. But I would not say I'm "cold" at all.
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