Cystic Fibrosis Forum (EXP)

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  1. J

    LightNLife/Lauren

    she was 29 i think
  2. J

    port incision

    my port was accessed for the 3 weeks immediately following the placement in IR. i never thought about using maderma until i'd had it for about 2 months and i was no longer using it for abx for the time being. the only thing with maderma is that you have to apply it like 3-5 times a day on...
  3. J

    port incision

    my port was accessed for the 3 weeks immediately following the placement in IR. i never thought about using maderma until i'd had it for about 2 months and i was no longer using it for abx for the time being. the only thing with maderma is that you have to apply it like 3-5 times a day on...
  4. J

    port incision

    my port was accessed for the 3 weeks immediately following the placement in IR. i never thought about using maderma until i'd had it for about 2 months and i was no longer using it for abx for the time being. the only thing with maderma is that you have to apply it like 3-5 times a day on...
  5. J

    TOO QUICK? - Cayston

    the first couple doses i did were really fast--like what you're talking about. after that it took a little bit longer but never more than a couple minutes. probably as the head started to clog a little it slowed down. it was slowest at the end of the month and took about 2.5 minutes
  6. J

    TOO QUICK? - Cayston

    the first couple doses i did were really fast--like what you're talking about. after that it took a little bit longer but never more than a couple minutes. probably as the head started to clog a little it slowed down. it was slowest at the end of the month and took about 2.5 minutes
  7. J

    TOO QUICK? - Cayston

    the first couple doses i did were really fast--like what you're talking about. after that it took a little bit longer but never more than a couple minutes. probably as the head started to clog a little it slowed down. it was slowest at the end of the month and took about 2.5 minutes
  8. J

    what to do?

    hey friends, i ended up coming home and don't feel better yet but it was the right choice and i think i'll start feeling better once the meds are out of my system....thanks for all the help! <3
  9. J

    what to do?

    hey friends, i ended up coming home and don't feel better yet but it was the right choice and i think i'll start feeling better once the meds are out of my system....thanks for all the help! <3
  10. J

    what to do?

    hey friends, i ended up coming home and don't feel better yet but it was the right choice and i think i'll start feeling better once the meds are out of my system....thanks for all the help! <3
  11. J

    what to do?

    so i'm on day 13 in the hospital doing IV antibiotics and when i came in my pfts were at 56% after a month of cayston and today when i did pfts again they were only at 58% and my small airways were actually worse. it took me about 5 blows to get a 58%, the others were a little lower. I...
  12. J

    what to do?

    so i'm on day 13 in the hospital doing IV antibiotics and when i came in my pfts were at 56% after a month of cayston and today when i did pfts again they were only at 58% and my small airways were actually worse. it took me about 5 blows to get a 58%, the others were a little lower. I...
  13. J

    what to do?

    so i'm on day 13 in the hospital doing IV antibiotics and when i came in my pfts were at 56% after a month of cayston and today when i did pfts again they were only at 58% and my small airways were actually worse. it took me about 5 blows to get a 58%, the others were a little lower. <br /> I...
  14. J

    Sweating

    this happens to me a few times a week despite having a fan on me all year round and thin covers on my bed. i have checked my temp before when i've woken up like that and i never have a fever so i have no idea...i've run it by the docs before and they don't seem to have an answer since there's...
  15. J

    Sweating

    this happens to me a few times a week despite having a fan on me all year round and thin covers on my bed. i have checked my temp before when i've woken up like that and i never have a fever so i have no idea...i've run it by the docs before and they don't seem to have an answer since there's...
  16. J

    Sweating

    this happens to me a few times a week despite having a fan on me all year round and thin covers on my bed. i have checked my temp before when i've woken up like that and i never have a fever so i have no idea...i've run it by the docs before and they don't seem to have an answer since there's...
  17. J

    I heart Cayston!

    i'm so glad it's working leah! i go to the doc tomorrow so we'll see how it's working for me....i don't feel any different/better but maybe my numbers will be great!
  18. J

    I heart Cayston!

    i'm so glad it's working leah! i go to the doc tomorrow so we'll see how it's working for me....i don't feel any different/better but maybe my numbers will be great!
  19. J

    I heart Cayston!

    i'm so glad it's working leah! i go to the doc tomorrow so we'll see how it's working for me....i don't feel any different/better but maybe my numbers will be great!
  20. J

    Using Altera for other meds

    i use a different neb cup or sometimes just a different metal head to keep my other meds separate from the cayston but i do all my meds in the altera/trio/eflow or whatever you want to call it....my docs said that was fine. there has notoriously been a lot of disagreement over what can and...
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