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Who are you guys seeing for CFRA? I'm in Boston, if anyone has a Dr here please share. Bill

LL: I second that. Bill

Itis common, mucus causes inflamation of all organs. It is apt to show as Surosos (sp) of the Liver. It is 100% reversable. Are you seeing a CF Specialist at a Approved CF Clinic? This would not be out of the ordinary there. I would expect that the Dr. would Rx enzymes. Bill PS I never heard...

Improperly digested food in the stomach, continues through the digestive system and causes irritation and inflamation. Pancreatitis is inflamation of the pancreatitis. She will catch on soon and not skip enzymes. Bill

I don't have kids with pancreatitis but I do have some personal experience. If your kids have malabsorbion then they are NOT 100% PS. They have begun moving into PI. Nobody goes to sleep PS and wakes up PI, it is an ongoing process. I would expect that the GI Doctor would get them on...

I went through 10 years of pancreatitis attacks and hospitalizations. CF pancreatitis is caused by mucus coating the organs and in this case causing an inflamation. By the time I was dx my pancrease was "fried". It had "burned itself out". It still prodced insulin but no enzymes. I was dx...

But Little Lab, you were dx late in life and you are almost 63, THEREFORE you have a "MILD CASE OF CF". At least that is what a number of ANONYING, people in here keep telling me that I have. Bill

Ashland: Is this her first pancreatitis attack, also what is her age? Bill

JennyC is correct. You need to be going to an APPROVED CF CENTER and seeing a CF SPECIALIST. There you will also see the CF TEAM and all of your questions will be answered. Bill

Your in-laws are being RUDE. Listen to love and if/when they come leave the room that you/they are in and close the door behind you. Tell hubby to grow up. Bill

Keith posted this information earlier but I thought that I would repeat it. The Commonwealth of Massachusetts has a law that explisitly allows students with Cystic Fibrosis to carry and self administer enzymes. Every state should enact a law of this type. Google it, copy it and contact your...

I think that am the oldest member here so I will try to answer your question. Many people here say that I must have a "mild case". I am still alive so there is some valididy in those comments. My CF Doctor says I am lucky because of my mutations. I was born in 1940 and the Doctors at that time...

Happy Birthday Bill

The sweat test that is performed at local hospitals is not the same test that is performed at the Approved CF Centers and the people wo perform that test are not fully qualified. Have the test redone at an Approved CF Center by a member of the CF Team. Bill

Well written Champion, keep up the good work. Bill

Having been in your situation, I would tell you to get away from that Doctor as fast as you can. Get a new PCP who will, without question, give you a referal to an Approved CF Center and see a CF Specialist. Unfortunally, the world is full of Doctors who can't spell CF, much less dx or treat...

Have her admitted ASAP. Pancreatitis is nothing to fool with, even for an RN. Each attack will cause more irreparable damage. She needs to be NPO and on IVs. Bill

OK Ben I understand. To some degree, everything in your life will continue to revolve around CF. You have had 21 years of untreated CF and therefore 21 years of CF damage. To offset this you have only had 2 years of treatment. The treatment will "catch up" and your life will begin to...

OMG. If you have CF (and you do) and your husband has CF, EVERYONE OF YOUR CHILDREN WILL HAVE CF. If your husband is a carrier (one mutation) there is a 50% chance that your child will have CF and a 50% chance that your child will be a carrier. Just because you are being seen at the Mayo...

nocode: Don't let those Doctors push you around. Wait until you are psychologically ready, by that time you may have had your limbs removed and gone blind. CF, CFRD, blind and no limbs. By then maybe you will be psychologically ready for the chip. Bill