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Melissa: That is not completly true. You need to have a conversation with your CF Specialist. Bill

We need to be aware that while CF is not contagious, when we cough we spread all of the same germs that other people do. We need to follow ALL of the same safeguards that "healthy people" follow. As for the Lady, don't be an ASS, just ignore her. Bill

Solo: Your problem may not be enzyme related, especially the gas. You may have "bacterial overgrowth". Talk to ypur CD Doctor. Bill

There are some bugs that can ONLY be transfered between CF patients. We have "the three foot rule". It is best if they can stay 3 feet apart. My niece, non CF, was born at a time that I had a very bad, unexplained cough, her Mom and I were both brokenhearted that I couldn't/wouldn't hold her...

One time, right after I was Dx and before I transfered to a CF Center, I had an Rx for 750 mg Cepro. A pharmacy assistant called my Doctor, spoke to his nurse, told her that the Rx should have been written for 250 mg not 750. The nurse changed it. Save me from medical people who don't have a...

We have a Mom here, with a 16 year old DD with what she tells us is a 50% baseline lung function. DD is a "competitive cheerleader" and as such is having problems with the basic cheerleading. "they have cut her out of some of the routine-so she can stunt and finish the routine". We then find...

Melissa: You are a very kind and considerate woman. I do have to disagree with your post telling us that the OP has been disparaged. When she said "Bill--pretty out of date opinion" I hear, Bill you are old and stupid, GO AWAY.

Cris: I hope that the OP follows your advise. You seem to have thoughts similar to hers. I hope that she reports back here and tell us that her DD set a new world record for running the mile. I also hope that CF will be CURED TOMORROW. Bill

It is NOT that dairy is bad for CFers but a large percentage of CFers are LACTOSE INTOLLORANT (sp). Bill

You must remember that Creon (all enzymes) comes in different strengths. The "key" is the amount of LIPASE per pill, not the number of pills. Bill

azmaveth: I sent you a private message. Bill

Ace: When you say that you are not impressed with St Louis Childrens, what was it that you didn't like or what didn't impress you? Bill

CREON does not go bad.

Bloggymom: I was dx with CF 25 years ago and until today, I never heard of NORCARDIA. I have MAC and having read about NORCARDIA, my heart goes out to you. My family has no clue what MAC is until I tell them it is, a non-contagious TUBERCULOSIS. They never heard of MAC but they all know...

Love: Your husband would be AFRAID to go to sleep if he had not done everything that you wanted him to do. Bill

azmaveth: Based upon your OP I am suspecting that your not getting good CF medical advise. Mucus is like a glue and when you swallow it, it will mix with food/stool and together will adhere to the walls of your colon. This will eventually cause an obstruction, pain and waist extention. You...

Creon is not a pill that you take with "every appropiate food". Creon is an enzyme to replace that enzyme that is not being produced, in sufficent quanitity, by your pancreace. You need to take Creon, at first bite, with every meal and snack (not fruit). This is not an option, you will do...

Chris, as you have read, I am out of date. Will the "tracking pulse oximeter" help when she is at the top of the pyramid, passes out and falls backward? Just asking. Bill

Solo: I take 10 Creon 24 with every meal and snack and I'm pushing the envelope. Do yourself a favor and google Steven D. Freedman, MD, PhD. He could help you. Bill

Love: I know better than to question you!!! Bill