Cystic Fibrosis Forum (EXP)

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  1. P

    College

    OK Interstate Commerce will do. If they have students from out of state!!
  2. P

    College

    Students must still get Pell Grants or Student Loans, either would qualify. Post Office on campus. ROTC.
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    College

    A pell grant is FEDERAL FUNDING. Every College and University in the US gets some Federal Funding.
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    HELP - Daughter can't breath after 2.5 minute competitive cheer routine-what to do?

    Jenny: When coughing and "this" happened to your son, did they have to carry him off of the field? Was he limited to running for only 2.5 minutes (150 seconds)? Was he in a situation whereby he would exhale and be unable to inhale? Were his lungs deprived of oxygen (and thereby his heart...
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    College

    Yes, she has to go to the Spanish Prof and explain her situation. A letter from her CF Doctor could help. Bill
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    HELP - Daughter can't breath after 2.5 minute competitive cheer routine-what to do?

    Melissa: If you read my first post, I said two things. Stop the activity, Call the CF Doctor. I never said stop forever. I doubt that the Doctor is aware of the 2.5 minute limit. It is like they teach in first aid, stop the bleeding and transport to a hospital. Bill
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    HELP - Daughter can't breath after 2.5 minute competitive cheer routine-what to do?

    Melissa: If you read my first post, I said two things. Stop the activity, Call the CF Doctor. I never said stop forever. I doubt thet the Doctor is aware of the 2.5 minute limit. Bill
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    HELP - Daughter can't breath after 2.5 minute competitive cheer routine-what to do?

    swatterson: Overnight, I considered what you said about my being out of date and you are correct. Growing up in a family of 4 kids and an intergrated neighborhood things were different. What I wanted to do was pretty far down on my parents list (and my friends parent's list as well). Their...
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    HELP - Daughter can't breath after 2.5 minute competitive cheer routine-what to do?

    As someone who was a competive swimmer, a lifeguard on an Atlantic Ocean beach for 5 years, (Commonwealth of Massachusetts) and someone who played college varsity basketball (but not well) and as someone with CF (not a parent) I believe I come to this thread with some level of expertise. If...
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    HELP - Daughter can't breath after 2.5 minute competitive cheer routine-what to do?

    Stop her from cheering!!! Call her CF Doctor. Bill
  11. P

    Want to donate VEST

    I outgrew a vest. I talked to the head RP at the CF Center and asked if he could use it. He was very happy to receieve it. I don't know if he kept it or if he found a good home for it. Bill
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    Where to start

    Great job on this one love. Bill
  13. P

    New to Thread, Newly Diagnosed

    Let me repeat what others have said, your son MUST be seen at a CF CENTER by a CF SPECIALIST. Don't depend on your local Doctor and don't think that going to a CF Center is enough, see a CF Specialist. Bill
  14. P

    Church PreSchool refusing to give enzymes!

    GOOGLE: State Policies in Administration of Medication in Schools. Also call the legal department at CFF.
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    Travel Advice Needed

    If I were her, I would attempt to put together a network of CF Hospitals in those Cities that I planned on visiting. I would contact them in order to secure the support that I may need. Then I would have my Doctor sent whatever information that he/she felt that they should have. Perhaps bring...
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    More confused now than ever!

    A FULL CF SEQUENCING is a scan for almost 2000 mutations not 1000. If 1000 was a typo, fine. If not go back to your APPROVER CF CENTER and ask your CF SPECIALIST to run a FULL CF SEQUENCING (for almost 2000 mutations). Bill
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    School, 504, enzymes?

    Enzymes are to be taken AT FIRST BITE. Not up to an hour later. Bill
  18. P

    Best treatment center in us

    Mayo Clinic, Boston Clildrens, Massachusetts General, National Jewish, there are so many. Where do you live?
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    ever heard of a 41 year old obese person being diagnosed?

    I was dx at age 47. I was 5' 7" and 168 pounds. Bill
  20. P

    Best treatment center in us

    If you can define "best", I'll try to answer you. Bill
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