This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!
Jenny:
When coughing and "this" happened to your son, did they have to carry him off of the field? Was he limited to running for only 2.5 minutes (150 seconds)? Was he in a situation whereby he would exhale and be unable to inhale? Were his lungs deprived of oxygen (and thereby his heart...
Melissa:
If you read my first post, I said two things. Stop the activity, Call the CF Doctor. I never said stop forever. I doubt that the Doctor is aware of the 2.5 minute limit. It is like they teach in first aid, stop the bleeding and transport to a hospital.
Bill
Melissa:
If you read my first post, I said two things. Stop the activity, Call the CF Doctor. I never said stop forever. I doubt thet the Doctor is aware of the 2.5 minute limit.
Bill
swatterson:
Overnight, I considered what you said about my being out of date and you are correct. Growing up in a family of 4 kids and an intergrated neighborhood things were different. What I wanted to do was pretty far down on my parents list (and my friends parent's list as well). Their...
As someone who was a competive swimmer, a lifeguard on an Atlantic Ocean beach for 5 years, (Commonwealth of Massachusetts) and someone who played college varsity basketball (but not well) and as someone with CF (not a parent) I believe I come to this thread with some level of expertise.
If...
I outgrew a vest. I talked to the head RP at the CF Center and asked if he could use it. He was very happy to receieve it. I don't know if he kept it or if he found a good home for it.
Bill
Let me repeat what others have said, your son MUST be seen at a CF CENTER by a CF SPECIALIST. Don't depend on your local Doctor and don't think that going to a CF Center is enough, see a CF Specialist.
Bill
If I were her, I would attempt to put together a network of CF Hospitals in those Cities that I planned on visiting. I would contact them in order to secure the support that I may need. Then I would have my Doctor sent whatever information that he/she felt that they should have. Perhaps bring...
A FULL CF SEQUENCING is a scan for almost 2000 mutations not 1000. If 1000 was a typo, fine. If not go back to your APPROVER CF CENTER and ask your CF SPECIALIST to run a FULL CF SEQUENCING (for almost 2000 mutations).
Bill
This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
By continuing to use this site, you are consenting to our use of cookies.