Cystic Fibrosis Forum (EXP)

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  1. J

    how long does TOBI inhalation take?

    I would talk to your doctor about the possibility of getting an eflow. i use a compounded version of the IV tobramycin that has been formulated for the eflow and so my tobra takes me about 7-10 mins max. check out saveferris's blog for more info on the eflow. she has lots of great stuff on there....
  2. J

    how long does TOBI inhalation take?

    I would talk to your doctor about the possibility of getting an eflow. i use a compounded version of the IV tobramycin that has been formulated for the eflow and so my tobra takes me about 7-10 mins max. check out saveferris's blog for more info on the eflow. she has lots of great stuff on there....
  3. J

    how long does TOBI inhalation take?

    I would talk to your doctor about the possibility of getting an eflow. i use a compounded version of the IV tobramycin that has been formulated for the eflow and so my tobra takes me about 7-10 mins max. check out saveferris's blog for more info on the eflow. she has lots of great stuff on there....
  4. J

    how long does TOBI inhalation take?

    I would talk to your doctor about the possibility of getting an eflow. i use a compounded version of the IV tobramycin that has been formulated for the eflow and so my tobra takes me about 7-10 mins max. check out saveferris's blog for more info on the eflow. she has lots of great stuff on there....
  5. J

    how long does TOBI inhalation take?

    I would talk to your doctor about the possibility of getting an eflow. i use a compounded version of the IV tobramycin that has been formulated for the eflow and so my tobra takes me about 7-10 mins max. <br />check out saveferris's blog for more info on the eflow. she has lots of great stuff on...
  6. J

    Spring Time & Toddlers

    i was diagnosed at birth but grew up in the woods playing with animals (some domestic, some not) swimming in ponds, rivers, lakes, pools etc. you name it, i've probably swam in it. played in the dirt--probably ate some at some point...my point is that my life is richer because of those memories...
  7. J

    Spring Time & Toddlers

    i was diagnosed at birth but grew up in the woods playing with animals (some domestic, some not) swimming in ponds, rivers, lakes, pools etc. you name it, i've probably swam in it. played in the dirt--probably ate some at some point...my point is that my life is richer because of those memories...
  8. J

    Spring Time & Toddlers

    i was diagnosed at birth but grew up in the woods playing with animals (some domestic, some not) swimming in ponds, rivers, lakes, pools etc. you name it, i've probably swam in it. played in the dirt--probably ate some at some point...my point is that my life is richer because of those memories...
  9. J

    Spring Time & Toddlers

    i was diagnosed at birth but grew up in the woods playing with animals (some domestic, some not) swimming in ponds, rivers, lakes, pools etc. you name it, i've probably swam in it. played in the dirt--probably ate some at some point...my point is that my life is richer because of those memories...
  10. J

    Spring Time & Toddlers

    i was diagnosed at birth but grew up in the woods playing with animals (some domestic, some not) swimming in ponds, rivers, lakes, pools etc. you name it, i've probably swam in it. played in the dirt--probably ate some at some point...my point is that my life is richer because of those memories...
  11. J

    Tune Up at home?

    I've done it like everyone else has said...start a couple days in patient then go home. depending on what medications they put your son on and what dosages see if the eclipse balls (dosing system) are available. These look like little balloon grenades that deflate and push the medicine in...
  12. J

    Tune Up at home?

    I've done it like everyone else has said...start a couple days in patient then go home. depending on what medications they put your son on and what dosages see if the eclipse balls (dosing system) are available. These look like little balloon grenades that deflate and push the medicine in...
  13. J

    Tune Up at home?

    I've done it like everyone else has said...start a couple days in patient then go home. depending on what medications they put your son on and what dosages see if the eclipse balls (dosing system) are available. These look like little balloon grenades that deflate and push the medicine in...
  14. J

    Tune Up at home?

    I've done it like everyone else has said...start a couple days in patient then go home. depending on what medications they put your son on and what dosages see if the eclipse balls (dosing system) are available. These look like little balloon grenades that deflate and push the medicine in...
  15. J

    Tune Up at home?

    I've done it like everyone else has said...start a couple days in patient then go home. depending on what medications they put your son on and what dosages see if the eclipse balls (dosing system) are available. These look like little balloon grenades that deflate and push the medicine in...
  16. J

    moms-what type of help do you have?

    do you live in a college/university/community college town? I babysat for local families my whole college career and so looking for a college student might be a way to find some help that could come cheaper than a nanny service or something similar.
  17. J

    moms-what type of help do you have?

    do you live in a college/university/community college town? I babysat for local families my whole college career and so looking for a college student might be a way to find some help that could come cheaper than a nanny service or something similar.
  18. J

    moms-what type of help do you have?

    do you live in a college/university/community college town? I babysat for local families my whole college career and so looking for a college student might be a way to find some help that could come cheaper than a nanny service or something similar.
  19. J

    moms-what type of help do you have?

    do you live in a college/university/community college town? I babysat for local families my whole college career and so looking for a college student might be a way to find some help that could come cheaper than a nanny service or something similar.
  20. J

    moms-what type of help do you have?

    do you live in a college/university/community college town? I babysat for local families my whole college career and so looking for a college student might be a way to find some help that could come cheaper than a nanny service or something similar.
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