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I am so sorry to hear this news. I will pray for your family as you all adjust to life with this disgnosis. ((((hugs))))

I am so sorry to hear this news. I will pray for your family as you all adjust to life with this disgnosis. ((((hugs))))

I am so sorry to hear this news. I will pray for your family as you all adjust to life with this disgnosis. ((((hugs))))

I am so angry tonight. I took my dd to have her blood drawn 2 weeks ago and found out today that the sample was sent for the wrong testing. It was supposed to go to ambry, but went instead to genzyme and was tested for same 97 mutation she was tested for a year ago. We have had to fight...

I am so angry tonight. I took my dd to have her blood drawn 2 weeks ago and found out today that the sample was sent for the wrong testing. It was supposed to go to ambry, but went instead to genzyme and was tested for same 97 mutation she was tested for a year ago. We have had to fight...

I am so angry tonight. I took my dd to have her blood drawn 2 weeks ago and found out today that the sample was sent for the wrong testing. It was supposed to go to ambry, but went instead to genzyme and was tested for same 97 mutation she was tested for a year ago. We have had to fight...

I am so angry tonight. I took my dd to have her blood drawn 2 weeks ago and found out today that the sample was sent for the wrong testing. It was supposed to go to ambry, but went instead to genzyme and was tested for same 97 mutation she was tested for a year ago. We have had to fight...

I am so angry tonight. I took my dd to have her blood drawn 2 weeks ago and found out today that the sample was sent for the wrong testing. It was supposed to go to ambry, but went instead to genzyme and was tested for same 97 mutation she was tested for a year ago. <br /> <br />We have had...

No. Wow, great memory. I took my youngest to the md recently bc her belly was hurting again and I thought it would be good to have them see it happens when she is not in school. They told me she has allergies and put her on a nasal spray. I am not sure how someone can have allergies cause...

No. Wow, great memory. I took my youngest to the md recently bc her belly was hurting again and I thought it would be good to have them see it happens when she is not in school. They told me she has allergies and put her on a nasal spray. I am not sure how someone can have allergies cause...

No. Wow, great memory. I took my youngest to the md recently bc her belly was hurting again and I thought it would be good to have them see it happens when she is not in school. They told me she has allergies and put her on a nasal spray. I am not sure how someone can have allergies cause...

No. Wow, great memory. I took my youngest to the md recently bc her belly was hurting again and I thought it would be good to have them see it happens when she is not in school. They told me she has allergies and put her on a nasal spray. I am not sure how someone can have allergies cause...

No. Wow, great memory. <br /> <br />I took my youngest to the md recently bc her belly was hurting again and I thought it would be good to have them see it happens when she is not in school. They told me she has allergies and put her on a nasal spray. I am not sure how someone can have...

I finally talked to my insurance company(for the 2 millionth time)and the CF nurse and everyone assured me they have every possible piece of information they could possibly need, so we finally sent my daughters blood off to Ambry today. So now we wait.... and wait. I am happy that we are at...

I finally talked to my insurance company(for the 2 millionth time)and the CF nurse and everyone assured me they have every possible piece of information they could possibly need, so we finally sent my daughters blood off to Ambry today. So now we wait.... and wait. I am happy that we are at...

I finally talked to my insurance company(for the 2 millionth time)and the CF nurse and everyone assured me they have every possible piece of information they could possibly need, so we finally sent my daughters blood off to Ambry today. So now we wait.... and wait. I am happy that we are at...

I finally talked to my insurance company(for the 2 millionth time)and the CF nurse and everyone assured me they have every possible piece of information they could possibly need, so we finally sent my daughters blood off to Ambry today. So now we wait.... and wait. I am happy that we are at...

I finally talked to my insurance company(for the 2 millionth time)and the CF nurse and everyone assured me they have every possible piece of information they could possibly need, so we finally sent my daughters blood off to Ambry today. <br /> <br />So now we wait.... and wait. I am happy...

sorry for all of that, I tried to send a message, got the error then all of a sudden they all went through. oops.

sorry for all of that, I tried to send a message, got the error then all of a sudden they all went through. oops.