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I was prescribed this as a replacement for Tobi, as both the podhaler and nebulised versions have worse side effects than perceived benefit. I too was given poor instructions on use and administration, and immediately received diarrhea after the first day (two doses), which sent me googling...

Growing up in a humid climate, I always had runny nose, until it plugged up completely. Surgery at 22. But shortly after I moved to the prairies and the dry climate reduced sinus issues to non-existant. Then I moved to Vancouver, and the humid climate instantly clogged up my nose, which...

I have the exact same thing!! First it was in the left shoulder for over a year. Then it mysteriously got better. About 10 months ago it started again in the right shoulder. No reason. No solution. I would love to know more.

We should start our own sub-club! Only DF508 and G542X allowed! Oh, and by the way, G542X means you're jewish.

And your annual glucose tolerance test, by this do you mean the type where one has blood drawn post-fast, consumes a large quantity of dextrose, waits two hours, then has blood drawn again? What were your pre and post glucose numbers? If your fasting glucose (first test) is anything above 7...

The most obvious which hasn't been mentioned yet: CFrD. Did your headache come on due to the consumption of carbohydrates? Are you tired mostly after eating? Are you always hungry? I would encourage you to pursue the fact that you may have developed CFrD.

I'm Canadian and when I travel to the US, I always get a letter from my doctor / CF Clinic, on letterhead, with a list of prescriptions and diagnosis. Not that I offer it up, but rather that I have it, just in case. And that's for either direction. Entering the US, they don't want smugglers...

I wanted to point out to the first suggestion of dehydration, you responded that your daughter "drinks tons of fluids". What exactly do you mean by "tons" and by "fluids"? Quantity depends on body mass, as well as climate. Fluids, I assume, you mean WATER. If for some reason, it's...

Being slightly older than the previous posters, and not too old, I need to coin an acronymical phrase to describe my CF life. Child of the 70's, grew up in the 80's before B.Cegregation. I don't know where I would be at now without having had the experience of knowing many other peers with CF...

Matt: Are you back in Surrey? I live in Vancouver and could use the Pulmozyme.

I want to offer some additional "opinion" to your situation. Coughing and blood: this may not necessarily mean infection. And the source of bleeding can be anywhere in the airway-lung. A "mild" bleeding is merely caused by irritation and dryness and a broken vessel in the trachea or upper...

@cfsucks: What is the root cause of CFrD then? Is it that the islets of Langerhan are just overcome with pseudomonas a.? Being clogged up prevents natural insulin? Therefore, when dosed with pseudomonas a. killing antibiotics, the clogs on the islets are removed? Or is it that "the body" is...

@cfsucks: What is the root cause of CFrD then? Is it that the islets of Langerhan are just overcome with pseudomonas a.? Being clogged up prevents natural insulin? Therefore, when dosed with pseudomonas a. killing antibiotics, the clogs on the islets are removed? Or is it that "the body" is...

** EDIT: ** If so, WHY does this happen?

** EDIT: ** If so, WHY does this happen?

Since being aware of CFrD and treating with insulin, I've had two pulmonary exacerbations since October 2010 for which I've been treated with tobramycin and ceftazidime via PICC and homecare. After about 5 to 7 days of treatment, my insulin needs are altered dramatically. I must nearly halve my...

Since being aware of CFrD and treating with insulin, I've had two pulmonary exacerbations since October 2010 for which I've been treated with tobramycin and ceftazidime via PICC and homecare. After about 5 to 7 days of treatment, my insulin needs are altered dramatically. I must nearly halve my...

In december 2011, at CF Clinic, the lead doctor said to me: "...you've been lucky to have CF..." "...insulin pumps are not an effective treatment for diabetes: they're just too much work..." We've since recorded our conversations, secretly, so if he says anything else really stupid, we'll...

In december 2011, at CF Clinic, the lead doctor said to me: "...you've been lucky to have CF..." "...insulin pumps are not an effective treatment for diabetes: they're just too much work..." We've since recorded our conversations, secretly, so if he says anything else really stupid, we'll...

You will get a six-pack abs (or other muscle definition) just like anyone else: proper diet and EXERCISE. I have CF, I'm 36. I too struggled with this for two reasons: With CF, exercise is discouraged, high fat diet is encouraged. Not only does this sound stupid, it is stupid. Get yourself...