Cystic Fibrosis Forum (EXP)

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  1. J

    Papa John's

    Papa John's addressing a system oversight. The CF Foundation will receive credit for all orders placed utilizing the CURECF promo code between 7-31-11 and 1-16-12.
  2. J

    Papa John's

    Papa John's addressing a system oversight. The CF Foundation will receive credit for all orders placed utilizing the CURECF promo code between 7-31-11 and 1-16-12.
  3. J

    Papa John's

    Papa John's is working to correct a system oversight. The CF Foundation will receive any funds owed by orders placed with the CURECF promo code.
  4. J

    Papa John's

    Papa John's is working to correct a system oversight. The CF Foundation will receive any funds owed by orders placed with the CURECF promo code.
  5. J

    Success at University of Kentucky

    Thanks guys! She's doing fantastic! I couldn't be happier for her. You can see a post tx interview by a local news station at www.wlky.com (search for double lung transplant or Cystic Fibrosis). Just got back from the post office. Donated her VEST to a family with a young cystic son in...
  6. J

    Success at University of Kentucky

    Thanks guys! She's doing fantastic! I couldn't be happier for her. You can see a post tx interview by a local news station at www.wlky.com (search for double lung transplant or Cystic Fibrosis). Just got back from the post office. Donated her VEST to a family with a young cystic son in...
  7. J

    Success at University of Kentucky

    On December 19th, my Julie was successfully transplanted at the University of Kentucky. I can't tell you the happiness in my heart for her. I wanted to share a couple of things with you all:<br>1) In our CF community, we MUST change our mindset in so far as when we seek transplant options. For...
  8. J

    Success at University of Kentucky

    On December 19th, my Julie was successfully transplanted at the University of Kentucky. I can't tell you the happiness in my heart for her. I wanted to share a couple of things with you all:<br>1) In our CF community, we MUST change our mindset in so far as when we seek transplant options. For...
  9. J

    Picc line at home or in hospital

    My 2¢ worth. Do your meds at home. You're capable of cleaning around the site and taking care of the Picc. The longer your in the hospital, the greater the chance of them making you worse and the greater the chance for more infection. Spend as little time in the hospital as necessary. Good...
  10. J

    Picc line at home or in hospital

    My 2¢ worth. Do your meds at home. You're capable of cleaning around the site and taking care of the Picc. The longer your in the hospital, the greater the chance of them making you worse and the greater the chance for more infection. Spend as little time in the hospital as necessary. Good...
  11. J

    Picc line at home or in hospital

    My 2¢ worth. Do your meds at home. You're capable of cleaning around the site and taking care of the Picc. The longer your in the hospital, the greater the chance of them making you worse and the greater the chance for more infection. Spend as little time in the hospital as necessary. Good...
  12. J

    Frustration

    Thanks guys for all of the support. If you want to really make matters worse, toss in grief stricken parents. I've been forced into conversations about: "Where are you going to bury her?" "Can we have a priest give last rights?" and a forced intervention from a family member I don't know who...
  13. J

    Frustration

    Thanks guys for all of the support. If you want to really make matters worse, toss in grief stricken parents. I've been forced into conversations about: "Where are you going to bury her?" "Can we have a priest give last rights?" and a forced intervention from a family member I don't know who...
  14. J

    Frustration

    Thanks guys for all of the support. If you want to really make matters worse, toss in grief stricken parents. I've been forced into conversations about: "Where are you going to bury her?" "Can we have a priest give last rights?" and a forced intervention from a family member I don't know who...
  15. J

    Frustration

    It'll fix the digestive issues she's been having and it will allow them to remove all pain meds eventually. The problem is time. They can't transplant her lungs while she's in this condition. All of those pain meds really harmed her pulmonary system and we need lungs in the worse way.
  16. J

    Frustration

    It'll fix the digestive issues she's been having and it will allow them to remove all pain meds eventually. The problem is time. They can't transplant her lungs while she's in this condition. All of those pain meds really harmed her pulmonary system and we need lungs in the worse way.
  17. J

    Frustration

    It'll fix the digestive issues she's been having and it will allow them to remove all pain meds eventually. The problem is time. They can't transplant her lungs while she's in this condition. All of those pain meds really harmed her pulmonary system and we need lungs in the worse way.
  18. J

    Frustration

    Since March, my wife has been complaining about pain associated with a peg tube that was placed during that month.<br>The idea of the peg was to build nutrition. She was never able to tolerate tube feeds. She complained of nausea and pain. High level drugs were given to ease that pain. The CF...
  19. J

    Frustration

    Since March, my wife has been complaining about pain associated with a peg tube that was placed during that month.<br>The idea of the peg was to build nutrition. She was never able to tolerate tube feeds. She complained of nausea and pain. High level drugs were given to ease that pain. The CF...
  20. J

    Frustration

    Since March, my wife has been complaining about pain associated with a peg tube that was placed during that month.<br>The idea of the peg was to build nutrition. She was never able to tolerate tube feeds. She complained of nausea and pain. High level drugs were given to ease that pain. The CF...
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