Cystic Fibrosis Forum (EXP)

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  1. C

    Whose with somebody and the parents throw insulting comments at you?

    When my husband and I were dating and getting more serious, (His sister had CF) My mother said to me "you better think about your future do you want to have childern with Cf" I told you don'tpick who you fall in love with and that didn't matter to me that I would not end my relationship with him...
  2. C

    Whose with somebody and the parents throw insulting comments at you?

    When my husband and I were dating and getting more serious, (His sister had CF) My mother said to me "you better think about your future do you want to have childern with Cf" I told you don'tpick who you fall in love with and that didn't matter to me that I would not end my relationship with him...
  3. C

    I need Advice please

    Yes we are seeing a Cf doctor and we go to Childerns in Washington DC.<br>
  4. C

    I need Advice please

    Yes we are seeing a Cf doctor and we go to Childerns in Washington DC.<br>
  5. C

    I need Advice please

    <br>Thank you everyone for the advice. We go go to Childerns Hospital, the testing he had done showed that he had the 7t 7t varient and thats all I know. Hehad an Ambrey test done in Aug 2009. The staph has shown up in throat cultures and in nose swabs. We have been to an ENT at Childerns and he...
  6. C

    I need Advice please

    <br>Thank you everyone for the advice. We go go to Childerns Hospital, the testing he had done showed that he had the 7t 7t varient and thats all I know. Hehad an Ambrey test done in Aug 2009. The staph has shown up in throat cultures and in nose swabs. We have been to an ENT at Childerns and he...
  7. C

    I need Advice please

    <br>My son has A typical cf we do neb treatments, vest, enzymes etc. He is 3 yrs old hospitalized 5 times for respitory infections and testing postive for different bacterias. The last year and a half he has had a fever everyday not always high somewhere between 99.7 and 100.5. He acts sick gets...
  8. C

    I need Advice please

    <br>My son has A typical cf we do neb treatments, vest, enzymes etc. He is 3 yrs old hospitalized 5 times for respitory infections and testing postive for different bacterias. The last year and a half he has had a fever everyday not always high somewhere between 99.7 and 100.5. He acts sick gets...
  9. C

    Questions about my son who has A Typical CF

    Thank you for responding. Debbie yes he has been tested, and yes he does eat dairy. So that is something to think about. My question I guess just if anyone had any suggestionsor advice. And yes alittle bet of venting. Thank you again!
  10. C

    Questions about my son who has A Typical CF

    Thank you for responding. Debbie yes he has been tested, and yes he does eat dairy. So that is something to think about. My question I guess just if anyone had any suggestionsor advice. And yes alittle bet of venting. Thank you again!
  11. C

    Questions about my son who has A Typical CF

    Thank you for responding. Debbie yes he has been tested, and yes he does eat dairy. So that is something to think about. My question I guess just if anyone had any suggestionsor advice. And yes alittle bet of venting. Thank you again!
  12. C

    Post Traumatic Stress in parents of kids with CF

    Thank yor sharing this. This is my life with 2 of my 3 childern. My husband is great but does avoid some of the treatments. In his defense he had a sister who lost her battle with CF in 2000. And this brings back alot of memories for him. I also couldn't get thru it without tears. Thank you I am...
  13. C

    Post Traumatic Stress in parents of kids with CF

    Thank yor sharing this. This is my life with 2 of my 3 childern. My husband is great but does avoid some of the treatments. In his defense he had a sister who lost her battle with CF in 2000. And this brings back alot of memories for him. I also couldn't get thru it without tears. Thank you I am...
  14. C

    Post Traumatic Stress in parents of kids with CF

    Thank yor sharing this. This is my life with 2 of my 3 childern. My husband is great but does avoid some of the treatments. In his defense he had a sister who lost her battle with CF in 2000. And this brings back alot of memories for him. I also couldn't get thru it without tears. Thank you I am...
  15. C

    CF Culture Results

    We always have to wait a week to get results.
  16. C

    CF Culture Results

    We always have to wait a week to get results.
  17. C

    CF Culture Results

    We always have to wait a week to get results.
  18. C

    Questions about my son who has A Typical CF

    4 weeks ago he tested ecoli and staph. He was on Septra for 3 weeks. Which had been on in March for the same length of time. He seems to do ok for a while but it seems like it stops working. He was in for a check up yesterday and culturegoing tod agian now we are just waiting to see what it...
  19. C

    Questions about my son who has A Typical CF

    4 weeks ago he tested ecoli and staph. He was on Septra for 3 weeks. Which had been on in March for the same length of time. He seems to do ok for a while but it seems like it stops working. He was in for a check up yesterday and culturegoing tod agian now we are just waiting to see what it...
  20. C

    Questions about my son who has A Typical CF

    4 weeks ago he tested ecoli and staph. He was on Septra for 3 weeks. Which had been on in March for the same length of time. He seems to do ok for a while but it seems like it stops working. He was in for a check up yesterday and culturegoing tod agian now we are just waiting to see what it...
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