Cystic Fibrosis Forum (EXP)

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  1. R

    Bubbles the fish mask

    Sorry for the repeat, but thought I might get a better response here. Has to do with removing the blue part on the top of the pari neb cup... <a target=_blank class=ftalternatingbarlinklarge...
  2. R

    Bubbles the fish max instructions

    Just got a couple of bubbles fish masks for DS and actually read the instruction on the package. Says to remove the respiratory (blue) part of the top of the pari neb cup prior to use. Now wouldn't that waste medication? Just curious 'cuz we mainly use the fish mask when he does Tobi, though...
  3. R

    Sinus Rinses

    DS started sneezing and developed a runny nose this past weekend. Figured he got a cold because his nose rarely runs -- first time ever was when he started pulmozyme at age 2 1/2 and then a year or so ago when he got a cold, which turned into an upper respiratory infection. Anyway, runny...
  4. R

    OT -- What's your picky eater having

    DS never ever wants to eat at any family event. I did get him to sit at a cousin's confirmation open house last spring because there were a couple of big kids sitting at a card table. Otherwise, he throws a fit and refuses to eat the entire day or time we're there. So last night his...
  5. R

    Vest Power Cord

    DS has only had his vest for a little over a year and until recently when we moved it from my nightstand to underneath our coffee table in the family room, it's only been moved maybe half a dozen times. Noticed a HUGE crack in the cord last night. The cord isn't anywhere where someone could...
  6. R

    Milia? Clogged Pores from heat/salty skin

    DS has always developed a bit of a heat like rash during the summer. And he's always had little white spots (milia?) that look like clogged pores on his cheeks. This week his grandparents were in town and he insisted on sleeping with them and he woke up after a nap and said his face was...
  7. R

    Vesty

    A little over a year ago, DS finally got his vest, but the novelty shortly wore off. It was too loud, it interferred with his playing. I'd pretend I was "vesty" and talk in a falsetto voice "Hi, Max, I want to give you a hug. Lets play" And he'd get mad and say, "vesty, I don't LOVE you". A...
  8. R

    Aqua Adeks

    My pharmacy hasn't been able to get DS's aqua-adeks drops lately. I checked their site and it seems I can order the drops from them, but they're out of the soft gels. I'd read on another site that they're reformulating it over the next couple months because of issues some people have had with...
  9. R

    Bribery... Sigh

    With his oral meds, Max has absolutely decided that he hates the white one -- cipro, which he's on for one more week. I think he just dislikes the fact that it's not pink like all his other meds... I'd been able to sneak it in with all the others. But lately he's giving us trouble. Got...
  10. R

    OT - Pancake Puffs

    For the past several weeks DS has seen this commercial on tv for Pancake Puffs. Figure when he asks for something, actually shows an interest in something food related, we need to act on it. So I went searching for it yesterday and finally found it at Linens-n-things. So for supper DH got...
  11. R

    Greek Yogurt

    Our grocery store finally started carrying Fage greek yogurt. Otherwise I'd have to wait until we went to the City 250 miles away and hit the grocery store or Trader Joes for their brand. Last week noticed Stoneyfield Farms had their own version of greek yogurt -- supposedly strained -- got...
  12. R

    OT - Plumpy Nut

    Saw a story on 60 minutes about this last night. Hmmm. <a target=_blank class=ftalternatingbarlinklarge href="http://en.wikipedia.org/wiki/Plumpy'nut">http://en.wikipedia.org/wiki/Plumpy'nut</a>
  13. R

    Portable Enzyme Containers

    I hate carrying around a pill bottle and a few years ago I got a little square pill box from a mail order pharmacy for DS's creons. I carry a very small purse with a crossbody strap to keep my hands free when I'm out and about with the wild dingo child. I'm looking for something a little...
  14. R

    Chain E-mails

    <a target=_blank class=ftalternatingbarlinklarge href="http://info.org.il/irrelevant/may02-smilepop-soapbox4.swf">http://info.org.il/irrelevant/...-smilepop-soapbox4.swf</a>
  15. R

    The Picky Eater Strikes Again

    Argh! For the most part he did okay this weekend, but he keeps requesting ketchup for a meal. Sunday -- he wanted a pickle sandwich on a hotdog bun and ketchup for dessert. So I buttered the bun and nuked it so he wouldn't detect it and he did okay, had some teddy grahams dipped in yogurt...
  16. R

    Previous Tooth Discoloration

    Ever since DS has gotten teeth, there have been brownish areas on the lower inside, front teeth and at first I was worried his teeth were rotting. When I took him to the dentist at 2 they said it was just a LOT of staining. Encouraged me to rinse out his mouth after giving him his meds, as a...
  17. R

    My Little Salty Boy

    After I pick up DS at preschool. I usually give him some blue kool-aid and a snack -- usually he wants peanuts, sunflower nuts or pretzels. And on incredibly hot days, I toss a dash of salt into his kool-aid. This past week it hasn't been very warm -- downright chilly. And he's been...
  18. R

    Chicken Nuggets

    The king of the picky eaters has actually been trying new food for the past couple of weeks at preschool. He's told me twice that he's eaten baked beans -- one. Last week he tried peas -- he's hated peas since he was 6 months old -- the lady in the baby room swore he could tell if even the...
  19. R

    Aerosol DTPA Lung Scan

    Apparently it's a CT, but prior to the scan the patient is supposed inhale some sort of isotope, so things show up better. Supposely a more detailed look at the small airways and how they may be affected. Doctor has mentioned wanting to do one of these in the past, just never knew what it was...
  20. R

    Faith Healing Article

    <a target=_blank class=ftalternatingbarlinklarge href="http://origin.mercurynews.com/religion/ci_6677110">http://origin.mercurynews.com/religion/ci_6677110</a>
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