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I've exchanged email a few times with Anika -- cysticfibrosisgirl after she posted a nice comment on DS's caringbridge page. I've been keeping track of her site and she's been sick lately - pleurisy, infection. She's just found out that she probably doesn't have CF after all. Seems rather odd...

Saw this last year, but they weren't anywhere close where we live. Just got an email from the CFF Chapter wondering if we could volunteer on the date they're in our town. For $5 you can have your picture taken with the cycle and they'll donate to Great Strides. <a target=_blank...

Last summer, I noticed that DS pretty much had a red spotted rash on the back of his neck all summer long. I figured it was a heat rash of some sort, maybe his shirt tag rubbing up against it or his hair was getting kinda long... Nothing major, just some red dots. Last night I noticed it...

Our local germ-a-phobe pulmonologist thought gymnastics would be the only suitable sport for DS to get involved in. He was horrified when DH mentioned football (grass), swimming or hockey (mold).... He's pretty much an odd one and we tend to ignore his drama. He doesn't know about the twice...

<a target=_blank class=ftalternatingbarlinklarge href="http://www.sciencedaily.com/releases/2007/01/070122143050.htm">http://www.sciencedaily.com/re...07/01/070122143050.htm</a>

We've never really been happy with our local CF clinic, which recently apparently became accreditted. Crowded community waiting room, etc. We haven't been back since last Spring. Keep cancelling our appointments and they reschedule. We finally made an appointment with our regular...

Last March after an particularly dreadful local CF clinic appointment, DH and I decided we weren't going back. Number of issues -- crowded community waiting room. Apppointment starting at 8 and not seeing a soul until 9:40... We see a CF doctor in the City every 4-6 months, but had wanted to...

I NEVER get sick. Last Wednesday I felt chilled at work. That's it. Just cold, but half the time our furnace doesn't work, so figured it was that. Went home and had a fever of 101. Next day my chest felt a little tight... Ended up going to the doctor who thinks I might have bronchitis...

Max has been telling me for the past few months that he's growing bigger and bigger -- that his feet are growing bigger 'cuz he's been trying to convince us that he's big enough for "Moon shoes", which he saw an a commercial but are for ages 7 and up. When I ask him where my baby went, he...

I was on another website and saw mention from someone who goes to U of MN that their favorite CF doctor is leaving and heading to California. I thought they went to see Dr. Carlos Milla, but realize there are other doctors there, too. Just curious...

Just noticed that care center info on each clinic is now available on the cff.org website. You do have to log on/register to access the info. <a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/aboutCFFoundation/NewsEvents/index.cfm?ID=5581&TYPE=1670...

<a target=_blank class=ftalternatingbarlinklarge href="http://www.iht.com/articles/ap/2006/12/16/america/NA_GEN_US_Bacteria_Outbreak.php">http://www.iht.com/articles/ap..._Bacteria_Outbreak.php</a>

Does anyone strap the vest on their kids while they're sleeping? I know on another site someone indicated their husband would get up at 5 a.m. and put the vest on their two kids and they'd sleep thru it. I just can't imagine anyone sleeping thru it, although DS does sleep thru his morning CPT...

Here's the irony... I have a pretty strong stomach with most things, but from a very young age I get urpy around mucus. Someone leaves a glob of mucus in a drinking fountain at school, I'd get the dry heaves, gob a spit on the sidewalk -- ditto! So last night we're watching a recording of ER...

Saw this on the news -- 4 month old son was diagnosed with CF. <a target=_blank class=ftalternatingbarlinklarge href="http://www.timesonline.co.uk/article/0,,2-2478775,00.html">http://www.timesonline.co.uk/a...e/0,,2-2478775,00.html</a>

When DS is on Tobi, I usually notice he gets a bit stuffed up and I don't notice it so much when he's not. Last week he sort of had a dry stuffy nose -- his nose RARELY runs. Anyway last weekend he sneezed and a chunk of dried blood came out -- actually two, which he thought was hilarious --...

I know I've brought this topic up before. I'm not a clean freak, germaphobe by any means, but I'm having a tough time dealing with relatives, inlaws who show up to family events sick because they just don't want to miss out. What brought this to mind was MY family this past weekend. My...

One of my outlaws just sent an email out wondering if several of us would be interested in a spring break trip. We've been to Mexico with DS, but she also mentioned possibly going to either Costa Rica, Jamaica or the Dominican Republic. I'm a little apprehensive about the possiblilty of a trip...

DS got his vest last week and someone came to the house for training. He seems to like it. We had the training in his little recliner, although we moved the vest into our bedroom because we always do CPT and Nebs on our bed so he can watch movies or television. He seems to be tolerating the...

I was finally able to get DS a flu shot, after the fiasco at the peds clinic where the receptioninst was making a determination of what high risk was. Took him in on Tuesday and the same little witch said "I had you down as a no show. You had an earlier appointment" I asked when, because I...