Cystic Fibrosis Forum (EXP)

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  1. R

    Hankies bleah

    I'm not a germaphobe by any means. I just have a hanky-phobia that grosses me out to no end. My FIL has sinus problems and he's always always carrying around a hanky in his pocket. I've called him on it several times and his response is "I took it out of the drawer this morning. It's clean"...
  2. R

    Asked to talk to Nursing Students about CF

    So, my MIL is semi-retired nursing instructor and has mentioned that the head of the nursing program wondered if DH and I would be willing to talk to some of the students about CF and we indicated we'd be happy to -- spread awareness, yadda yadda yadda. Unfortunately, I won't be able to discuss...
  3. R

    U of MN Education Day

    <a target=_blank class=ftalternatingbarlinklarge href="http://www.med.umn.edu/peds/cfcenter/education/home.html">http://www.med.umn.edu/peds/cf...er/education/home.html</a>
  4. R

    Hill-Rom Vest

    So at DS's appointment the other day, the doctor indicated he thought he was finally big enough for a vest. When I asked what brand, he mentioned a name I wasn't familiar with -- I was to call the clinic to get the paperwork started on it this week -- but it was less expensive than some of the...
  5. R

    Proud CF Foundation doesn't want your charity

    <a target=_blank class=ftalternatingbarlinklarge href="http://www.theonion.com/content/node/53834 ">http://www.theonion.com/content/node/53834 </a> I don't believe this is a CFF organization. How bizarre!
  6. R

    When do you find the time to workout

    I used to walk 4 miles every night ever work. During the winter, I'd walk on the treadmill, nicer weather I'd walk outdoors. Since DS was born 3 years ago, I can't seem to find the time. I get up at 6 a.m. and start CPT and get ready for work. At noon I'm doing laundry, boiling nebs, doing...
  7. R

    Tooth Staining

    Ever since DS first got teeth at about 8 months, I noticed real dark spots on the bottom teeth, inside. I worried that they were rotting, decayed 'cuz I'd give him white grape juice once in awhile. Last spring we took him to the dentist for a look and we were told there was a LOT of buildup...
  8. R

    Amy's Blog on Dr. Warwick

    Feel as if I'm waiting for the next installment of a regular television show. Sitting at work checking every once in a while if she's updated her Dr. Warwick info. Info is just so informative and I'm driving DH crazy telling him -- remind me, we need to talk about this at our next clinic...
  9. R

    Okay, I bought a deep fryer

    Okay, going away for the weekend and picked up a deep fryer to boil nebulizer cups. Any tips or suggestions. L
  10. R

    PFT's for older children

    The question on infant PFTs got me thinking -- when do they usually do tests on older kids? What does it entail. At our last local clinic appointment, someone mentioned that pretty soon DS should be ready for PFTs. I'm a little concerned because of the lack of germ/infection protocol at the...
  11. R

    OT -- the color of poop

    DS is so funny about his pooping. Sometimes he pops off the potty and looks in there and yells "hey, there's corn"! Which reminds me of the Austin Powers movie when Fat Bast### yell, "CORN, I don't remember eating CORN". Yesterday I picked him up at preschool and he says to me "Mommy, I...
  12. R

    Sick people who just don't get it

    Every year during cold and flu season I deal with people at work who crawl out of the deathbeds to spread their germs and happiness. I work with several who cough all over the community food in the break room, don't wash their hands, cover their mouths when the cough & sneeze. I've always...
  13. R

    Picky Toddler Eating again...

    Seems as if DS is very limited in his choices for meals at home. We blame ourselves, because early on instead of sitting down and having family meals, being pressed for time, we'd fix his food first and we'd eat later. His latest trick is sitting down at the table and announcing "I don't want...
  14. R

    Switching Doctors/Clinics

    DH and I are looking into finding a different local doctor for DS's health care. We have two hospitals/clinics in our town and have gone to our current one since the beginning of time. I've talked about our current clinic at length in other posts before, so won't go into the gorey details...
  15. R

    Zithromax is now available as a generic

    I just went to the pharmacy to pick up DS's meds and they told me that his zithromax suspension -- I get a month's supply of the powder and mix my own up each week -- is not available as a generic; however, there wasn't a difference in price yet <img src="i/expressions/face-icon-small-sad.gif"...
  16. R

    Nebulizer Washing on the Road

    At home I boil neb cups after washing them in hot soapy water once a day. And I've been rinsing them in really hot tap water in between treatments, which I've now learned is a no-no. As is distilled water.... So what does one do while on the road. In the past if we are in a hotel, I've used...
  17. R

    Lung CT Scan

    Has anyone ever had one of these? Doctor wants DS to have one in a couple of months. Nurse called yesterday to tell us it takes about 30 minutes total -- the scan will take about 15 minutes. Wondered if DS will be able to stay still that long or else they might have to sedate him. He's...
  18. R

    Dealing with two different clinics

    I've mentioned in other posts about trying to decide if we should continue going to the local CF clinic or just see a regular doctor in town and primarily see our CF doctor in the City. Getting close in time to yet another local CF clinic and get edgy -- cross contamination, lack of germ...
  19. R

    OT - Bee Sting

    I got a call from DS's preschool saying he got stung by a bee. His first ever. They wanted to know if he'd ever reacted to them before. They were treating him, keeping and eye on him for any reaction. Said he was doing fine, just wanted to let us know. I figure he's in good hands -- the...
  20. R

    Adult Pertussis (whooping cough) vaccine

    I went in for a tetanus shot on Friday -- it'd been 10 years since I'd had one and I realized it had been awhile a few weeks ago when I was helping replace some boards on my inlaws dock and was dealing with rusty screws... anyway, the tetanus vaccine in the states now comes with an adult...
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