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We have never had the balls. We have always used the Bard Syringe Pump and I really like it. Most of Hayley's meds only infuse for 30 minutes at a time and we are comfortable using it. She just carries the pump around with her if she wants to get up and move, its really no big deal! I also...

We have never had the balls. We have always used the Bard Syringe Pump and I really like it. Most of Hayley's meds only infuse for 30 minutes at a time and we are comfortable using it. She just carries the pump around with her if she wants to get up and move, its really no big deal! I also...

We have never had the balls. We have always used the Bard Syringe Pump and I really like it. Most of Hayley's meds only infuse for 30 minutes at a time and we are comfortable using it. She just carries the pump around with her if she wants to get up and move, its really no big deal! I also...

Thanks! That was a great article!!

Thanks! That was a great article!!

Thanks! That was a great article!!

Thanks! That was a great article!!

Thanks! That was a great article!!

We were just inpatient(released today) and we got a little sock puppet kit for my daughter to make a sock puppet made by the Zingo, to advertise it. I asked about it and a nurse told me that they went bankrupt, appartently the med had a very short shelf life and they are no longer making it.

We were just inpatient(released today) and we got a little sock puppet kit for my daughter to make a sock puppet made by the Zingo, to advertise it. I asked about it and a nurse told me that they went bankrupt, appartently the med had a very short shelf life and they are no longer making it.

We were just inpatient(released today) and we got a little sock puppet kit for my daughter to make a sock puppet made by the Zingo, to advertise it. I asked about it and a nurse told me that they went bankrupt, appartently the med had a very short shelf life and they are no longer making it.

We were just inpatient(released today) and we got a little sock puppet kit for my daughter to make a sock puppet made by the Zingo, to advertise it. I asked about it and a nurse told me that they went bankrupt, appartently the med had a very short shelf life and they are no longer making it.

We were just inpatient(released today) and we got a little sock puppet kit for my daughter to make a sock puppet made by the Zingo, to advertise it. I asked about it and a nurse told me that they went bankrupt, appartently the med had a very short shelf life and they are no longer making it.

Wow! You post really saddened me! As the parent of a child with CF, the guilt I feel for her having CF is ENORMOUS!! There isn't a day that goes by that I don't think to myself that it is half my fault she has CF (even though we did not know we were carriers and actually as many others, had...

Wow! You post really saddened me! As the parent of a child with CF, the guilt I feel for her having CF is ENORMOUS!! There isn't a day that goes by that I don't think to myself that it is half my fault she has CF (even though we did not know we were carriers and actually as many others, had...

Wow! You post really saddened me! As the parent of a child with CF, the guilt I feel for her having CF is ENORMOUS!! There isn't a day that goes by that I don't think to myself that it is half my fault she has CF (even though we did not know we were carriers and actually as many others, had...

Wow! You post really saddened me! As the parent of a child with CF, the guilt I feel for her having CF is ENORMOUS!! There isn't a day that goes by that I don't think to myself that it is half my fault she has CF (even though we did not know we were carriers and actually as many others, had...

Wow! You post really saddened me! As the parent of a child with CF, the guilt I feel for her having CF is ENORMOUS!! There isn't a day that goes by that I don't think to myself that it is half my fault she has CF (even though we did not know we were carriers and actually as many others, had...

My daughter, Hayley, who is only 4 has been on IV tobramycin at least 6 times if not more. OUr doctor checks the level after every third dose. They draw right before the does is given and then a half hour after the does is given. The dosage can be tricky until you get it just right. When it...

My daughter, Hayley, who is only 4 has been on IV tobramycin at least 6 times if not more. OUr doctor checks the level after every third dose. They draw right before the does is given and then a half hour after the does is given. The dosage can be tricky until you get it just right. When it...