Cystic Fibrosis Forum (EXP)

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  1. L

    disability

    they told me i didn't have enough work credits to get the SSDI...but here is what i dont get...well no kidding i dont enough i am to dang sick to work! hello! lol...how am i suposed to get them when i cant work!!!
  2. L

    disability

    i never have even tried to apply for that SSDI...i was told i would not get it. I was never denied SSI neither. but it did take them over a year to pay me. My FEV1 is in the mid 40%.
  3. L

    Help me laugh.

    not sure if this falls in to what your looking for but.....a few years ago when they put me on cipro and oxidycyline the guy at the pharmacey askes me....have you ever been on these and yaddaa yadda being a total *****.....i responded with...."No hopefully it will kill me" shut his ass right up...
  4. L

    disability

    i am on SSI...i know thats diff from disability. I was told i had not worked enough to get disability? I am now 24 and have been on SSI sence i was 19. But i worked from when i was 15-19.
  5. L

    Feeding Tubes

    Hi...i had a G tube put in when i was 10 i think and ive had it and used it ever sence.The tube saved my life i was so skinny and sick that they HAD to do it. Im not going to lie to you because it is a hard thing to deal with and being a guy makes it even harder. But i would say hold off on it...
  6. L

    Out of H. Saline

    I was just put on this last week. but i am still waiting for the pharmi to fill it. i guess it really is on back order?
  7. L

    CF camp in MI...need help!

    i was there in 89,90 and 96
  8. L

    CF camp in MI...need help!

    the cf camp here in michigan closed 10 years ago now. i am pretty sure it was on a lake too.
  9. L

    To Lynchmobshredder

    When i was a kid...i went to MSU. But when i turned 21 i moved to an adult clinic, the pediatrics was not cutting it no more! lol. Now i go to UofM and i love it.
  10. L

    To Lynchmobshredder

    Hi Abby...... yes this is cool that we live close,when is the walk?I was wondering What clinic do you take your daughter too?
  11. L

    where are you from?

    HI Abby.....we live very close! i am in Midland.
  12. L

    uu

    a mod can delete this...i eraised this somehow? lol sorry
  13. L

    uu

    uu
  14. L

    where are you from?

    Midland,Michigan
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