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My dd had open heart surgery in feb. after the surgery she started gaining weight with the diet she was on. Now she stopped , she is not losing but not gaining neither. She is 5 months old and is 10 1/2 pounds and the doc said she should be 13 0r more. We think she is teething ,would that have...

My 4 month old daughter Kayla has cf and we were in the middle of fixing up are home to sell when we found out she had cf. My question is do we have to take her out of the house when we paint or lets say replace floors and things like that? or is there precautions we can take? Any advice...

Hi. I was wondering if anyone could tell me what kind of test do they do with the new born screening ? Do they test for multiple genes or how does that work? It says on hers Mutation Analysis (cftr) f508 thats under result s. Under value it says 1 mutation(s) reference range irt<140ng/ml...

Kayla had her heart surgery today!!! The Doc said everything went great ! except her lung pressure was high around 32 were its suppose to be at 16/17 , witch is only common in people with down syndrom , but said its already declining down were it should be slowly. HE said that it just means it...

I was wondering if anyone with a 3 month old, knows the best time for us to give her pd's to her . we only do them once a day , we don't know witch one would be best , mourning or night . thank you for any input.

Just want to tell everyone thanks for the support , And its nice to know were not alone. This site has helped me more than I can say, Thanks.

My daughter Kayla was diagnosed at 3 months with cf on Feb 8 . her sweat test was 94/95 It felt like my whole life came to a end. Its hard for me to hold her without getting emotional. And I know thats something I should not do in front of her. I want to be stronger with this but its hard. My...