Cystic Fibrosis Forum (EXP)

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  1. M

    At my Breaking Point

    Well today was ds weight check, he gained a little over 1 oz in one months. I'm so frustrated! His ped said the referral for the genetic analysis was in at Children's, and she also added a list of other things she wanted checked out. I asked if it was for the full panel and explained what I...
  2. M

    At my Breaking Point

    Well today was ds weight check, he gained a little over 1 oz in one months. I'm so frustrated! His ped said the referral for the genetic analysis was in at Children's, and she also added a list of other things she wanted checked out. I asked if it was for the full panel and explained what I...
  3. M

    At my Breaking Point

    Well today was ds weight check, he gained a little over 1 oz in one months. I'm so frustrated! His ped said the referral for the genetic analysis was in at Children's, and she also added a list of other things she wanted checked out. I asked if it was for the full panel and explained what I...
  4. M

    At my Breaking Point

    Well today was ds weight check, he gained a little over 1 oz in one months. I'm so frustrated! His ped said the referral for the genetic analysis was in at Children's, and she also added a list of other things she wanted checked out. I asked if it was for the full panel and explained what I...
  5. M

    At my Breaking Point

    Well today was ds weight check, he gained a little over 1 oz in one months. I'm so frustrated! His ped said the referral for the genetic analysis was in at Children's, and she also added a list of other things she wanted checked out. I asked if it was for the full panel and explained what I...
  6. M

    At my Breaking Point

    Well today was ds weight check, he gained a little over 1 oz in one months. I'm so frustrated! His ped said the referral for the genetic analysis was in at Children's, and she also added a list of other things she wanted checked out. I asked if it was for the full panel and explained what I...
  7. M

    Need support, what can I expect?

    <b>okok</b>-I just realized there was a second page....Thanks so much for the info on the sweat test. After reading your post I will keep that appt. I was unsure what to do about it but it makes sense that eventually sweat results will be wanted. Believe me I will push for the Ambry test. I...
  8. M

    Need support, what can I expect?

    <b>okok</b>-I just realized there was a second page....Thanks so much for the info on the sweat test. After reading your post I will keep that appt. I was unsure what to do about it but it makes sense that eventually sweat results will be wanted. Believe me I will push for the Ambry test. I...
  9. M

    Need support, what can I expect?

    <b>okok</b>-I just realized there was a second page....Thanks so much for the info on the sweat test. After reading your post I will keep that appt. I was unsure what to do about it but it makes sense that eventually sweat results will be wanted. Believe me I will push for the Ambry test. I...
  10. M

    Need support, what can I expect?

    <b>okok</b>-I just realized there was a second page....Thanks so much for the info on the sweat test. After reading your post I will keep that appt. I was unsure what to do about it but it makes sense that eventually sweat results will be wanted. Believe me I will push for the Ambry test. I...
  11. M

    Need support, what can I expect?

    <b>okok</b>-I just realized there was a second page....Thanks so much for the info on the sweat test. After reading your post I will keep that appt. I was unsure what to do about it but it makes sense that eventually sweat results will be wanted. Believe me I will push for the Ambry test. I...
  12. M

    Need support, what can I expect?

    <b>okok</b>-I just realized there was a second page....Thanks so much for the info on the sweat test. After reading your post I will keep that appt. I was unsure what to do about it but it makes sense that eventually sweat results will be wanted. Believe me I will push for the Ambry test. I...
  13. M

    Need support, what can I expect?

    Everyone is so helpful and I'm taking it all in. I'll be sure to ask for the Full Gene Analysis. I'm not sure if I'll have a choice with Ambry or not. Does anyone know who Seattle Childrens testing is done by? I think lilismom is here in Seattle.... I realize that it will be another wait for...
  14. M

    Need support, what can I expect?

    Everyone is so helpful and I'm taking it all in. I'll be sure to ask for the Full Gene Analysis. I'm not sure if I'll have a choice with Ambry or not. Does anyone know who Seattle Childrens testing is done by? I think lilismom is here in Seattle.... I realize that it will be another wait for...
  15. M

    Need support, what can I expect?

    Everyone is so helpful and I'm taking it all in. I'll be sure to ask for the Full Gene Analysis. I'm not sure if I'll have a choice with Ambry or not. Does anyone know who Seattle Childrens testing is done by? I think lilismom is here in Seattle.... I realize that it will be another wait for...
  16. M

    Need support, what can I expect?

    Everyone is so helpful and I'm taking it all in. I'll be sure to ask for the Full Gene Analysis. I'm not sure if I'll have a choice with Ambry or not. Does anyone know who Seattle Childrens testing is done by? I think lilismom is here in Seattle.... I realize that it will be another wait for...
  17. M

    Need support, what can I expect?

    Everyone is so helpful and I'm taking it all in. I'll be sure to ask for the Full Gene Analysis. I'm not sure if I'll have a choice with Ambry or not. Does anyone know who Seattle Childrens testing is done by? I think lilismom is here in Seattle.... I realize that it will be another wait for...
  18. M

    Need support, what can I expect?

    Everyone is so helpful and I'm taking it all in. I'll be sure to ask for the Full Gene Analysis. I'm not sure if I'll have a choice with Ambry or not. Does anyone know who Seattle Childrens testing is done by? I think lilismom is here in Seattle.... I realize that it will be another wait for...
  19. M

    Need support, what can I expect?

    Thanks everyone for your support. I wrote down all the med codes and will have them in hand when I meet with the Ped on Thursday. I really want them to run the full panel using Ambry. It seems that I have more information than the people I've been dealing with on the phone (thanks to all of...
  20. M

    Need support, what can I expect?

    Thanks everyone for your support. I wrote down all the med codes and will have them in hand when I meet with the Ped on Thursday. I really want them to run the full panel using Ambry. It seems that I have more information than the people I've been dealing with on the phone (thanks to all of...
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