Cystic Fibrosis Forum (EXP)

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  1. M

    Need Advice

    <img src="i/expressions/rose.gif" border="0"> hang tough Oliver there is alot of help around
  2. M

    Need Advice

    <img src="i/expressions/face-icon-small-happy.gif" border="0"> Hello , It's not asking to much, But you 've go to remeber he's a teen. My parents constantly had to tell me to take my meds and do my treatements. It's a teen thing, Selective memory. I'm 40 now and doing ok. You hang in there and...
  3. M

    ports

    Hey Bottons. I just mentioned this at one of your other posts. It's a plastic port with a rubber cap that sits just under the skin. you poke a huber needle into the center and use it for IVs and blood draws. they are awesome<img src="i/expressions/face-icon-small-happy.gif" border="0">
  4. M

    Post tx assistance

    You need to get ahold of alot of drug companies and find out about thier drug assistance programs. this really works.
  5. M

    Adult not yet diagnosed.. could it be CF??

    <img src="i/expressions/face-icon-small-blush.gif" border="0"> I to have a son, I'm 40 w/CF and I know quite a few more male CFers with children
  6. M

    Flutter - Any Good??

    <img src="i/expressions/brokenheart.gif" border="0"> I found the best way is old fashioned CPT , 15 min per position and I was ready to go
  7. M

    Curiosity Questions.....

    <img src="i/expressions/rose.gif" border="0"> Every CFer that I've ever known has cultured pseudomonas, it's a way of life with us. Staph is also pretty common. I really sorry to say this but we have to get used to alot of strange things. Isolation, IBS, Diabetis. have them all...
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