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Here's the link to Holly's montage. I just created it. Atleast if I can't figure out how to post a pic on here you can see her through this!!!! You will have to copy & past because I can't get the link to come up. Sorry <a target=_blank class=ftalternatingbarlinklarge...

How do you ad a picture in you signature line? how do you put things in your blog like mel, jordysmom, bittyhorse, lindsey & others?

Hello everyone, Holly had a well child today to check on her after getting her flu shot. my pcp told me that she thinks that Holly has Asthma, prior to finding out about CF we were already dx with Asthma but when the genetics came back I thought that ruled out asthma once we got the positive for...

Wow-some people really make me mad!!!!!!!!!! I know I am probably over thinking this but this women killed me. I took my children to walmart with me. My 5 year old proceeded to have a couging "episode" while we were shopping. There was a women in ther with 2 children I would say under 10-she...

I am thinking about taking a flight to see my mom soon & I want to know about how you normally travel with the VEST. We do not have the one that is on wheels. I am concerned about putting it with my luggage because it has cost me so much & don't want it to be lost. Can I carry it on board...

Hi everyone, I have been checking Kaylees Caring Bridge site since I first heard her story on here. when I went & checked today I found this. Please keep her in your thoughts. this is off of her site the link is www.caringbridge.com/visit/kayleemaze <div class="FTQUOTE"><begin quote>Good...

You might remember my last post about my daughter having to wear a mask to school....well--we are going homebound now. Hopefully it will only be for a month or 2 while we get her back on track. She's getting her IV abx & if this doesn't work I might actually scream so loud that everyone on here...

ok, there are so many viruses spreading around my daughters school right now. She has been really sick this year. They just gave her some IV Antibiotics & she went back to school this week after being out for a while. The doctor suggester her wearing a mask to school for atleast a few weeks...

We are walking out the door right now to go to the clinic. Holly woke up this morning with a 102 fever & this is after she just finished being on clendomyacin & augmentin together. I am at a loss with what is going on with her. She has green stuff coming out of her nose & she is coughing it up...

Hi, my daughter is 4 years old & has recently had some hair falling out. It has gone from really thick & curly to thin & wavy. My question is this-can this happen as a side affect of meds? I read all of the labels & it didn't say anything about that. This is a list of her meds: Clendomyacin...

My daughter is taking 10ml of Cleocin 3x daily. This is causing vomiting & diahrea. I have had her drinking Dan active with every dose she takes. She has no digestive issues so therefore she takes no enzymes. Does anyone have any suggestions on how to stop the reaction to the antibiotic?

Hi, my daughter has had several sinus infections & has been on so many oral antibiotics. She has been taking Zithro on for 5 days, off for 5 & back on now for 2 months & it still has not cleared. They are stopping the Zithro & called me yesturday & told me that they are going to try clendamyacin...

My 5 year old has had so many sinus problems over the past year. <img src="i/expressions/face-icon-small-frown.gif" border="0"> She has had a sinus infection every month. She has taken every antibiotic that I could think of. Right now she is on Zithromax 5 days on, then 5 days off for 3 rounds...

I had posted previously about my problems with my insurance and my sweat test mix up. I have an update<img src="i/expressions/face-icon-small-smile.gif" border="0"> My insurance has agreed to pay 70%!!!! I recieved the Ambry submission test in the mail so now I just have to wait on my...

Well, just when I thought that my dr's office was the best thing that had come around since sliced bread....did I learn wrong. They contacted me and advised me that my daughters sweat test was not 133 as they had previously told me---it was 7 on her right arm and 8 on her left arm, as happy as I...

We finally got enough sweat for a productive sweat test. It was 133--my doc says we are going to do a redo on 12/13 and see what the results are because my insurance is still on the "we dont do genetic testing because there's cheaper ways" wagon. Although I feel like I just lost all control of...

Hi, I am new to this site but I have learned so much and find that so many of you have so much knowledge. First thing is that my dr has req my insurance to cover a genetic test for CF and my insurance has denied the request stating that they do not cover genetic testing NO EXCEPTIONS---this has...

Hi, I am new to this site but I have learned so much and find that so many of you have so much knowledge. First thing is that my dr has req my insurance to cover a genetic test for CF and my insurance has denied the request stating that they do not cover genetic testing NO EXCEPTIONS---this has...

I recently took my 4 year old to her pulminoligist for a routine exam and he expressed his concerns of her having CF. I have never heard of this and I am very uneducated about lung disorders and diseases and having a hard time figuring anything out online. My child has not digestive problems but...