Cystic Fibrosis Forum (EXP)

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  1. J

    ways to make treatments go by faster

    I as unusual as it sounds read books that I wouldn't have time too unless I'm sitting in one place, or I play video games that take my concentration I wind up doing my treatments for as long if not longer than I should (vest) my wife has to occasionally remind me that the neb ran out of meds 20...
  2. J

    Attending a Great Strides walk

    I was planning a great strides event in my city, I was working with the cf foundation till I was told that I cultured not only MRSA but also B-Cepecia and I decided to hand the reigns over to someone else it crushed what I had as a "vision" for my cf walk, If I couldn't take the chance to pass...
  3. J

    Attending a Great Strides walk

    I was planning a great strides event in my city, I was working with the cf foundation till I was told that I cultured not only MRSA but also B-Cepecia and I decided to hand the reigns over to someone else it crushed what I had as a "vision" for my cf walk, If I couldn't take the chance to pass...
  4. J

    Attending a Great Strides walk

    I was planning a great strides event in my city, I was working with the cf foundation till I was told that I cultured not only MRSA but also B-Cepecia and I decided to hand the reigns over to someone else it crushed what I had as a "vision" for my cf walk, If I couldn't take the chance to pass...
  5. J

    Anyone know of cf'ers that have had heart attacks or "silent heart attacks"

    The docs believe that I had a "silent heart attack" if fits with the pains, and the discomfort that I have been having...not a fun thing and if you can avoid it do...I don't understand why though I am in shape, I eat exceptionally well...no junk food, no chips (well maybe 5 bags a year...the...
  6. J

    Anyone know of cf'ers that have had heart attacks or "silent heart attacks"

    The docs believe that I had a "silent heart attack" if fits with the pains, and the discomfort that I have been having...not a fun thing and if you can avoid it do...I don't understand why though I am in shape, I eat exceptionally well...no junk food, no chips (well maybe 5 bags a year...the...
  7. J

    Anyone know of cf'ers that have had heart attacks or "silent heart attacks"

    The docs believe that I had a "silent heart attack" if fits with the pains, and the discomfort that I have been having...not a fun thing and if you can avoid it do...I don't understand why though I am in shape, I eat exceptionally well...no junk food, no chips (well maybe 5 bags a year...the...
  8. J

    got the port today!

    glad u got one...I'm on number 5...first one was placed in April 1984 so Things have gotten wayyy better...did u get a "power port"? I got one in may of '09 and it has worked soooooooo well!!!! good luck girl <img src="i/expressions/face-icon-small-smile.gif" border="0">
  9. J

    got the port today!

    glad u got one...I'm on number 5...first one was placed in April 1984 so Things have gotten wayyy better...did u get a "power port"? I got one in may of '09 and it has worked soooooooo well!!!! good luck girl <img src="i/expressions/face-icon-small-smile.gif" border="0">
  10. J

    got the port today!

    glad u got one...I'm on number 5...first one was placed in April 1984 so Things have gotten wayyy better...did u get a "power port"? I got one in may of '09 and it has worked soooooooo well!!!! good luck girl <img src="i/expressions/face-icon-small-smile.gif" border="0">
  11. J

    got the port today!

    glad u got one...I'm on number 5...first one was placed in April 1984 so Things have gotten wayyy better...did u get a "power port"? I got one in may of '09 and it has worked soooooooo well!!!! good luck girl <img src="i/expressions/face-icon-small-smile.gif" border="0">
  12. J

    got the port today!

    glad u got one...I'm on number 5...first one was placed in April 1984 so Things have gotten wayyy better...did u get a "power port"? I got one in may of '09 and it has worked soooooooo well!!!! good luck girl <img src="i/expressions/face-icon-small-smile.gif" border="0">
  13. J

    Really frusterated and looking for help, sigh.

    Believe me I understand that is how my winter has gone...started out st 80% in Oct/Nov...now 3 hospital stays and at least 4 infections that I know of and I'm at 53%...so It's not just u this winter has been hard I keep dropping, even on 3 iv antibiotics...actually 4, Zocyn, Vanco, and Levaquin...
  14. J

    Really frusterated and looking for help, sigh.

    Believe me I understand that is how my winter has gone...started out st 80% in Oct/Nov...now 3 hospital stays and at least 4 infections that I know of and I'm at 53%...so It's not just u this winter has been hard I keep dropping, even on 3 iv antibiotics...actually 4, Zocyn, Vanco, and Levaquin...
  15. J

    Really frusterated and looking for help, sigh.

    Believe me I understand that is how my winter has gone...started out st 80% in Oct/Nov...now 3 hospital stays and at least 4 infections that I know of and I'm at 53%...so It's not just u this winter has been hard I keep dropping, even on 3 iv antibiotics...actually 4, Zocyn, Vanco, and Levaquin...
  16. J

    Really frusterated and looking for help, sigh.

    Believe me I understand that is how my winter has gone...started out st 80% in Oct/Nov...now 3 hospital stays and at least 4 infections that I know of and I'm at 53%...so It's not just u this winter has been hard I keep dropping, even on 3 iv antibiotics...actually 4, Zocyn, Vanco, and Levaquin...
  17. J

    Really frusterated and looking for help, sigh.

    Believe me I understand that is how my winter has gone...started out st 80% in Oct/Nov...now 3 hospital stays and at least 4 infections that I know of and I'm at 53%...so It's not just u this winter has been hard I keep dropping, even on 3 iv antibiotics...actually 4, Zocyn, Vanco, and Levaquin...
  18. J

    Hey everyone who knows me or wants to know me

    u can message me on here or at www.myspace.com/jbenjamin152 or www.facebook.com/jbenjamin152 request my friendship and it's yours!!!
  19. J

    Hey everyone who knows me or wants to know me

    u can message me on here or at www.myspace.com/jbenjamin152 or www.facebook.com/jbenjamin152 request my friendship and it's yours!!!
  20. J

    Hey everyone who knows me or wants to know me

    u can message me on here or at www.myspace.com/jbenjamin152 or www.facebook.com/jbenjamin152 request my friendship and it's yours!!!
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