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We have a 2 year old that has been malabsorbing for over 4 months now. Almost everyday she has at least one greasy stool. We have tried several different enzymes (creon, ultrase, pancrecarb) and the result have been the same with all of them. We went to a GI dr last week and he was not a lot...

We are looking for a really good probiotic. We have been using a pretty good one from Metagenics (sp?) and then one called primal defense. However, I think we need something better. Just curious what others are using. There are so many things out there and with the cf system I know that it...

After each use we wash our neb (eflow) in hot soapy water and then boil in distilled water for 10 minutes. That has worked very well for the last year and a half. However, this week I completely got sidetracked and melted it to a big smelly mess. (It was almost comicaly the way I ran out...

Just curious. Our daughte has been on the same enzymes for 2 years. She bounces a lot between constipation and malabsorption along with difficulty gaining weight. I have often thought that we should at least try another enzymes, but our dr's say that they are all about the same. I find that...

We just recieved the respirtech for our 2 year old daughter this week. She seems to love it!! Praise the LORD!! What a joy to not have to worry about our hands and carpeltunnel in order to keep her lungs clear. (Just joking, we would do anything including cut OFF our hands if it would make her...

I know the obvious answer...because salt water being nebbed at your nose, and throat would be a bit uncomfortable. But, our daughter screams and kicks like nothing. She has only been on it for 6 days, but it has been awful!! It is all I can do to hold her down with the mask on her. Is it...

We had an appointment today. Our daughter has used pulmozyme for about the last two years. She is too young to test for pft's but she continues to retract a bit. The dr. wants her to stop the pulmozyme and start Hypertonic Saline. She doesn't really cough that much with her treatments, so his...

We had an appointment today. Our daughter has used pulmozyme for about the last two years. She is too young to test for pft's but she continues to retract a bit. The dr. wants her to stop the pulmozyme and start Hypertonic Saline. She doesn't really cough that much with her treatments, so his...

I just posted a few days ago about the do' s and don't with cf and several people mentioned clinic check-up's being the most dangerous place. We have an appointment in a couple of days. I usually try to have our 20 month old wear a mask, and make sure she purells her hands often. I have also...

I just posted a few days ago about the do' s and don't with cf and several people mentioned clinic check-up's being the most dangerous place. We have an appointment in a couple of days. I usually try to have our 20 month old wear a mask, and make sure she purells her hands often. I have also...

Hi there this has been such a great place to get ideas for me so hopefully some of you can help. Lately I have been feeling so frustrated that our 21 month old needs to stay out of so many activities. Constantly trying to control the environment making sure there are no kids sick or running...

I have been reading lately about so many things that are dangerous for cf'ers and it sometimes makes me crazy to try to keep my child safe. I was just reading about swimming the other day and it never occured to me that this also could be a dangerous place for our child. I know that bacteria...

I have been reading lately about so many things that are dangerous for cf'ers and it sometimes makes me crazy to try to keep my child safe. I was just reading about swimming the other day and it never occured to me that this also could be a dangerous place for our child. I know that bacteria...

I have been reading lately about so many things that are dangerous for cf'ers and it sometimes makes me crazy to try to keep my child safe. I was just reading about swimming the other day and it never occured to me that this also could be a dangerous place for our child. I know that bacteria...

I have read on this forum several times about the differences in treatments and medicines for different people. I see some that only do neb's when they are sick, and enzymes and then others like my daughter that does so much (I think every medicine out there related to CF it seems at times). I...

I have read on this forum several times about the differences in treatments and medicines for different people. I see some that only do neb's when they are sick, and enzymes and then others like my daughter that does so much (I think every medicine out there related to CF it seems at times). I...

I have read on this forum several times about the differences in treatments and medicines for different people. I see some that only do neb's when they are sick, and enzymes and then others like my daughter that does so much (I think every medicine out there related to CF it seems at times). I...

Just curious if anyone has used turmeric to increase their appetite? I have been looking for a way to increase my daughters appetite. She is currently on periactin, which has helped a little, however we are once again struggling with her not having much of an appetite. I have looked into...

Our daughter Rachel is 19 months old and currently she is doing the eflow (with albuterol 2x pulmizyme once daily) and manual cpt 2x daily while she is well. However, the compliance issue has become a definate battle as of late. I know she is just being a normal kido, but it has been really...

Our daughter Rachel is 18 months old. She has tested positive for allergies to: wheat, barley, corn, oats, milk, eggs, beef, and pork (slightly -we avoid eating pork due to enzymes having a pork base and trying to have as little exposure as possible). She is doing okay on weight. We have...