Cystic Fibrosis Forum (EXP)

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    At what point do dr's start talking tx?

    I'm sure there are many variables, but are there any guidelines in layman's terms or a website? What do they look at to determin? O2 sats, amount or type of infections, number of hospitalizations, fev1 or other pft numbers....???
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    Stop Lame Catalogs

    Sponsored by The Ecology Center, which wants to cut back on the 19 billion paper catalogs discarded each year. Put your name on their list, select the catalogs you don't want and they take care of the rest. CatalogChoice.org
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    Dear Dogs and Cats

    To be posted VERY LOW on the refrigerator door - nose height. Dear Dogs and Cats, The dishes with the paw print are yours and contain your food. The other dishes are mine and contain my food. Please note, placing a paw print in the middle of my plate and food does not stake a claim for it...
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    Icons

    ...for those we've lost... or wings...?
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    Ultram

    Does anyone know if Ultram is ever Rx'ed for long term/daily use?
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    Diabetics, and Fats in the diet

    Taking off from another thread. Lindsey, this is something I have been wondering about and keep forgetting to ask the dr. And I thought you in particular might be able to shed some light for us diabetics. I read what you said about Fats causing a delayed spike, which I know about. But how...
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    Caffeine/Tylenol Combo could cause liver damage

    I don't post this in attempt to be an alarmist, but I think it's good information to consider... <a target=_blank class=ftalternatingbarlinklarge href="http://www.healthday.com/Article.asp?AID=608574 ">http://www.healthday.com/Article.asp?AID=608574 </a>Rat study suggests liver danger, but...
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    Marinol

    I take Marinol on a casual basis (I had to pay $600 out of pocket and so I'm trying to make it last).. Anyway, I've noticed that along with that "dopey" feeling, it seems to make my chest feel "heavy" - and thereby feel SOB to some extent. All this just discourages me from using it (and I...
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    Anyone in CA w/SDI that is working w/ the Ticket to Work Program?

    CA (maybe other states too?) has a Ticket to Work program. Is anyone taking advantage of this? And, can you tell me more about it? Was it a pain to find work? How do you regulate your earnings? Thanks for any info
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    Loking for old "CF" poem

    I'm looking for an old "poem" I stumbled upon about 5 years ago. It was from the perspective of a CF person - telling her friends what she COULD do. I remember something like this: "I may not be able to go on that bike ride with you and your friends, but invite me to the picnic in the park...
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    RA (Rheumatoid Arthritis)

    Any of you dx with RA, yet not have classic swelling that is typically associated with it?
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    which a/b's cover which bugs?

    I'm having a Duh moment... Where can I find a page online that tells what a/b's are for which bugs?
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    Letter writing to raise money for CF

    I wanted to start writing an annual letter to mail to friends and family, in order to raise money for CF. However, I'm not the best composer. I was wondering if any of you have done this yourself, and if you wouldn't mind sharing your letters. Since it would be my first, it would be...
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    Coughing and Low grade fevers

    Sometimes when I'm coughing endlessly due to my b/t, I can feel my temp go up. Is this common?
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    We gather as a CF community

    <a target=_blank class=ftalternatingbarlinklarge href="http://en.wikipedia.org/wiki/Community">http://en.wikipedia.org/wiki/Community</a>
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    Lessons from Geese

    As each bird flaps it's wings, it creates an "uplift" for the bird following. By flying in a V formation, the whole flock adds 71% greater flying range than if the bird flew alone. <b>Lesson: </b> People who share a common direction and sense of community can get where they are going quicker...
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    Sputum Culture question

    I asked the lab at the hospital, they said "don't refrigerate it but it can be overnight" Do you all agree with this or do you know differently? She was kind of aloof, so I don't completely trust her answer. I don't always have a productive cough, so I want to be prepared for my clinic appt...
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    To Moderator - Website Virus???

    Since yesterday, my computer has been doing weird things. Today I logged in and later LOGGED OFF. A while after logging off, I had a pop up with regards to "meeting singles" - you know, the adult type website. When I looked at the address line, it had your address within it!!! Ut oh! Now I...
  20. C

    Genesis Reunion Tour !!!

    I don't know about you, but John and I are extatic! <a target=_blank class=ftalternatingbarlinklarge href="http://www.ticketmaster.com/artist/723546 ">http://www.ticketmaster.com/artist/723546 </a> Does anyone know if PG will be with them? I haven't heard.
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