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CURE? no not really. I feel it's more like trading one disease for another. Not in a negative way! I would do it again, and again, and again! But your new lungs come with a whole NEW set of problems/maintainence. Your regimen will change, it gets easier. . .but it can be unpredictable and being...

My friend Nina got the call late last night and now she is in surgery getting new breathers! I am soooo happy for her and just want to shout it out to all the CF world how amazing getting a lung transplant can be!! Please pray for her and her tough road of recovery ahead of her <img...

My friend Nina got the call late last night and now she is in surgery getting new breathers! I am soooo happy for her and just want to shout it out to all the CF world how amazing getting a lung transplant can be!! Please pray for her and her tough road of recovery ahead of her <img...

My friend Nina got the call late last night and now she is in surgery getting new breathers! I am soooo happy for her and just want to shout it out to all the CF world how amazing getting a lung transplant can be!! Please pray for her and her tough road of recovery ahead of her <img...

I had cepacia for over 14 years, it is hard as a 'cepacia' patient to feel like we are some kind of disease. That might be where some her feelings stems from. I however, never wanted to take a risk of giving others cepacia. Mostly I wore masks around all my CF friends if I could. I was told 5...

I had cepacia for over 14 years, it is hard as a 'cepacia' patient to feel like we are some kind of disease. That might be where some her feelings stems from. I however, never wanted to take a risk of giving others cepacia. Mostly I wore masks around all my CF friends if I could. I was told 5...

I had cepacia for over 14 years, it is hard as a 'cepacia' patient to feel like we are some kind of disease. That might be where some her feelings stems from. I however, never wanted to take a risk of giving others cepacia. Mostly I wore masks around all my CF friends if I could. I was told 5...

I know you have had a lot of responses, but just want to add a little. . .. I had 50% FEV1 for YEARS!!!! No joke. I was in the 50's all through my late teen/early 20's. I started taking 7% hypertonic saline and they went back up to like 62% but like I said I sat around 50% for like 5 years and...

I know you have had a lot of responses, but just want to add a little. . .. I had 50% FEV1 for YEARS!!!! No joke. I was in the 50's all through my late teen/early 20's. I started taking 7% hypertonic saline and they went back up to like 62% but like I said I sat around 50% for like 5 years and...

I know you have had a lot of responses, but just want to add a little. . .. <br /> <br />I had 50% FEV1 for YEARS!!!! No joke. I was in the 50's all through my late teen/early 20's. I started taking 7% hypertonic saline and they went back up to like 62% but like I said I sat around 50% for like...

You'll love Pitt! The CF/Transplant team is amazing~ Dr. Pilewski is seriously one of the most sincere people I have ever met!! If you happen to get assigned to Paul he's great! He's in my top 5 favorite people list <img src="i/expressions/face-icon-small-smile.gif" border="0"> Good Luck!! I...

You'll love Pitt! The CF/Transplant team is amazing~ Dr. Pilewski is seriously one of the most sincere people I have ever met!! If you happen to get assigned to Paul he's great! He's in my top 5 favorite people list <img src="i/expressions/face-icon-small-smile.gif" border="0"> Good Luck!! I...

You'll love Pitt! The CF/Transplant team is amazing~ Dr. Pilewski is seriously one of the most sincere people I have ever met!! If you happen to get assigned to Paul he's great! He's in my top 5 favorite people list <img src="i/expressions/face-icon-small-smile.gif" border="0"> Good Luck!! I...

Piper is right. University of Pittsburgh will consider Cepacia. In fact I personally know 2 other Cepacia patients who also received transplants there. One just a few months before me and the other exactly one year after mine. I have also heard that Cleveland might consider Cepacia. The surgeon...

Piper is right. University of Pittsburgh will consider Cepacia. In fact I personally know 2 other Cepacia patients who also received transplants there. One just a few months before me and the other exactly one year after mine. I have also heard that Cleveland might consider Cepacia. The surgeon...

Piper is right. University of Pittsburgh will consider Cepacia. In fact I personally know 2 other Cepacia patients who also received transplants there. One just a few months before me and the other exactly one year after mine. I have also heard that Cleveland might consider Cepacia. The surgeon...

I got cepacia when I was about 13. It really didn't effect my health too much. They really didn't do treatments or antibiotics too much differently. 2.5 years ago when I was 28 I recieved a double lung transplant. I think they understand B.Cepacia more now than they did when I first cultured it...

I got cepacia when I was about 13. It really didn't effect my health too much. They really didn't do treatments or antibiotics too much differently. 2.5 years ago when I was 28 I recieved a double lung transplant. I think they understand B.Cepacia more now than they did when I first cultured it...

I got cepacia when I was about 13. It really didn't effect my health too much. They really didn't do treatments or antibiotics too much differently. 2.5 years ago when I was 28 I recieved a double lung transplant. I think they understand B.Cepacia more now than they did when I first cultured it...

I am coming up on my 2 yr post double lung transplant anniversary. Would you please help me celebrate by visiting my blog and please leave a comment on one of my current posts. It would really make my day! Thank You! <a target=_blank class=ftalternatingbarlinklarge...