Cystic Fibrosis Forum (EXP)

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  1. dbtoo2

    CF sweetness...and then scariness!

    http://www.duckbrand.com/products/duck-tape/color-duck-tape/937 No, it comes in blue now... and many other cute colors and patterns...
  2. dbtoo2

    Keep the faith

    i can remember when i was 15, thinking that 30 - double my age at that time - was REALLY old! I can remember at 30 getting my first tattoo. I got remarried at 33 and it's now going on a quarter century of wedded bliss. As a kid i recall thinking, how old would I be if I made it to the...
  3. dbtoo2

    Seven Dwarfs of CF. What one are you today!

    definately Salty....
  4. dbtoo2

    Kalydeco

    I finally agreed to go on it. As long as I'm fairly consistent with the 12 hour window for taking the med, I have a significant reduction in mucus! It's really been amazing. If I miss the 12 hours (forget a dose or whatever), then the mucus almost instantaneously increases. Docs say, they...
  5. dbtoo2

    Moving to Florida from the Rockies, Need Advice.

    There are lots of townhouse and apartments with 1 car garages. They can be about the same price as renting a house! If you have to work, then you need to consider the road systems for where you have to travel to/from. Where I live, at rush hour, it takes about 20 minutes to go 2 miles to get...
  6. dbtoo2

    Moving to Florida from the Rockies, Need Advice.

    Hyde Park is expensive! I go over to the CF Clinic in Orlando. Dr. Layish. He is excelent. I tried to get into the Adult CF clinic in TGH, but they only took you by recommendation and after reviewing what my docs at USF said, I was labled by them as 'morbidly obese' and 'non-compliant'...
  7. dbtoo2

    how do I know how many enzymes to take?

    http://www.drugs.com/pro/creon.html http://www.drugs.com/dosage/zenpep.html
  8. dbtoo2

    Today is my Birthday ..

    Happy Birthday! I'll be 57 in a couple weeks... I keep trying to catch up...
  9. dbtoo2

    How many adult CFers work from home?

    I've worked from home for the last several years. I am a database administrator. Don't fall for those ' work from home, make a 1000 bucks a week' opportunities. Those suck you in, pretty much make you 'pay a fee' to learn what to do, and most of the time it's 'take out an add to tell...
  10. dbtoo2

    working with Cf

    In my opinion, this is most likely not accurate. It's more likely to be a restriction by an employer for them to avoid law suits. There are lots of nurses out there that have CF, and a couple of Docs have been mentioned too. Whether they work with CF patients or not, as a health care provider...
  11. dbtoo2

    Portable O2 Question

    I was first told the same thing. The way around may be to explain that you must frequently travel for longer than 4 hours and that your stays usually take 3-5 days (typical o2 tank will only last 2-4 hours from what I was told.) That due to the traveling, the portable o2 concentrator is a...
  12. dbtoo2

    Compounding Pharmacies

    Anybody use a compounding pharmacy to obtain medication? http://www.foxnews.com/health/2012/10/05/meningitis-outbreak-sheds-light-on-compounding-drugs-and-lack-regulation (PRAYING)
  13. dbtoo2

    34 y/o woman heading back to school....scholarship?

    http://www.cff.org/LivingWithCF/Scholarships/
  14. dbtoo2

    share your information about pancreatic enzymes

    here's what cff says http://www.cff.org/UploadedFiles/treatments/CFCareGuidelines/Nutrition/Consensus-Statement-Pancreatic-Enzyme-Replacement-March-1995.pdf here's what drugs.com says... http://www.drugs.com/pro/creon.html (PILLS)
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