Cystic Fibrosis Forum (EXP)

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    Pseudomonas

    it is going to be ok. There are many treatment options now to help manage pseudomonas. This is not uncommon, in some cases, this happens right at diagnosis. Not an indicator of respiratory issues to come. You now know what he has and can care for him better than you could otherwise. He will now...
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    Kalydeco/lumacaftor for DDF508 results are in.

    i am not sure how to fully interpret the data. The most important elements as I see them are difficult to measure. Will efficacy of other treatments increase as a result of the vertex drugs mechanism? Will patients live longer healthier lives as a result of reduce exacserbations? Will the...
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    TOBI Podhaler

    So far, we really like it. The podhaler seems to be much more effective than traditional neb, or eflow. Our experience so far has been positive.
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    new, pls help

    VA probably not the best place for cf care, but may be able to help access drugs that he will need. Might not hurt to keep the option open. If you go to th er with cf and tell them you are in pain and think you have an obstruction, i would hope they could help. Thoughts and prayers
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    new, pls help

    VA probably not the best place for cf care, but may be able to help access drugs that he will need. Might not hurt to keep the option open. If you go to th er with cf and tell them you are in pain and think you have an obstruction, i would hope they could help. Thoughts and prayers
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    new, pls help

    If he was chaptered out of the gaurd on medical, VA could maybe help. The sweat test is enough for diagnosis, next would be genetic testing. It sounds like you urgently need an accredited cf center. The blockage likely needs a gi specialists attention immediately.
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    new, pls help

    If he was chaptered out of the gaurd on medical, VA could maybe help. The sweat test is enough for diagnosis, next would be genetic testing. It sounds like you urgently need an accredited cf center. The blockage likely needs a gi specialists attention immediately.
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    Home salt rooms

    Anyone have a home salt room/ salt sauna? Need some ideas on salt generator. Any info would be appreciated.
  9. B

    Home salt rooms

    Anyone have a home salt room/ salt sauna? Need some ideas on salt generator. Any info would be appreciated.
  10. B

    VX 809/770 Phase 2 interim results - 5-10% improvement in lung function

    It is exciting to see progress. Looking forward to more information as the trial moves forward.
  11. B

    VX 809/770 Phase 2 interim results - 5-10% improvement in lung function

    It is exciting to see progress. Looking forward to more information as the trial moves forward.
  12. B

    Home salt rooms

    Salt water aquariums are nice. We did some research on salt rocks/ lamps etc. and most indicated they were more decorative than anything else.
  13. B

    Home salt rooms

    Salt water aquariums are nice. We did some research on salt rocks/ lamps etc. and most indicated they were more decorative than anything else.
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    The Hulkster

    There might be some room for moderation <img src="i/expressions/face-icon-small-smile.gif" border="0">. Around the holidays might add eggnog 300 calories for 1/2 cup <img src="i/expressions/face-icon-small-smile.gif" border="0">.
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    The Hulkster

    There might be some room for moderation <img src="i/expressions/face-icon-small-smile.gif" border="0">. Around the holidays might add eggnog 300 calories for 1/2 cup <img src="i/expressions/face-icon-small-smile.gif" border="0">.
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    Home salt rooms

    Got some info from curentec on their salt generator 1500euro and the salt has to come from them, it is already ground to the ~5um size. One of the concerns is the salt supply in the appropriate grind. Sounds like only one source. I am still investigating, but look forward to sharing what we find.
  17. B

    Home salt rooms

    Got some info from curentec on their salt generator 1500euro and the salt has to come from them, it is already ground to the ~5um size. One of the concerns is the salt supply in the appropriate grind. Sounds like only one source. I am still investigating, but look forward to sharing what we find.
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    The Hulkster

    The hulkster, named for its greenish hue. 1bananna 2 strawberries 1 tsp ground barley 1 tsp sunwarrior ormus supergreen Oh yeah, and 2 scoops of vanilla icecream And 2 peppermint chocolate cookies for the little ones. I'm not sure what the exact nutritional value is, but its green and yummy...
  19. B

    The Hulkster

    The hulkster, named for its greenish hue. 1bananna 2 strawberries 1 tsp ground barley 1 tsp sunwarrior ormus supergreen Oh yeah, and 2 scoops of vanilla icecream And 2 peppermint chocolate cookies for the little ones. I'm not sure what the exact nutritional value is, but its green and yummy...
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    Home salt rooms

    Sauna is in. Now the challenge is adding the salt aerosol. Getting a response from many of the suppliers has been a chore. Sent curentec an email. We will see what we come up with.
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