Cystic Fibrosis Forum (EXP)

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  1. B

    Home salt rooms

    Sauna is in. Now the challenge is adding the salt aerosol. Getting a response from many of the suppliers has been a chore. Sent curentec an email. We will see what we come up with.
  2. B

    Home salt rooms

    The plan for now is to use a sauna, carbon fiber dry heat as the room and possibly add a small salt generator..sound crazy?
  3. B

    Home salt rooms

    The plan for now is to use a sauna, carbon fiber dry heat as the room and possibly add a small salt generator..sound crazy?
  4. B

    Home salt rooms

    Does anyone have a home salt room? We are just starting to gather some information on this to see if it is something we may want to do. Any info on the helogenerators, controls, source for consumables would be appreciated.
  5. B

    Home salt rooms

    Does anyone have a home salt room? We are just starting to gather some information on this to see if it is something we may want to do. Any info on the helogenerators, controls, source for consumables would be appreciated.
  6. B

    vx-661

    I saw this on the fda site relating to 661 http://clinicaltrials.gov/ct2/show/NCT01531673 Hope to hear some details. I hope they participate at our clinic.
  7. B

    vx-661

    I saw this on the fda site relating to 661 http://clinicaltrials.gov/ct2/show/NCT01531673 Hope to hear some details. I hope they participate at our clinic.
  8. B

    inhaled levaquin study

    What are they treating with it? Haven't heard about this. Is it Levofloxacin? Thanks for sharing and participating.
  9. B

    inhaled levaquin study

    What are they treating with it? Haven't heard about this. Is it Levofloxacin? Thanks for sharing and participating.
  10. B

    inhaled levaquin study

    What are they treating with it? Haven't heard about this. Is it Levofloxacin? Thanks for sharing and participating.
  11. B

    Mobilaire compressor question another thing, not making anymore???

    if you get a hose that pops off you can use hose spring clamps from an auto parts store. Pari hose seems to stay on most of the time. Havent heard about them discontinuing the model. As for filters, I thought they were washable. I dissassemble and clean the compressor every so often.
  12. B

    Mobilaire compressor question another thing, not making anymore???

    if you get a hose that pops off you can use hose spring clamps from an auto parts store. Pari hose seems to stay on most of the time. Havent heard about them discontinuing the model. As for filters, I thought they were washable. I dissassemble and clean the compressor every so often.
  13. B

    Mobilaire compressor question another thing, not making anymore???

    if you get a hose that pops off you can use hose spring clamps from an auto parts store. <br />Pari hose seems to stay on most of the time. <br />Havent heard about them discontinuing the model. As for filters, I thought they were washable. I dissassemble and clean the compressor every so often.
  14. B

    Eflow

    <div>duplicate</div>
  15. B

    Eflow

    duplicate
  16. B

    Eflow

    duplicate
  17. B

    Eflow

    basically don't ever put the head in tap water. the reason you used distilled is because the minerals in regular tap water, or drinking water are large enough to clog the head.  you boil the distilled water to kill anything that may be living in it. I'm not sure if it is necessary since you...
  18. B

    Eflow

    basically don't ever put the head in tap water. the reason you used distilled is because the minerals in regular tap water, or drinking water are large enough to clog the head. you boil the distilled water to kill anything that may be living in it. I'm not sure if it is necessary since you store...
  19. B

    Eflow

    basically don't ever put the head in tap water. the reason you used distilled is because the minerals in regular tap water, or drinking water are large enough to clog the head. you boil the distilled water to kill anything that may be living in it. I'm not sure if it is necessary since you store...
  20. B

    CF GREAT STRIDES HELP

    We personally appreciate everyones efforts in their Great Strides campaigns. Great job to the established teams as well as the new ones!
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