Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Search results

  1. B

    Saveferris 2009

    any new updates?
  2. B

    Saveferris 2009

    any new updates?
  3. B

    Top 10 great things about having CF!

    Yeah! You can eat whatever you want without having to worry about getting fat!You can eat as much salt as you want because you know your body craves for it!And you know almost as much about drugs as your pharmacist does!
  4. B

    Top 10 great things about having CF!

    Yeah! You can eat whatever you want without having to worry about getting fat!You can eat as much salt as you want because you know your body craves for it!And you know almost as much about drugs as your pharmacist does!
  5. B

    what to use to soothe irritated airways

    Well it happens with me as well. I cough to death after every treatment. I had other side effects too so my doctor switched me to Bramitob (same drug, different company, easier to tolerate, no hoarse voice). I kept having problem with coughing so we also switched to Aerolin insted of Symbicort...
  6. B

    what to use to soothe irritated airways

    Well it happens with me as well. I cough to death after every treatment. I had other side effects too so my doctor switched me to Bramitob (same drug, different company, easier to tolerate, no hoarse voice). I kept having problem with coughing so we also switched to Aerolin insted of Symbicort...
  7. B

    Anyone on Kayldeco and not G551D? Is it helping?

    I heard about people in this site who started it and but they havent reported back yet!
  8. B

    Anyone on Kayldeco and not G551D? Is it helping?

    I heard about people in this site who started it and but they havent reported back yet!
  9. B

    Allergies kicking off infection

    I think i have too. I ve had trouble breathing because my nose was all stuffed up. I tried Aerius and its kinda working. But i think i cough more and more those days and i seem to start loosing my appetite (very bad sign for me). My doctor put me on Cipro today but im having second thoughts...
  10. B

    Allergies kicking off infection

    I think i have too. I ve had trouble breathing because my nose was all stuffed up. I tried Aerius and its kinda working. But i think i cough more and more those days and i seem to start loosing my appetite (very bad sign for me). My doctor put me on Cipro today but im having second thoughts...
  11. B

    IV and work

    Well im usually on Ivs once a year. Usually i do one every 8 hours. The infusion takes some time but if my port works properly it doesnt take long. The first few days i try to rest because i get a little sick and i feel extra tired cause i have to do all kinds of medical tests in the hospital...
  12. B

    IV and work

    Well im usually on Ivs once a year. Usually i do one every 8 hours. The infusion takes some time but if my port works properly it doesnt take long. The first few days i try to rest because i get a little sick and i feel extra tired cause i have to do all kinds of medical tests in the hospital...
  13. B

    To those on kalydeco---Lauren (your thoughts, please)

    Start a new thread! You know us! We are eager to find out all the bloody details! Take care!
  14. B

    To those on kalydeco---Lauren (your thoughts, please)

    Start a new thread! You know us! We are eager to find out all the bloody details! Take care!
  15. B

    Anybody have any information about Vertex 661?

    I would definitely do it! I live in Europe so I have no chance in participating in any studies! My opinion is go for it!
  16. B

    Anybody have any information about Vertex 661?

    I would definitely do it! I live in Europe so I have no chance in participating in any studies! My opinion is go for it!
  17. B

    Kalydeco cost

    How do you cope with the cost of Kalydeco? Are insurance companies willing t cover it or at least a part?
  18. B

    Kalydeco cost

    How do you cope with the cost of Kalydeco? Are insurance companies willing t cover it or at least a part?
Top