Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Search results

  1. B

    Enzymes and Malabsorption?

    Hunger sounds like a good feeling to me. When im sick or tend to get sick i lose my apettite. And it sucks not to like anything to eat. Check your blood sugars but hunger is not something to worry about in my opinion.
  2. B

    Enzymes and Malabsorption?

    Hunger sounds like a good feeling to me. When im sick or tend to get sick i lose my apettite. And it sucks not to like anything to eat. Check your blood sugars but hunger is not something to worry about in my opinion.
  3. B

    tobi pod inhaler

    I ve been waiting so long for this and im so dissapointed! I have to agree though that all inhaled antibiotics make me cough to death. I feel that their side effects are more than their benefits.
  4. B

    DF508ers who participated in VX-770 trials

    This is so interesting! I always believed that, even though im double df508 like you, vx 770 could actually help me. Even a little. But every person with CF knows that this "little" difference in tests can make huge difference in ones life anyway!
  5. B

    DF508ers who participated in VX-770 trials

    This is so interesting! I always believed that, even though im double df508 like you, vx 770 could actually help me. Even a little. But every person with CF knows that this "little" difference in tests can make huge difference in ones life anyway!
  6. B

    Weight Gain

    Having no appetite sucks! I experience it when im off IVs for a long time. I just dont want to eat. I can stay without food for days and not feel hungry. And this situation scares me a lot. I have also notice that when i push myself to eat without wanting to, i dont seem to digest anything! No...
  7. B

    Weight Gain

    Having no appetite sucks! I experience it when im off IVs for a long time. I just dont want to eat. I can stay without food for days and not feel hungry. And this situation scares me a lot. I have also notice that when i push myself to eat without wanting to, i dont seem to digest anything! No...
  8. B

    AquaDEK

    I do Aquadeks for around 3 years now! I think they are great if you dont mind the smell! I finally got used to it! Apart from that it is really convinient that my doctor allows me to get two of them at once so i dont have to mind taking them twice a day! My mom says i have very strong nails and...
  9. B

    AquaDEK

    I do Aquadeks for around 3 years now! I think they are great if you dont mind the smell! I finally got used to it! Apart from that it is really convinient that my doctor allows me to get two of them at once so i dont have to mind taking them twice a day! My mom says i have very strong nails and...
  10. B

    Sleep Issues

    Icefisherman your not the only one there! Many mornings i wake up and i cough so much that i end up throwing! But after that i feel ok! It feels like both my lungs and stomach are free from all the bad stuff. I feel instantly better! But anyhow this is not a nice way to start your day!
  11. B

    Sleep Issues

    Icefisherman your not the only one there! Many mornings i wake up and i cough so much that i end up throwing! But after that i feel ok! It feels like both my lungs and stomach are free from all the bad stuff. I feel instantly better! But anyhow this is not a nice way to start your day!
  12. B

    New drug--Kalydeco--Approved

    Can someone please call Vertex and enlighten us! Some of us (me) are so impatient! Thanks!
  13. B

    New drug--Kalydeco--Approved

    Can someone please call Vertex and enlighten us! Some of us (me) are so impatient! Thanks!
  14. B

    Sleep Issues

    I think sleep is crucial too! I have to sleep 9 hours to feel perfectly fine! Anything less is not enough for me! I always needed a lot of sleep i dont think it is a CF matter. I have to admit though that i am having night mares as well. And very usually they are about hospitals, about IVs about...
  15. B

    Sleep Issues

    I think sleep is crucial too! I have to sleep 9 hours to feel perfectly fine! Anything less is not enough for me! I always needed a lot of sleep i dont think it is a CF matter. I have to admit though that i am having night mares as well. And very usually they are about hospitals, about IVs about...
  16. B

    How do you respond to IV treatment

    Usually when i start im already a mess, so the first days a cough a lot. I feel im coming down with a flu, my doctor says its an outburst but i think i am coming down with something (maybe due to the emotional stress of going to the hospital etc) Usually after the first week i feel mush better...
  17. B

    How do you respond to IV treatment

    Usually when i start im already a mess, so the first days a cough a lot. I feel im coming down with a flu, my doctor says its an outburst but i think i am coming down with something (maybe due to the emotional stress of going to the hospital etc) Usually after the first week i feel mush better...
  18. B

    770 approved!!!!!!!!!

    Awww whats taking them so long? We need a drug for df508 NOW! im so sorry but im so anxious about those other drugs (809 661)!
  19. B

    770 approved!!!!!!!!!

    Awww whats taking them so long? We need a drug for df508 NOW! im so sorry but im so anxious about those other drugs (809 661)!
  20. B

    tobi pod inhaler

    Im so sorry to hear this! I have many side effects from Tobi not to mention the time waste in sterilizing everything! I had my expectations high upon the podhaler!
Top