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compliance My thoughts and prayers are with you at this most difficult time! I know how you feel! (I lost my son 6 mos. ago) Do try to appreciate what you had together! He was lucky to have someone who loved him so much! Take care. Kathy

I lost my son 6 mos ago. It is the hardest thing I have ever went through!! You really can't imagine the pain until you go through it. I thought about it his whole life but when it happened I was devastated. He was 21 years old and very sick for a while. At first you are in such shock you don't...

I just wanted to say that my son had a consult with Dr. Warwick and we were very impressed. My brother read about him in a magazine article and was adament about getting my son an appt. with him. It was about a 6 hr. drive but it was worth it. Lets just say my son and his adult CF doctor didn't...

angelas: I just saw your post and it hit home! I just lost my 21 year old son in Jan. I don't know how things are going right now but you can always talk to me. We also had Hospice at home per Josh's wishes. I am very glad we did it thay way!! It is hard to find any comfort at this time. But...

Tomorrow is my son Josh's 22 Birthday. I miss him terribly! It has been a hard week working up to this day. I am having a birthday party with my family and few freinds. We are going to the cemetery for a balloon launch and then a cookout at my brother's house. I am looking forward to it and...

My son was behind everyone else his age when it came to that stuff. He was always embarassed by it. His doctor put him on Testosterone shots then the patches. He was also short and that bothered him the most I think. He finally got taller than me but never got very tall. I think he was 5'7.

momoftraci: Thanks for asking how I am. Not the greatest, but hanging in there. Saturday July 1st is Josh 22 birthday. So of course it's hard this week. I think of you often. I know it's been a year for you, it has only been 5 months for me. It feels like it just isn't getting any better. But I...

I know exactly how you feel! That is why it is good you have this site you can come to. Life with CF is like a rollercoaster, but that means there will be up times again. Remember that and try to be positive. I know there were times I felt so helpless too and felt like I couldn't stand it...

Becky: I am glad you had a good Dr. visit and feel more positive. That is the key to keep a positive attitude so you can do the best for your baby. I am the one who posted earlier and said my son was at Milwaukee Childrens Hospital for 19 years and then went on to Froedert Hospital. I am curious...

To Danielle's mother: My thoughts are with you! I just lost my 21 year old son a month ago. I know it is very hard!!!! Hang in there! momofjosh

To Danielle's mother: My thoughts are with you! I just lost my 21 year old son a month ago. I know it is very hard!!!! Hang in there! momofjosh

My son had a port and it never presented a problem at the airports. Have a good trip! momofjosh

My son had a port and it never presented a problem at the airports. Have a good trip! momofjosh

I just lost my son one month ago. He was afraid of suffocating. But that is not how it was at all. Like others have said the last few weeks he was quite sick. But the last 6 days he was on hospice at home with lots of family around him. He was also in and out of conciousness. We promised him we...

I just lost my son one month ago. He was afraid of suffocating. But that is not how it was at all. Like others have said the last few weeks he was quite sick. But the last 6 days he was on hospice at home with lots of family around him. He was also in and out of conciousness. We promised him we...

Allie: I feel for you! I just lost my 21 year old son 4 weeks ago. I thought I was prepared but found out you can never be prepared. I am so sorry for your loss!!! Ry sounds like a wonderful man and never doubt that you were a good wife! I know how hard it is to deal with CF for the person...

Allie: I feel for you! I just lost my 21 year old son 4 weeks ago. I thought I was prepared but found out you can never be prepared. I am so sorry for your loss!!! Ry sounds like a wonderful man and never doubt that you were a good wife! I know how hard it is to deal with CF for the person...

I just want to say that my son got B-Cepacia and MRSA and the doctors said he most likely got it while in the hospital or one of his clinic visits. After that his health declined rapidly. I know hospital stays are boring and lonely. My son was in the hospital A LOT but I wish things would have...

I just want to say that my son got B-Cepacia and MRSA and the doctors said he most likely got it while in the hospital or one of his clinic visits. After that his health declined rapidly. I know hospital stays are boring and lonely. My son was in the hospital A LOT but I wish things would have...

Kay: My son had 3 ports in his life and he said they were wonderful! A lot more comfortable than pic lines. Plus it is easier to move around because there is nothing in your arms. I recommend it. momofjosh