Cystic Fibrosis Forum (EXP)

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  1. T

    When To Get Evaluated, Answer: When your Doctor suggests it's time!!!!

    just wanted to say that i totally agree. i had the same thought process. waiting too long is dangerous, and prolongs suffering. it's just not worth it
  2. T

    Got new lungs!!

    congratulations!!! i hope you are doing better every day!
  3. T

    Got new lungs!!

    congratulations!!! i hope you are doing better every day!
  4. T

    Got new lungs!!

    congratulations!!! i hope you are doing better every day!
  5. T

    Moonface side effects question!!!

    i have "moonface" right now post TX. (i hate the word "moonface" who made that up anyways....?) i'm at 20mgs a day right now, and am slowly tapering down.... honestly... i hate it. i asked about it and the transplant nurse says it goes away over time. eventually i will be on 10mgs a day...
  6. T

    Moonface side effects question!!!

    i have "moonface" right now post TX. (i hate the word "moonface" who made that up anyways....?) i'm at 20mgs a day right now, and am slowly tapering down.... honestly... i hate it. i asked about it and the transplant nurse says it goes away over time. eventually i will be on 10mgs a day...
  7. T

    Moonface side effects question!!!

    i have "moonface" right now post TX. (i hate the word "moonface" who made that up anyways....?) i'm at 20mgs a day right now, and am slowly tapering down.... honestly... i hate it. i asked about it and the transplant nurse says it goes away over time. eventually i will be on 10mgs a day...
  8. T

    Moonface side effects question!!!

    i have "moonface" right now post TX. (i hate the word "moonface" who made that up anyways....?) i'm at 20mgs a day right now, and am slowly tapering down.... honestly... i hate it. i asked about it and the transplant nurse says it goes away over time. eventually i will be on 10mgs a day...
  9. T

    Moonface side effects question!!!

    i have "moonface" right now post TX. (i hate the word "moonface" who made that up anyways....?) i'm at 20mgs a day right now, and am slowly tapering down.... <br /> <br />honestly... i hate it. i asked about it and the transplant nurse says it goes away over time. eventually i will be on...
  10. T

    Ages

    38 is NOT too old. you should see how old some of the people (not Cfers) are at my center that got lung TXs!!! i thought 55 was the cut-off but some of them look much older... i was 28 when i got mine. Cfers get transplants younger than most people.
  11. T

    Ages

    38 is NOT too old. you should see how old some of the people (not Cfers) are at my center that got lung TXs!!! i thought 55 was the cut-off but some of them look much older... i was 28 when i got mine. Cfers get transplants younger than most people.
  12. T

    Ages

    38 is NOT too old. you should see how old some of the people (not Cfers) are at my center that got lung TXs!!! i thought 55 was the cut-off but some of them look much older... i was 28 when i got mine. Cfers get transplants younger than most people.
  13. T

    Ages

    38 is NOT too old. you should see how old some of the people (not Cfers) are at my center that got lung TXs!!! i thought 55 was the cut-off but some of them look much older... i was 28 when i got mine. Cfers get transplants younger than most people.
  14. T

    Ages

    38 is NOT too old. you should see how old some of the people (not Cfers) are at my center that got lung TXs!!! i thought 55 was the cut-off but some of them look much older... <br /> <br />i was 28 when i got mine. Cfers get transplants younger than most people.
  15. T

    Clubbing

    yippee! i hope it's true! that would be cool!
  16. T

    Clubbing

    yippee! i hope it's true! that would be cool!
  17. T

    Clubbing

    yippee! i hope it's true! that would be cool!
  18. T

    Clubbing

    yippee! i hope it's true! that would be cool!
  19. T

    Clubbing

    yippee! i hope it's true! that would be cool!
  20. T

    What hurts the most ??

    <div class="FTQUOTE"><begin quote>Oh and to answer the initial question about pain. Sure it might seem terrible while you are going through it... just like everything in life (ex. losing a loved one, having to put your dog down, breaking up with a loved one). However as time passes the less...
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