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You will have the results before you leave there. Is the testing being done by a recognized CF Center or Lab? Or is it being done by a local facility? Its very important that it be done properly because false results can occur from lack of training, knowledge etc. Good Luck! <img...

I was diagnosed at 7 years of age. As an infant I had a bout of bronchitis, but that is not uncommon in infants. I had stinky poop which also isnt uncommon. As time went on & every time I had a bowl movement, it was gassy, greasy & painful. This made it very difficult to potty train me. My...

Emily,I am always willing to answer ANY type of question. Feel free to email me. My name is actually Melissa & my email address is rksmith@catskill.netI believe I use to communicate with your Mom awhile back. I cant remember her name, but I remember a lady having a daughter with your name & at...

The average life span is just that. It is a bunch of data gathered and calculated to come up with statistics to give people an "idea" of the "average" case. Never (regarding CF or something else) should it be taken literally. When I was diagnosed at 7, the average lifespan was the teens. When I...

I am a 35 year old, stay at home Mom with CF. I was dx at 7. After we adjusted to a CF life, I watched the movie, Alex the Life of a child as well as read the book. I dont remember how or with who I watched it, but it didnt scare me. It made me cry. I always new I had a disease that had no...

I have switched insurances over the years either because my employer switched or I got married. Every time I had no problem. One main reason is my insurance NEVER lapsed. I had to pay into Cobra a few times & although it was costly, it saved my insurance from falling into a "pre existing"...

I had 2 pic lines since my dx at 7 years old. Both Pics have been within the last 3 years. Both were inserted by the "IV Team" at my hospital & it was done in my hospital room. By the time the girls (nurses) finished putting all precautionary things out it did look like a hospital room. The pic...

I am a 35 year old, stay at home Mom with CF. I have also wanted breast implants. My husband thinks I am nuts. I would only consider it if I had the $$$ to spend & time to clean my lungs out. From my understanding there are a few factors to consider for us. First is the Anesthesia. It isnt great...

I am a 35 year old, stay at home Mom with CF. My weight has always been an up/down issue. I found that over the years I can not eat as much at one sitting as I use to when I was younger. I get very uncomfortable. I ended up not consuming the amount of calories I needed. I have stopped trying to...

I am 35 years old today. I was diagnosed at 7 after tons of allergy testing. At the time the digestion, cramps, diahrea etc were the issue. Later on the lungs became more involved. In the last few years I switched to a new enzyme. For years after diagnosis I used Viokase as my enzyme then for...

Is his weight an issue? The enzymes & malabsorbtion would be more the culprit if his weight is a struggle. If not it could just be his diet. Just like when a Mother is breast feeding, she has to be careful of certain foods because they have a high acidic content. The same goes for anyone that...

The fluctuation in PFT results might not be from infection. It could be allergy/inflammation/enviromental. If any infection is under control & if she is taking antibiotics that are working for that infection, but her levels are still up/down, I would look in a different direction. For me (I will...

I will be 35 on Wednesday & I have CF. I am a Mom of a 4 3/4 year old daughter. My Mother (moreso than Dad) was always a very emotional person. She worried & thought (still does) the worst of any situation so I learned real quick that I couldnt share MY conerns of CF with her without stressing...

I absolutely believe its linked. When my health is not at its best, I cant remember squat. When I was the sickest in my life back in 1/2000 (granted I was running 104 fever), but I dont remember a lot of the month previous. That includes paying the bills for our household. My poor husband had to...