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I was told that the frontal sinuses didn't fully develop until age 11 or so. He has had several ct scans, I will have to go back and look.

I too think these modifier genes have a great deal with how each person is affected. My one son has Delta 508 and RX553, he had meconium illeus at birth and has been hospitalized with bowel obstructions. He also has liver involvement and sinus problems, but his lungs have been pretty good...

I have a question about headaches. My son Jared has been complaining about having a lot of headaches, to the point where he says they hurt so bad that he can't sleep. He has a lot of sinus issues, so I've always assumed they were sinus related. After seeing the ENT he said they weren't from...

If the milk of mag doesn't work, we have used miralax. As long as we catch his back up early enough it seems to help move things through pretty well. You do need a Rx for it though. Good Luck!

That's great. My kids were interviewed last year before the walk. They all thought it was so cool to see themselves in the paper.

I know this is a very hard time for you. I was in a very similar situation 8 years ago. I opted not to do the amnio, I new I wouldn't do anything to change things if they came back positive. I also was hospitalized with preterm labor when we found out we were carriers, and an amnio would have...

My daughter also had blocked tear ducts, that eventually went away. Never thought of there being a connection, but I guess anything is possible.

Leah, I hear you. I dread going to the clinic. No matter what they always want to add something on one of my kids. Why can't you just go and get some good news every once in awhile. Hang in there, you can do it. I know it can get overwhelming at times, but he needs you. Why don't you lock...

Hey Julie, I remember when I was pregnant, baby A always was getting the hiccups, this really would tick off B, and he would kick and punch up a storm. Baby C(my girl) was in her own little world on the other side and never budged during this fighting match. Have fun, it is wild when you...

We walk in Great Strides every year. We usually have about 75 people walking with our group, many of which are kids, and don't raise money. I pick up the shirts from our local chapter and then have our team name printed on the back. We pool all of the money from the walkers and it always...

That is great news, but will still keep them in my thoughts and prayers.

I have a question. How long did it take for your kids to master pft's? And how do you know that they are actually doing them right. My kids have a lot of trouble in the box, but seem to do ok on the other parts. Although my daughters FEV1 was only 69%, and has been incredibly healthy. At...

When my son was in the hospital last month someone recommended to me that we try and get a wish. My doctor was all for it and did all of the necessary paperwork. I just got a letter today from Make A Wish saying they would be in contact soon to set up an interview. I was hesitant for a long...

Jennifer, Congrats! That is awesome. I am a labor and delivery nurse and have been for 13 years. Nursing is a great career, I love it and I know you will too. It can be so flexible. I have worked per diem since my kids were born. That way when they are sick I can do my minimum, but when...

Our clinic visits always turn out to be a little chaotic and usually last about 3 hours, just for doctor visit and pft's. I have to go to a different facility for x rays and blood work. The one thing I hate about our clinic is that they hand you a beeper and send you down the hall to the...

Like everyone elso said, definately ask for genetic testing. My daughters initial sweat test came back negative, and then several years later positive. One of my sons has always had a borderline sweat test. Good luck and keep us posted.

Hi, I saw your comment on the Cf and biliary Atresia. Like you our doctors thouth it was very rare for him to have both . Where do you live, we go to Children's Hospital in Los Angeles. He is now 7 and his liver is doing great. Any questions, let me know.

Thanks for all the info. I got the final report print out it stated Many Bacillus species. Our doctor still says she is not sure if it means anything, unable to identify which species. We are going back next week to reculture.

I never put the two together, but I guess anything is possible. They are learning more and more every day. I have triplets, all with CF. One of them had multiple ear infections as a baby. He has a severe hearing loss and now has to wear hearing aids. One ear was bad when he was born and he...

I have triplets, all of which have cf. Two of them in my opinion are pretty much asymptomatic. They have some sinus issues, but that is pretty much it. They are also pancreatic sufficient, no enzymes. So I guess it is possible to have very little symptoms, but still have cf. Good luck with...