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Hi! I've been on here before, and was having my baby boy tested for CF. The gastroenterologist said it was "negative" but wouldn't give me the numbers (we had a sweat test done). I really don't like this doctor, and I am thinking of switching. Anyhow....he's still having major lung issues...

Hi! I've been on here before, and was having my baby boy tested for CF. The gastroenterologist said it was "negative" but wouldn't give me the numbers (we had a sweat test done). I really don't like this doctor, and I am thinking of switching. Anyhow....he's still having major lung issues...

Hi! I've been on here before, and was having my baby boy tested for CF. The gastroenterologist said it was "negative" but wouldn't give me the numbers (we had a sweat test done). I really don't like this doctor, and I am thinking of switching. Anyhow....he's still having major lung issues...

Hi! I've been on here before, and was having my baby boy tested for CF. The gastroenterologist said it was "negative" but wouldn't give me the numbers (we had a sweat test done). I really don't like this doctor, and I am thinking of switching. Anyhow....he's still having major lung issues...

Hi! I've been on here before, and was having my baby boy tested for CF. The gastroenterologist said it was "negative" but wouldn't give me the numbers (we had a sweat test done). I really don't like this doctor, and I am thinking of switching. Anyhow....he's still having major lung issues...

I'm not exactly happy with the way in which they decided to do the genetic test...they only tested for the top 25 mutations. The doctor obviously isn't listening to me. *frowns* Especially since she told my husband her theory on my son's apnea this morning. She thinks "It was caused by...

I'm not exactly happy with the way in which they decided to do the genetic test...they only tested for the top 25 mutations. The doctor obviously isn't listening to me. *frowns* Especially since she told my husband her theory on my son's apnea this morning. She thinks "It was caused by...

I'm not exactly happy with the way in which they decided to do the genetic test...they only tested for the top 25 mutations. The doctor obviously isn't listening to me. *frowns* Especially since she told my husband her theory on my son's apnea this morning. She thinks "It was caused by...

Well, the doctor called, and I was out, of course. My husband's message looked like this "Doctor ____ called, and she said baby A does not have CF (no test result numbers, he never bothered to ask) she says he has a bacteria in the lungs. Will need antibiotics for a month." Now, when I asked...

Well, the doctor called, and I was out, of course. My husband's message looked like this "Doctor ____ called, and she said baby A does not have CF (no test result numbers, he never bothered to ask) she says he has a bacteria in the lungs. Will need antibiotics for a month." Now, when I asked...

Well, the doctor called, and I was out, of course. My husband's message looked like this "Doctor ____ called, and she said baby A does not have CF (no test result numbers, he never bothered to ask) she says he has a bacteria in the lungs. Will need antibiotics for a month." Now, when I asked...

He was tested Monday, but since they ran a few other tests (bronchoscopy, gastroscopy with biopsy) I won't hear the results for about 5-7 days (all results at one time)...needless to say I am having a hard time waiting. However, the gastro doc gave us a set of pictures of the inside of his...

He was tested Monday, but since they ran a few other tests (bronchoscopy, gastroscopy with biopsy) I won't hear the results for about 5-7 days (all results at one time)...needless to say I am having a hard time waiting. However, the gastro doc gave us a set of pictures of the inside of his...

He was tested Monday, but since they ran a few other tests (bronchoscopy, gastroscopy with biopsy) I won't hear the results for about 5-7 days (all results at one time)...needless to say I am having a hard time waiting. However, the gastro doc gave us a set of pictures of the inside of his...

Thank you all for your information. He's got some testing this Friday, but I do not know if it will include the sweat test or that will be done at a later date. I'll keep you updated, of course!

Thank you all for your information. He's got some testing this Friday, but I do not know if it will include the sweat test or that will be done at a later date. I'll keep you updated, of course!

Thank you all for your information. He's got some testing this Friday, but I do not know if it will include the sweat test or that will be done at a later date. I'll keep you updated, of course!

Hi, I'm new to the forum, and know basically nothing about CF. I'm learning a lot from what I've read here, and at the CFF. My son is 9 mo. old, and 16lbs. Aparently that's small. He also had an "Apparent Life-Threatening Event" at 2 days old. Since then he's been on an apnea monitor, and...

Hi, I'm new to the forum, and know basically nothing about CF. I'm learning a lot from what I've read here, and at the CFF. My son is 9 mo. old, and 16lbs. Aparently that's small. He also had an "Apparent Life-Threatening Event" at 2 days old. Since then he's been on an apnea monitor, and...

Hi, I'm new to the forum, and know basically nothing about CF. I'm learning a lot from what I've read here, and at the CFF. My son is 9 mo. old, and 16lbs. Aparently that's small. He also had an "Apparent Life-Threatening Event" at 2 days old. Since then he's been on an apnea monitor, and...