Cystic Fibrosis Forum (EXP)

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  1. R

    Another damaging misdiagnosis...

    Today has turned out to be quite a roller coaster. At 2:00 am this morning Kacie was, for the first time, showing signs of improvement. She stood up by herself and she even smiled a couple of times. Fast forward to 8:30 am. The RT came in to do CPT. The doctor had ordered that Kacie is to...
  2. R

    Another damaging misdiagnosis...

    Today has turned out to be quite a roller coaster. At 2:00 am this morning Kacie was, for the first time, showing signs of improvement. She stood up by herself and she even smiled a couple of times. Fast forward to 8:30 am. The RT came in to do CPT. The doctor had ordered that Kacie is to...
  3. R

    Another damaging misdiagnosis...

    Today has turned out to be quite a roller coaster. At 2:00 am this morning Kacie was, for the first time, showing signs of improvement. She stood up by herself and she even smiled a couple of times. Fast forward to 8:30 am. The RT came in to do CPT. The doctor had ordered that Kacie is to...
  4. R

    Another damaging misdiagnosis...

    Today has turned out to be quite a roller coaster. At 2:00 am this morning Kacie was, for the first time, showing signs of improvement. She stood up by herself and she even smiled a couple of times. Fast forward to 8:30 am. The RT came in to do CPT. The doctor had ordered that Kacie is to...
  5. R

    Another damaging misdiagnosis...

    Today has turned out to be quite a roller coaster. At 2:00 am this morning Kacie was, for the first time, showing signs of improvement. She stood up by herself and she even smiled a couple of times. <br /> <br />Fast forward to 8:30 am. The RT came in to do CPT. The doctor had ordered that...
  6. R

    Another damaging misdiagnosis...

    Things seem much worse this morning. She is in more pain than she ever thought was possible. They forced her to get up and walk to the bathroom this morning...she DID NOT want to. They had let her use a bed pan all day yesterday. When she stood this morning she let out a blood curling...
  7. R

    Another damaging misdiagnosis...

    Things seem much worse this morning. She is in more pain than she ever thought was possible. They forced her to get up and walk to the bathroom this morning...she DID NOT want to. They had let her use a bed pan all day yesterday. When she stood this morning she let out a blood curling...
  8. R

    Another damaging misdiagnosis...

    Things seem much worse this morning. She is in more pain than she ever thought was possible. They forced her to get up and walk to the bathroom this morning...she DID NOT want to. They had let her use a bed pan all day yesterday. When she stood this morning she let out a blood curling...
  9. R

    Another damaging misdiagnosis...

    Things seem much worse this morning. She is in more pain than she ever thought was possible. They forced her to get up and walk to the bathroom this morning...she DID NOT want to. They had let her use a bed pan all day yesterday. When she stood this morning she let out a blood curling...
  10. R

    Another damaging misdiagnosis...

    Things seem much worse this morning. She is in more pain than she ever thought was possible. They forced her to get up and walk to the bathroom this morning...she DID NOT want to. They had let her use a bed pan all day yesterday. <br /> <br />When she stood this morning she let out a blood...
  11. R

    Another damaging misdiagnosis...

    After fighting for 2 1/2 years to get my first daughter diagnosed with CF, I lost a great deal of trust in doctors. I've worked for years to try to learn to trust them again... then... Last Friday I brought my younger daughter (with CF) in to the local ER for SEVERE stomach pains. I was...
  12. R

    Another damaging misdiagnosis...

    After fighting for 2 1/2 years to get my first daughter diagnosed with CF, I lost a great deal of trust in doctors. I've worked for years to try to learn to trust them again... then... Last Friday I brought my younger daughter (with CF) in to the local ER for SEVERE stomach pains. I was...
  13. R

    Another damaging misdiagnosis...

    After fighting for 2 1/2 years to get my first daughter diagnosed with CF, I lost a great deal of trust in doctors. I've worked for years to try to learn to trust them again... then... Last Friday I brought my younger daughter (with CF) in to the local ER for SEVERE stomach pains. I was...
  14. R

    Another damaging misdiagnosis...

    After fighting for 2 1/2 years to get my first daughter diagnosed with CF, I lost a great deal of trust in doctors. I've worked for years to try to learn to trust them again... then... Last Friday I brought my younger daughter (with CF) in to the local ER for SEVERE stomach pains. I was...
  15. R

    Another damaging misdiagnosis...

    After fighting for 2 1/2 years to get my first daughter diagnosed with CF, I lost a great deal of trust in doctors. I've worked for years to try to learn to trust them again... then... <br /> <br />Last Friday I brought my younger daughter (with CF) in to the local ER for SEVERE stomach pains...
  16. R

    CF Discovery Promising

    <a target=_blank class=ftalternatingbarlinklarge href="http://http://lfpress.ca/newsstand/News/Local/2008/07/29/6293586-sun.html">Link to story</a> London scientists working with mice have discovered that by correcting an abnormal gene linked to cystic fibrosis the mouse has a normal two-year...
  17. R

    CF Discovery Promising

    <a target=_blank class=ftalternatingbarlinklarge href="http://http://lfpress.ca/newsstand/News/Local/2008/07/29/6293586-sun.html">Link to story</a> London scientists working with mice have discovered that by correcting an abnormal gene linked to cystic fibrosis the mouse has a normal two-year...
  18. R

    CF Discovery Promising

    <a target=_blank class=ftalternatingbarlinklarge href="http://http://lfpress.ca/newsstand/News/Local/2008/07/29/6293586-sun.html">Link to story</a> London scientists working with mice have discovered that by correcting an abnormal gene linked to cystic fibrosis the mouse has a normal two-year...
  19. R

    CF Discovery Promising

    <a target=_blank class=ftalternatingbarlinklarge href="http://http://lfpress.ca/newsstand/News/Local/2008/07/29/6293586-sun.html">Link to story</a> London scientists working with mice have discovered that by correcting an abnormal gene linked to cystic fibrosis the mouse has a normal two-year...
  20. R

    CF Discovery Promising

    <a target=_blank class=ftalternatingbarlinklarge href="http://http://lfpress.ca/newsstand/News/Local/2008/07/29/6293586-sun.html">Link to story</a> <br /> <br />London scientists working with mice have discovered that by correcting an abnormal gene linked to cystic fibrosis the mouse has a...
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