Cystic Fibrosis Forum (EXP)

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  1. S

    Clinic visit precautions

    My son is 5 and we take a portable DVD player with one of his favorite DVDs so that he will be so engrossed in it he won't try to touch anything. He usually only gets to watch tv during his CPT so it is a treat for him. I take certain movies that he doesn't normally get to watch (I will rent...
  2. S

    the vest has arrived...yay!

    We just got our vest (Incourage System by Respirtech) about 3 weeks ago and it is a blessing. My son (5) loves it. He loves to watch tv which he doesn't get to do much and he absolutely loves Scooby Doo. We only let him watch Scooby during his treatments. He begs to do his vest (I know this...
  3. S

    the vest has arrived...yay!

    We just got our vest (Incourage System by Respirtech) about 3 weeks ago and it is a blessing. My son (5) loves it. He loves to watch tv which he doesn't get to do much and he absolutely loves Scooby Doo. We only let him watch Scooby during his treatments. He begs to do his vest (I know this...
  4. S

    the vest has arrived...yay!

    We just got our vest (Incourage System by Respirtech) about 3 weeks ago and it is a blessing. My son (5) loves it. He loves to watch tv which he doesn't get to do much and he absolutely loves Scooby Doo. We only let him watch Scooby during his treatments. He begs to do his vest (I know this...
  5. S

    You know you're a CF mom\dad\parent when......

    You are used to the stares of other parents in restaurants as your 5 year old salts his fried shrimp and then dips them in butter before he eats them. You are upset that your 5 year old doesn't want to eat ice cream and cake at birthday parties.
  6. S

    You know you're a CF mom\dad\parent when......

    You are used to the stares of other parents in restaurants as your 5 year old salts his fried shrimp and then dips them in butter before he eats them. You are upset that your 5 year old doesn't want to eat ice cream and cake at birthday parties.
  7. S

    You know you're a CF mom\dad\parent when......

    You are used to the stares of other parents in restaurants as your 5 year old salts his fried shrimp and then dips them in butter before he eats them. You are upset that your 5 year old doesn't want to eat ice cream and cake at birthday parties.
  8. S

    Things a 4 year old doesn't like about having CF

    That is so cute....my son just turned 5 and hates the throat culture the most. He does have some things that he likes about having CF though...he was just telling me yesterday. He told me that he likes having CF because he gets to eat as much salt and butter as he wants (he puts it on...
  9. S

    Things a 4 year old doesn't like about having CF

    That is so cute....my son just turned 5 and hates the throat culture the most. He does have some things that he likes about having CF though...he was just telling me yesterday. He told me that he likes having CF because he gets to eat as much salt and butter as he wants (he puts it on...
  10. S

    Things a 4 year old doesn't like about having CF

    That is so cute....my son just turned 5 and hates the throat culture the most. He does have some things that he likes about having CF though...he was just telling me yesterday. He told me that he likes having CF because he gets to eat as much salt and butter as he wants (he puts it on...
  11. S

    P.A

    My son cultured positive for PA in Dec 05 (they said it was a very small amount) and then Cultured neg for PA in Jan 06 (before we started TOBI). Our doctor still put him on the 6 month (28 days on, 28 off) round of TOBI. My son was 4 at the time and he said that it is not always easy to get a...
  12. S

    P.A

    My son cultured positive for PA in Dec 05 (they said it was a very small amount) and then Cultured neg for PA in Jan 06 (before we started TOBI). Our doctor still put him on the 6 month (28 days on, 28 off) round of TOBI. My son was 4 at the time and he said that it is not always easy to get a...
  13. S

    P.A

    My son cultured positive for PA in Dec 05 (they said it was a very small amount) and then Cultured neg for PA in Jan 06 (before we started TOBI). Our doctor still put him on the 6 month (28 days on, 28 off) round of TOBI. My son was 4 at the time and he said that it is not always easy to get a...
  14. S

    Where to start...?

    I am so sorry that you are going through this. It brings tears to my eyes. My almost 5 year old son was diagnosed one year ago today. It has been a tough year, but we made it through. My son had shown slow (almost non-existant) growth for one year although he had started growing again at a...
  15. S

    Where to start...?

    I am so sorry that you are going through this. It brings tears to my eyes. My almost 5 year old son was diagnosed one year ago today. It has been a tough year, but we made it through. My son had shown slow (almost non-existant) growth for one year although he had started growing again at a...
  16. S

    Where to start...?

    I am so sorry that you are going through this. It brings tears to my eyes. My almost 5 year old son was diagnosed one year ago today. It has been a tough year, but we made it through. My son had shown slow (almost non-existant) growth for one year although he had started growing again at a...
  17. S

    School

    <div class="FTQUOTE"><begin quote>Did you even read her post sullihs?????? Emily said, "Not saying this to be annoying or rude, or whatever other negative adjectives may be thrown at ME." She wasn't saying anything to anyone else or throwing any negative adjectives at anyone else, she was...
  18. S

    School

    <div class="FTQUOTE"><begin quote>Last anon (12:40), I just hope you know... contact with other CFers or not, your son will more than likely culture pseudo at one point or another. Just a matter of when, really. Not saying this to be annoying or rude, or whatever other negative adjectives may be...
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