Cystic Fibrosis Forum (EXP)

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  1. R

    what is the eflow?

    I have seen everyone talking about the eflow. Is it as affective as regular pari nebs . And can you use it for all the meds. And another question does anyone use the pulmozyne 2x a day. I could really use it 2x right now having a hard time getting it out regina/44
  2. R

    some advice

    I have had the regular flu shot, but not since i got bad with the cepacia . So i am thinking about not getting the vaccine (H1N1). Does it give you a touch of the virus? I don't think my lungs will survive that. The doc said they couldn't give me the meropenum again because the side effects are...
  3. R

    vest sizes

    Do they make portable size vest that you can take on the road . The one my sister had was huge and very heavy. And am i asking too much to say that you can use it on a adapter to a cig lighter in the car ( like for my updraft machine) regina/44/w/cf
  4. R

    anyone have high liver enzyme while on meropenum

    When i went in the hospital in jan i couldn't breathe very good, but i didn't have a fever at all ,but the 2nd night after getting started on meropenum and ceftaz i ran a fever 101 to 102 and hurt so bad i couldnt sleep .Took a lot of tylenol which didn't help the liver thing . I kept telling...
  5. R

    my husband has mrsa on his arm

    I have b cepacia already 2 strands of it, managing ok with the updrafts, that's without catching any bugs in the past 6 months. He got spider bit he thinks but the doc says its mrsa (he did a culture). Can i get this in my lungs from him. I have been taking precautions already but it is so easy...
  6. R

    anyone from arkansas that knows about the disability laws

    I WAS GETTING SSI BUT THEY SAID I HAD A OVERPAYMENT SO THEY SAID I HAD TO PAY IT ALL BACK AT ONCE. THEN WHEN I DIDNT THEY TOOK MY SSI WHICH WAS ONLY 15.00 A MONTH THEY WERE ALREADY TAKING IT OUT , SO THEREFORE I LOST MY MEDICAID WAS THINKING, ABOUT QUITTING WORK I AM NOT GETTING ANY BETTER. I...
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