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So we decided to NOT do an IEP or 504 this year for Parker when he started Kindergarten. I kind of came to the conclusion of not pushing for it because the teacher, nurse and I had a sit down talk about all his stuff before school and they seemed like they would be overly cautious with him so I...

Parker has a nasty cough so I decided to keep him home for the day so I can get extra treatments in. He is acting fine, however, running all around the house and playing like normal. Nobody else is sick so I'm pretty sure he is not contagious to the normal community. When do you keep your...

There's a new doctor in town! And he is much more proactive than other docs at the clinic we go to. I am totally okay with being proactive and I know that so many CFers are already doing these nebs at a way younger age than PK (5 1/2 yo.). But the problem I have always dealt with in the past...

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I am nervous. We are expecting another child in March and we go in later this month for the anatomy screen. I know I am getting ahead of myself but was just wondering how many of you (with more than one child with CF) experienced an EB or MI issue with both children. I am not doing an amnio...

We are pregnant and I am going in for the first trimester screening at 13 weeks. We found out with DS at 20 weeks that he had a bright bowel. Just curious if they would be able to see this at 13 weeks or is it something that shows up later? When did you find out or what is the earliest you...

DS will be starting school this month and I am a bit confused on how far to go with everything right away and wondered if anyone could tell me what their experience has been. Areas of concern are diet, 504 and other children. I'm curious how I should go about trying to add calories to his diet...

Hi everyone! Just curious how many of you parents have dealt with their CFer having ADHD? DS is not formerly diagnosed but his older brother has been (along with other things including Tourette Syndrome) and he is starting to exhibit a lot of the same ADHD symptoms along with a few tics...

DS has been doing great for the past year or two on his Creon-12. He is always at the max dose and is also on Prevacid to help with the enzymes. Yesterday he started having greasy stools to the point where he couldn't hold it. Last night he complained of a tummy-ache and had more grease and...

I'm sure many of you have been through pneumonia with toddlers that can't really give you a good description of how their feeling, so I'm hoping that some of you can help me out here. We've had bronchitis going around here for the last month or two, and finally got over it. A couple of days...

DS usually runs 97 or better at clinic, but we're here in the hospital for a "tune up" and he's running 91 right now while sleeping but earlier today when he was awake it was about 95...just wondering what others run while awake/asleep?? Thanks!

I have 4 Mic-key bolus extension sets with "cath tip, secur-loc straight connector and clamp" 24" if anyone needs these. Also a box full of "BD 2oz syringe catheter tips" If anyone needs these or uses these on a regular basis and would like some for free, please let me know and I will mail...

I have 4 Mic-key bolus extension sets with "cath tip, secur-loc straight connector and clamp" 24" if anyone needs these. Also a box full of "BD 2oz syringe catheter tips" If anyone needs these or uses these on a regular basis and would like some for free, please let me know and I will mail...

DS has been having a very crusty nose lately. To the point that I would have to pull crusties out of his nose with tweezers before administering saline spray. The nurse has said that he is "drying out" and we did just have an appt. last week for him and docs said to try some claritin because it...

DS has been having a very crusty nose lately. To the point that I would have to pull crusties out of his nose with tweezers before administering saline spray. The nurse has said that he is "drying out" and we did just have an appt. last week for him and docs said to try some claritin because it...

Hi all! DS has been having blood come out of his nose every once in awhile after he sneezes when he wakes up. Is this a sign of polyps? Should I contact the docs right away about it or wait until Monday? Thank you in advance!!

Hi all! DS has been having blood come out of his nose every once in awhile after he sneezes when he wakes up. Is this a sign of polyps? Should I contact the docs right away about it or wait until Monday? Thank you in advance!!

I know this subject has been brought up in previous years and maybe even this year, but please remind me. DS is 2 now and we were outside the other day while it was pretty warm. He got pretty red and we took him inside and gave him some water with salt in it. Why is it that they get...

Hi all! DS has been having an "increased cough" and is on antibiotics. . . was just wondering if Vicks is ok to use as well? I went to the store tonight to grab some vicks and mucinex for myself as I believe I have bronchitis. While there, I saw the waterless Vicks vaporizors and picked up...

Amber's questiong about her child being in the same classroom before/after another CFer brought up a question for me. Even though Parker is a few years away from school, our eldest is starting Kindergarten this next year. Couldn't he carry CF germs home with him and give them to his brother...