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Ok. Can someone clear up a few things for me about MRSA? It hits home to me because we have a young relative with it that the children play with. Ok, so where all can MRSA live? I have heard nose, anus, lungs? When a CFer gets it, is it automatically in their lungs? Does everyone that has MRSA...

I know I don't post much but I just wanted to tell everyone how excited I am today! At a check today the coordinator decided to try and fit Parker into a vest and it FIT! Yay!!! She ordered one right away and it was the small size! I guess they have an x-small too?? They are tiny! ANyhow. Just...

Parker's cough has been dry lately. This is the first time he has had a dry cough and one time this evening it seemed as if he was gasping for air while coughing. He has a viral infection right now, but other than that and a small fever today seems fine (only coughing maybe once every other...

Hi everyone. I am currently getting ready to send off Christmas cards and I've had this feeling that I should be sending some sort of info about CF along with them. Does anyone do this? Any ideas??

I am so frustrated right now and I'm sorry if most of this is venting. Parker is now 4 1/2 mos. old and has stopped gaining weight. He's in the 5% in weight and I think the 60 something in height. The nutritionist and gastro doc have been pushing me to stop nursing and to pump and put extra...

We had never done the CPT with Parker being head down because that's the way we were taught in the hospital plus I knew from reading that it can cause acid reflux and it was not recommended any more. Yesterday at our clinic visit I showed the therapist how I was doing his CPT because I wanted to...

Hello everyone. I have another enzyme question. Parker was on 1/2 a capsule of pancrease MT4 for awhile and at the last visit with the nutritionist, they upped the amount to 3/4 capsule because he was still eating every 3 hours and she thought it should be 4 (Parker will be 2 months on the 12th...

Hello everyone. I'm hoping that someone can answer my question. . . Parker takes 1/2 a capsule of Pancrease MT4 with every feeding. We normally just take out 7 of the tiny ball looking things and leave the rest in and close the capsule and use the rest the next time. I know that these things are...

Figured I would post this here as well, since that is what I did with my original one a few months ago. Thank you. It's been awhile, but I originally posted some concerns after an ultrasound found our baby to have an echogenic bowel. Well, yesterday, March 12th, we had our baby, Parker. He was...

It's been awhile, but I originally posted some concerns after an ultrasound found our baby to have an echogenic bowel. Well, yesterday, March 12th, we had our baby, Parker. He was quite a bit smaller than expected and went into the NICU after an X-ray showed that something was still wrong with...

Someone had suggested that I post this in here: Hello everyone. My name is Shannon and I wanted to introduce myself and maybe get a little insight from those of you who are raising a child/children with CF. I am 23 years old and my husband and I are expecting our 2nd little boy in the middle...

Hello everyone. My name is Shannon and I wanted to introduce myself and maybe get a little insight from those of you who are raising a child/children with CF. I am 23 years old and my husband and I are expecting our 2nd little boy in the middle of March. When I was around 17 weeks pregnant, we...