This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!
My daughter is enrolled in the study. She went on open label this past june. It can't hurt, but we haven't seen a differen ce with it yet either. I have been also wondering what others experiences with it are also, considering I'm thinking of having her stop since she had a big drop in her...
I completely agree with overuse of anti's. I don't believe she needs to be alternating constant, as we haven't seen any difference with or without them. We are actually in the process of switching clinics because I'm very annoyed with the one we are at (been there since she was born). I feel...
I completely agree with overuse of anti's. I don't believe she needs to be alternating constant, as we haven't seen any difference with or without them. We are actually in the process of switching clinics because I'm very annoyed with the one we are at (been there since she was born). I feel...
I completely agree with overuse of anti's. I don't believe she needs to be alternating constant, as we haven't seen any difference with or without them. We are actually in the process of switching clinics because I'm very annoyed with the one we are at (been there since she was born). I feel...
She just currently had a nasty one that lasted about 3 weeks and turned into pneumonia, but she also had cultered PA anf aspergillus. Before the cultures came back she went on azithromax for 3 weeks and prednisolone for 5 days. She got worse, and when the cultures came back they added cipro...
She just currently had a nasty one that lasted about 3 weeks and turned into pneumonia, but she also had cultered PA anf aspergillus. Before the cultures came back she went on azithromax for 3 weeks and prednisolone for 5 days. She got worse, and when the cultures came back they added cipro...
She just currently had a nasty one that lasted about 3 weeks and turned into pneumonia, but she also had cultered PA anf aspergillus. Before the cultures came back she went on azithromax for 3 weeks and prednisolone for 5 days. She got worse, and when the cultures came back they added cipro...
My daughter is. She started in 09 and then switched onto the real drug in June. Honestly, I'm not impressed so far. I have yet to see any improvement with it. Her pft's have also dropped over 20% in that time, and there is a lot she can't take while on it so it doesn't mess up the study...
My daughter is. She started in 09 and then switched onto the real drug in June. Honestly, I'm not impressed so far. I have yet to see any improvement with it. Her pft's have also dropped over 20% in that time, and there is a lot she can't take while on it so it doesn't mess up the study...
My daughter is. She started in 09 and then switched onto the real drug in June. Honestly, I'm not impressed so far. I have yet to see any improvement with it. Her pft's have also dropped over 20% in that time, and there is a lot she can't take while on it so it doesn't mess up the study...
I thought id chime in.
AM
Xopenex
Denufosol
Pulmozyne and vest for 30 min.
Advair
Flonase
Tobi when needed
330 xopenex when needed, 30 min vest and denufosol
PM
Same as morning minus flonase
This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
By continuing to use this site, you are consenting to our use of cookies.