Search results

I wrote Oprah a letter about Cystic Fibrosis about 2 years ago. I tied in the 65 roses theme and how we as a family were coping with the diagnosis. I just wanted to see if she was interested, but I am sure she has to filter through ALOT of emails. Maybe one day she will do a show about CF. We...

My daughter had her first cf stay last spring. We stayed for 4 days and then they sent us home with a PICC line. She was only 3, but wasn't too sick. Can they add two more therapies with a homehealth nurse? Just wondering? I do agree with the lack of sleep! She was sleeping great, no fever &...

Is there a CF awareness month? I thought there was a week sometime in October...does it change where you live according to your chapter???? I think it would be a great idea.

Risa, I meant how long do they last at one sitting (30 min, an hour or more) <img src="i/expressions/face-icon-small-smile.gif" border="0">. She is doing a little better this week. She is in a phase where she wants us to feed her bites, but we will do what we can. We have tried a few different...

Risa, I meant how long do they last at one sitting (30 min, an hour or more) <img src="i/expressions/face-icon-small-smile.gif" border="0">. She is doing a little better this week. She is in a phase where she wants us to feed her bites, but we will do what we can. We have tried a few different...

He does resemble George Clooney! I would buy one of his cds now. My hubby didn't like him at first, but now I can tell he looks forward to his performance...he is so original. I don't know if he will win, but he will be famous! We are setting up our TV trays tonight...<img...

He does resemble George Clooney! I would buy one of his cds now. My hubby didn't like him at first, but now I can tell he looks forward to his performance...he is so original. I don't know if he will win, but he will be famous! We are setting up our TV trays tonight...<img...

The official webiste of the Canadian Cystic Fibrosis Foundation is http://www.ccff.ca/home.asp... it should have links to the care centers or clinics.

The official webiste of the Canadian Cystic Fibrosis Foundation is http://www.ccff.ca/home.asp... it should have links to the care centers or clinics.

Laurel, LOL! We are pretty serious about Idol too. My family finally quit calling during the show. We record it...incase something happens and we have to miss it. I think it is a great show & different than just staring at the tv. My kids usually get up and dance if it is an upbeat song...good...

Laurel, LOL! We are pretty serious about Idol too. My family finally quit calling during the show. We record it...incase something happens and we have to miss it. I think it is a great show & different than just staring at the tv. My kids usually get up and dance if it is an upbeat song...good...

We have tried the reward system, but she want fruit snacks...too bad it is not peanut butter or something with more calories. We have tried not to fill her plate up, so it doesn't look so big & that has helped a little. She has finally started eating more butter. She wants it on top of all of...

We have tried the reward system, but she want fruit snacks...too bad it is not peanut butter or something with more calories. We have tried not to fill her plate up, so it doesn't look so big & that has helped a little. She has finally started eating more butter. She wants it on top of all of...

RE:IM DESIGNING A NEW VEST..>>>> need to know what people like nad dislike about current vest :) The wheel idea is great...just like a carryone suitcase. My biggest complaint is the the storage. We have a nice bag, but it is just something else to put away. Our tubes pop out a lot. I think it...

RE:IM DESIGNING A NEW VEST..>>>> need to know what people like nad dislike about current vest :) The wheel idea is great...just like a carryone suitcase. My biggest complaint is the the storage. We have a nice bag, but it is just something else to put away. Our tubes pop out a lot. I think it...

I wish that would work for my daughter...maybe when she can read...LOL! That is what we are struggling with the most is trying to put on pounds. She finally was on the growth chart, then we all got sick. She is usually a good eater, but is starting to get picky. I hope it will get easier when...

I wish that would work for my daughter...maybe when she can read...LOL! That is what we are struggling with the most is trying to put on pounds. She finally was on the growth chart, then we all got sick. She is usually a good eater, but is starting to get picky. I hope it will get easier when...

I really like the bald guy (Chris Daugherty) and Katharine (her mom is a singing coach- long brown hair). I think Kelly Pickler is cute, but may get to be too much. Taylor Hicks is awesome & my son is rooting for Paris. Anyway, it will be a good season <img...

I really like the bald guy (Chris Daugherty) and Katharine (her mom is a singing coach- long brown hair). I think Kelly Pickler is cute, but may get to be too much. Taylor Hicks is awesome & my son is rooting for Paris. Anyway, it will be a good season <img...

We also stay away from indoor pools. I think this is something I am going to ask the doc, because Erin likes to swim. Our indoor pool for the winter was also SO warm, I was a little weary. Good luck on the vacation choice! If you do go to an indoor waterpark, we went to Great Wolf Lodge in...