Cystic Fibrosis Forum (EXP)

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  1. M

    how long do you wait to give antibiotics for a cough?

    Hello. our 6 mo baby girl has a wet/"junky" sounding cough. pediatrician did recommend starting bactrum if cough did not significantly improve in a couple of days (this is after she had the cough a couple of days.) Total cough time 7-10days? we have been giving her albuterol since tues...
  2. M

    blood in 6 mo infant's stool

    hello, wondering if anyone experienced this with their baby? reddish/pinkish streaks in babies poop. going on for bout a week. did have a couple of episodes of increase frequency and less formed but otherwise not out of the ordinary. baby seems comfortable otherwise. just took to the...
  3. M

    blood in 6 mo infant's stool

    hello, wondering if anyone experienced this with their baby? reddish/pinkish streaks in babies poop. going on for bout a week. did have a couple of episodes of increase frequency and less formed but otherwise not out of the ordinary. baby seems comfortable otherwise. just took to the...
  4. M

    blood in 6 mo infant's stool

    hello, wondering if anyone experienced this with their baby? <br /> <br />reddish/pinkish streaks in babies poop. going on for bout a week. did have a couple of episodes of increase frequency and less formed but otherwise not out of the ordinary. baby seems comfortable otherwise. just took to...
  5. M

    3wk old Diagnosed 11/15

    Jeanne: i sent you a pvt msg too.
  6. M

    3wk old Diagnosed 11/15

    Jeanne: i sent you a pvt msg too.
  7. M

    3wk old Diagnosed 11/15

    Jeanne: i sent you a pvt msg too.
  8. M

    General baby questions - please give advice/experience

    keepercjr - i sent you a pvt msg (i think) so let me know if it did not go through.
  9. M

    General baby questions - please give advice/experience

    keepercjr - i sent you a pvt msg (i think) so let me know if it did not go through.
  10. M

    General baby questions - please give advice/experience

    keepercjr - i sent you a pvt msg (i think) so let me know if it did not go through.
  11. M

    General baby questions - please give advice/experience

    keepercjr - we really enjoy practicing ec. we began when h was 4 days old! we still go through a lot of wet diapers but also a lot in the potty. almost 100% of her poos make the toilet. i know it has been a while for you and your daughter - but i am so curious what "normal" 5 mo old baby poop is...
  12. M

    General baby questions - please give advice/experience

    keepercjr - we really enjoy practicing ec. we began when h was 4 days old! we still go through a lot of wet diapers but also a lot in the potty. almost 100% of her poos make the toilet. i know it has been a while for you and your daughter - but i am so curious what "normal" 5 mo old baby poop is...
  13. M

    General baby questions - please give advice/experience

    keepercjr - we really enjoy practicing ec. we began when h was 4 days old! we still go through a lot of wet diapers but also a lot in the potty. almost 100% of her poos make the toilet. i know it has been a while for you and your daughter - but i am so curious what "normal" 5 mo old baby poop is...
  14. M

    General baby questions - please give advice/experience

    thanks everyone. i really need a plan. i will try to set up enzymes and applesauce by the bed for accessibility. been spoiled so far - just roll over and feed - just need to get into a different mind set
  15. M

    General baby questions - please give advice/experience

    thanks everyone. i really need a plan. i will try to set up enzymes and applesauce by the bed for accessibility. been spoiled so far - just roll over and feed - just need to get into a different mind set
  16. M

    General baby questions - please give advice/experience

    thanks everyone. i really need a plan. i will try to set up enzymes and applesauce by the bed for accessibility. been spoiled so far - just roll over and feed - just need to get into a different mind set
  17. M

    General baby questions - please give advice/experience

    Hello My 5 mo baby had her first cold couple of weeks ago and continues to have a near constant runny nose (clear). some mom's tell me a runny nose is just normal for babies this age? The ped recommended nasal saline drops with xylitol. does anyone use these? also, she does this odd thing -...
  18. M

    General baby questions - please give advice/experience

    Hello My 5 mo baby had her first cold couple of weeks ago and continues to have a near constant runny nose (clear). some mom's tell me a runny nose is just normal for babies this age? The ped recommended nasal saline drops with xylitol. does anyone use these? also, she does this odd thing -...
  19. M

    General baby questions - please give advice/experience

    Hello <br />My 5 mo baby had her first cold couple of weeks ago and continues to have a near constant runny nose (clear). some mom's tell me a runny nose is just normal for babies this age? The ped recommended nasal saline drops with xylitol. does anyone use these? also, she does this odd thing...
  20. M

    PTC 124 (Ataluren)

    i am also very interested in your experience. my little girl has W1282x, f508. She was dx with nbs and is 5 months. i am still struggling with her dx and hope that this drug will be both effective and available soon.
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