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Hello- My daughter takes Creon for her enzmes and when she started as a baby we were in the Wee Care program and received free enzymes.  Then we moved to the Solvay Cares where they pay your copay and you get a case of free drinks a month.  Now CF Services tells me they are no longer paying our...

Hello- My daughter takes Creon for her enzmes and when she started as a baby we were in the Wee Care program and received free enzymes. Then we moved to the Solvay Cares where they pay your copay and you get a case of free drinks a month. Now CF Services tells me they are no longer paying our...

<p>Hello- <p>My daughter takes Creon for her enzmes and when she started as a baby we were in the Wee Care program and received free enzymes. Then we moved to the Solvay Cares where they pay your copay and you get a case of free drinks a month. Now CF Services tells me they are no longer paying...

Feeling so sad... My five year old daughter just cultured pseudomonas in a throat culture at clinic last week.  We were prescribed 2 weeks of Cipro and then 28 days TOBI.  Walgreens can't even get the TOBI until tomorrow so I am anxious that we are missing time!   Is the at home method what most...

Feeling so sad... My five year old daughter just cultured pseudomonas in a throat culture at clinic last week. We were prescribed 2 weeks of Cipro and then 28 days TOBI. Walgreens can't even get the TOBI until tomorrow so I am anxious that we are missing time! Is the at home method what most...

<p>Feeling so sad... My five year old daughter just cultured pseudomonas in a throat culture at clinic last week. We were prescribed 2 weeks of Cipro and then 28 days TOBI. Walgreens can't even get the TOBI until tomorrow so I am anxious that we are missing time! <p>Is the at home method what...

Hello, I am having some bloodwork done for my daughter... Not CF related, but she is on the autism spectrum as well and it is for this. My question is, they could not get enough blood today. Needed about 7 or 8 vials, and only got 1 and a half so we have to go back tomorrow. We've never had...

Hello, I am having some bloodwork done for my daughter... Not CF related, but she is on the autism spectrum as well and it is for this. My question is, they could not get enough blood today. Needed about 7 or 8 vials, and only got 1 and a half so we have to go back tomorrow. We've never had...

Hello, <br /> <br />I am having some bloodwork done for my daughter... Not CF related, but she is on the autism spectrum as well and it is for this. My question is, they could not get enough blood today. Needed about 7 or 8 vials, and only got 1 and a half so we have to go back tomorrow...

This sounds AMAZING! Do you have to have two DF508? My daughter has one. Thanks! Zoe mom to Kate wCF

This sounds AMAZING! Do you have to have two DF508? My daughter has one. Thanks! Zoe mom to Kate wCF

This sounds AMAZING! Do you have to have two DF508? My daughter has one. <br /> <br />Thanks! <br />Zoe mom to Kate wCF

Hello, We are taking a family vacation to the Lake of the Ozarks tomorrow with our extended family. I was curious if any of you allow your children to swim in lake water? We will have access to a pool which is where we will normally swim, but we are getting a boat one day so I am worried...

Hello, We are taking a family vacation to the Lake of the Ozarks tomorrow with our extended family. I was curious if any of you allow your children to swim in lake water? We will have access to a pool which is where we will normally swim, but we are getting a boat one day so I am worried...

Hello, <br /> <br />We are taking a family vacation to the Lake of the Ozarks tomorrow with our extended family. I was curious if any of you allow your children to swim in lake water? We will have access to a pool which is where we will normally swim, but we are getting a boat one day so I am...

Hello, I am having quite a bit of trouble with my daughter and her stools! They have suddenly become very loose. If she has a pull up on they are orange around the outside and I even see yellow fat in them- terrible I know! She was just on augmentin for 14 days and I know that can cause bad...

Hello, I am having quite a bit of trouble with my daughter and her stools! They have suddenly become very loose. If she has a pull up on they are orange around the outside and I even see yellow fat in them- terrible I know! She was just on augmentin for 14 days and I know that can cause bad...

Hello, <br /> <br />I am having quite a bit of trouble with my daughter and her stools! They have suddenly become very loose. If she has a pull up on they are orange around the outside and I even see yellow fat in them- terrible I know! She was just on augmentin for 14 days and I know that...

We also have the Smart Vest. We do 30 minutes twice a day, and have the Hz at 10 for 10 min, 12 for 10 min, and 14 for 10 min. We keep the dial at 30-40. The company has been really good about replacing things too. I felt like the vest wasn't working as well a couple months ago, and they...

We also have the Smart Vest. We do 30 minutes twice a day, and have the Hz at 10 for 10 min, 12 for 10 min, and 14 for 10 min. We keep the dial at 30-40. The company has been really good about replacing things too. I felt like the vest wasn't working as well a couple months ago, and they...