Search results

Hi all, My daughter Kate is almost four and has been very healthy so far. I have a one year old that does not have CF and on her first day in daycare brought home a lovely green snot and cough. Kate ended up getting it almost a week later. Well, we are coming up on FOUR weeks now. Took her...

Hi all, My daughter Kate is almost four and has been very healthy so far. I have a one year old that does not have CF and on her first day in daycare brought home a lovely green snot and cough. Kate ended up getting it almost a week later. Well, we are coming up on FOUR weeks now. Took her...

Hi all, <br /> <br />My daughter Kate is almost four and has been very healthy so far. I have a one year old that does not have CF and on her first day in daycare brought home a lovely green snot and cough. Kate ended up getting it almost a week later. Well, we are coming up on FOUR weeks...

Hi Megan, My daughter had them in a culture at about 6 months (she is almost 4 now.) They had her do Tobi and Cipro as well, and she has had clear cultures ever since. Now I know when they saw the psuedomonas in her culture, they had not colonized yet. They thought we caught them early. I...

Hi Megan, My daughter had them in a culture at about 6 months (she is almost 4 now.) They had her do Tobi and Cipro as well, and she has had clear cultures ever since. Now I know when they saw the psuedomonas in her culture, they had not colonized yet. They thought we caught them early. I...

Hi Megan, My daughter had them in a culture at about 6 months (she is almost 4 now.) They had her do Tobi and Cipro as well, and she has had clear cultures ever since. Now I know when they saw the psuedomonas in her culture, they had not colonized yet. They thought we caught them early. I...

Hi Megan, My daughter had them in a culture at about 6 months (she is almost 4 now.) They had her do Tobi and Cipro as well, and she has had clear cultures ever since. Now I know when they saw the psuedomonas in her culture, they had not colonized yet. They thought we caught them early. I...

Hi Megan, <br /> <br />My daughter had them in a culture at about 6 months (she is almost 4 now.) They had her do Tobi and Cipro as well, and she has had clear cultures ever since. Now I know when they saw the psuedomonas in her culture, they had not colonized yet. They thought we caught them...

Hi all, I have a question for those of you that give your child Prilosec. We just switched to the capsules this week (I have to open them in applesauce but still better than having the pharm. make the dreaded compound) but I'm not sure when to give. With the liquid I just gave it to Kate at...

Hi all, I have a question for those of you that give your child Prilosec. We just switched to the capsules this week (I have to open them in applesauce but still better than having the pharm. make the dreaded compound) but I'm not sure when to give. With the liquid I just gave it to Kate at...

Hi all, I have a question for those of you that give your child Prilosec. We just switched to the capsules this week (I have to open them in applesauce but still better than having the pharm. make the dreaded compound) but I'm not sure when to give. With the liquid I just gave it to Kate at...

Hi all, I have a question for those of you that give your child Prilosec. We just switched to the capsules this week (I have to open them in applesauce but still better than having the pharm. make the dreaded compound) but I'm not sure when to give. With the liquid I just gave it to Kate at...

Hi all, <br /> <br />I have a question for those of you that give your child Prilosec. We just switched to the capsules this week (I have to open them in applesauce but still better than having the pharm. make the dreaded compound) but I'm not sure when to give. With the liquid I just gave it...

Has anyone heard anything else about the nonsense mutation drug PTC 124? It sounded so promising, but I didn't see it listed in the drug pipeline anymore. That has me worried. Just wondering if anyone has heard anything. Thanks! Zoe mom to Kate wCF

Has anyone heard anything else about the nonsense mutation drug PTC 124? It sounded so promising, but I didn't see it listed in the drug pipeline anymore. That has me worried. Just wondering if anyone has heard anything. Thanks! Zoe mom to Kate wCF

Has anyone heard anything else about the nonsense mutation drug PTC 124? It sounded so promising, but I didn't see it listed in the drug pipeline anymore. That has me worried. Just wondering if anyone has heard anything. Thanks! Zoe mom to Kate wCF

Has anyone heard anything else about the nonsense mutation drug PTC 124? It sounded so promising, but I didn't see it listed in the drug pipeline anymore. That has me worried. Just wondering if anyone has heard anything. Thanks! Zoe mom to Kate wCF

Has anyone heard anything else about the nonsense mutation drug PTC 124? It sounded so promising, but I didn't see it listed in the drug pipeline anymore. That has me worried. Just wondering if anyone has heard anything. <br /> <br />Thanks! <br />Zoe mom to Kate wCF

Hi all, Maybe I missed something here, but last I had heard the drug PTC 124 was really promising for those with mutations that are nonsense (I think that means they end in a X.) I was looking on the drug pipeline of the foundations website and I didn't see it mentioned at all! Is it renamed...

Hi all, Maybe I missed something here, but last I had heard the drug PTC 124 was really promising for those with mutations that are nonsense (I think that means they end in a X.) I was looking on the drug pipeline of the foundations website and I didn't see it mentioned at all! Is it renamed...