Cystic Fibrosis Forum (EXP)

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  1. C

    second double lung transplant?

    casey has medicaid. i was not with him when he had his first lung tx, but from what i gathered, he and his family did not have many (or any?) costs associated with the tx and hospital stay afterwards. an update on casey: froedtert in milwaukee will not take him as a candidate for a 2nd lung...
  2. C

    motivation?

    my boyfriend is currently waiting to see if he can even get on the lung tx list again. his bone density is apparently poor, he's lost weight (down to 115# - lost 15 lbs in 6 months), and his lung capacity is at about 25%. he was discharged from the hospital 1 1/2 weeks ago, and now is barely...
  3. C

    second double lung transplant?

    casey had han appt this past thursday - lung capacity is at 28% and he's lost 9 pounds in the last month. he actually went on oxygen this afternoon. froedtert said they'll retransplant him if that's his choice - but they've only done three 2nd double lung transplants, with only 1/3 of them...
  4. C

    second double lung transplant?

    thanks so much for everyone's responses. my boyfriend had his 1st transplant at Froedtert in Milwaukee, Wisconsin - and sadly they do not do 2nd lung transplants. UW-Madison will do 2nd transplants, so there is the possiblity there or at Loyola (in Chicago) - as far as near-by options, at...
  5. C

    second double lung transplant?

    this is my first post - i'm hoping this community will help me. my boyfriend of 1+ years has CF and had a double lung transplant 2 1/2 yrs ago - so before we knew each other. the past few months have been really hard - hospital stays for a couple weeks, more trips to the doctors, and the...
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