Cystic Fibrosis Forum (EXP)

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  1. M

    Nissen Surgery

    I had the nissin/gtube surgery about 2 years ago. I'm not gonna lie it was hard(atleast for me), I wasnt able to swallow big pills without gaggin and I had to chew my food extra good because if it was to big it would get stuck and I'd have to wait a few minutes before attempting to take another...
  2. M

    Scared

    Everyone else did a good job of trying to help and all...so I'm not gonna get into that I only have one question for you...Think about it, answer with your heart Do you think giving up is what your grandfather would have wanted you to do?
  3. M

    Scared

    Everyone else did a good job of trying to help and all...so I'm not gonna get into that I only have one question for you...Think about it, answer with your heart Do you think giving up is what your grandfather would have wanted you to do?
  4. M

    Scared

    Everyone else did a good job of trying to help and all...so I'm not gonna get into that I only have one question for you...Think about it, answer with your heart Do you think giving up is what your grandfather would have wanted you to do?
  5. M

    What do you take?

    Ultrase MT 20-4 with meals, 3 with snacks and overnight feeds Cozaar-once a day(kidney disease and blood pressure) Zithromax-MWF once a day Claritine-once a day Vitamin A-Once a day Iron-Once a day(suppose to be twice but I only take it once) Maxair inhaler Flovent inhaler Spivera(spelled...
  6. M

    What do you take?

    Ultrase MT 20-4 with meals, 3 with snacks and overnight feeds Cozaar-once a day(kidney disease and blood pressure) Zithromax-MWF once a day Claritine-once a day Vitamin A-Once a day Iron-Once a day(suppose to be twice but I only take it once) Maxair inhaler Flovent inhaler Spivera(spelled...
  7. M

    What do you take?

    Ultrase MT 20-4 with meals, 3 with snacks and overnight feeds Cozaar-once a day(kidney disease and blood pressure) Zithromax-MWF once a day Claritine-once a day Vitamin A-Once a day Iron-Once a day(suppose to be twice but I only take it once) Maxair inhaler Flovent inhaler Spivera(spelled...
  8. M

    High heart rates

    my heart rate is about 130 doing normal things like sitting and eating. My doctor told me its because my heart is working overtime trying to get the oxygenated blood out to the rest of my body. I'd hate to know what it is when I'm exercising.
  9. M

    High heart rates

    my heart rate is about 130 doing normal things like sitting and eating. My doctor told me its because my heart is working overtime trying to get the oxygenated blood out to the rest of my body. I'd hate to know what it is when I'm exercising.
  10. M

    High heart rates

    my heart rate is about 130 doing normal things like sitting and eating. My doctor told me its because my heart is working overtime trying to get the oxygenated blood out to the rest of my body. I'd hate to know what it is when I'm exercising.
  11. M

    Who are you in a nut shell

    who are you My name is Amanda I live in Shamokin Pennsylvania I'm 20 years old. I was dx at 5 years old after being told it was asthma or a brain surgery(I was hours from being operated on when my mom told them she wanted a 2nd opinion) I have a dog who means the world to me. My dad had a...
  12. M

    cf is merciful

    I by no means believe CF is merciful. but...I could definitely be alot worse off. I watched my father go through kidney failure almost 5 years ago and through the tears anger and heartache...I thanked god I wasnt going through that. I also think that when your sick from a baby up it's easier...
  13. M

    cf is merciful

    I by no means believe CF is merciful. but...I could definitely be alot worse off. I watched my father go through kidney failure almost 5 years ago and through the tears anger and heartache...I thanked god I wasnt going through that. I also think that when your sick from a baby up it's easier...
  14. M

    cf is merciful

    I by no means believe CF is merciful. but...I could definitely be alot worse off. I watched my father go through kidney failure almost 5 years ago and through the tears anger and heartache...I thanked god I wasnt going through that. I also think that when your sick from a baby up it's easier...
  15. M

    Burkholderia cepacia

    I dont have it...but I always heard it was really bad to get it. How is it any different then say...MRSA? Are you still able to get a transplant?
  16. M

    Burkholderia cepacia

    I dont have it...but I always heard it was really bad to get it. How is it any different then say...MRSA? Are you still able to get a transplant?
  17. M

    Burkholderia cepacia

    I dont have it...but I always heard it was really bad to get it. How is it any different then say...MRSA? Are you still able to get a transplant?
  18. M

    My mutations..

    mine is the delta and a rare/unknown one...I kinda wanna make up my own name for it. haha.
  19. M

    people who use cf to make money

    I'm gonna check all my meds and see if I have extras. I'll get back to ya tomorrow with that. can he give us an idea of some of the meds he use to take? Like which enzymes he used? This way we'll be able to send him the right ones and all.
  20. M

    people who use cf to make money

    I'm gonna check all my meds and see if I have extras. I'll get back to ya tomorrow with that. can he give us an idea of some of the meds he use to take? Like which enzymes he used? This way we'll be able to send him the right ones and all.
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