Cystic Fibrosis Forum (EXP)

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  1. M

    Probiotics

    all i know is lacto and bifido are the most common in supplements. and i make sure and get one that has lacto brevem (i think thats how you spell it) because it is good for yeast balance
  2. M

    Everyone needs to send one of these to the FDA....

    I was blunt with the things I said in this, but I wanted everyone's opinion. Also, if I left anything out let me know because I am not afraid to send it again. Here is her email: theresa.toigo@fda.hhs.gov Please send her an email. I am extremely hopeful, but I really think if we all do this...
  3. M

    Everyone needs to send one of these to the FDA....

    I was blunt with the things I said in this, but I wanted everyone's opinion. Also, if I left anything out let me know because I am not afraid to send it again. Here is her email: theresa.toigo@fda.hhs.gov Please send her an email. I am extremely hopeful, but I really think if we all do this...
  4. M

    Everyone needs to send one of these to the FDA....

    I was blunt with the things I said in this, but I wanted everyone's opinion. Also, if I left anything out let me know because I am not afraid to send it again. <br /> <br />Here is her email: theresa.toigo@fda.hhs.gov <br /> <br />Please send her an email. I am extremely hopeful, but I really...
  5. M

    Everyone needs to send one of these to the FDA....

    I was blunt with the things I said in this, but I wanted everyone's opinion. Also, if I left anything out let me know because I am not afraid to send it again. Here is her email: theresa.toigo@fda.hhs.gov Please send her an email. I am extremely hopeful, but I really think if we all do...
  6. M

    Everyone needs to send one of these to the FDA....

    I was blunt with the things I said in this, but I wanted everyone's opinion. Also, if I left anything out let me know because I am not afraid to send it again. Here is her email: theresa.toigo@fda.hhs.gov Please send her an email. I am extremely hopeful, but I really think if we all do...
  7. M

    Everyone needs to send one of these to the FDA....

    I was blunt with the things I said in this, but I wanted everyone's opinion. Also, if I left anything out let me know because I am not afraid to send it again. <br /> <br />Here is her email: theresa.toigo@fda.hhs.gov <br /> <br />Please send her an email. I am extremely hopeful, but I...
  8. M

    Why do so many Cfers have Reflux?

    My daughter has needed Prevacid since birth. She had Meconium Ileus and an adhesion so I think this has damaged something obviously. I am wondering if reflux is more common in those who have had meconium ileus at birth or if it is just all Cfers.
  9. M

    Why do so many Cfers have Reflux?

    My daughter has needed Prevacid since birth. She had Meconium Ileus and an adhesion so I think this has damaged something obviously. I am wondering if reflux is more common in those who have had meconium ileus at birth or if it is just all Cfers.
  10. M

    Why do so many Cfers have Reflux?

    My daughter has needed Prevacid since birth. She had Meconium Ileus and an adhesion so I think this has damaged something obviously. <br />I am wondering if reflux is more common in those who have had meconium ileus at birth or if it is just all Cfers.
  11. M

    Ultrase MT 20 enzymes

    Also, your doc cannot write a new script for Ultrase as of April 28, 2010, but I bet your pharmacy could trade out with another pharmacy or transfer the "old script." Good luck.
  12. M

    Ultrase MT 20 enzymes

    Also, your doc cannot write a new script for Ultrase as of April 28, 2010, but I bet your pharmacy could trade out with another pharmacy or transfer the "old script." Good luck.
  13. M

    Ultrase MT 20 enzymes

    Also, your doc cannot write a new script for Ultrase as of April 28, 2010, but I bet your pharmacy could trade out with another pharmacy or transfer the "old script." Good luck. <br />
  14. M

    Ultrase MT 20 enzymes

    If you are already getting your Ultrase prescription filled through CF Services Pharmacy, then they can help you stock up. But, you cannot call and get them to start filling it now, they are saving it for their customers who are already filling with them. I tried this. lol and they shut down my...
  15. M

    Ultrase MT 20 enzymes

    If you are already getting your Ultrase prescription filled through CF Services Pharmacy, then they can help you stock up. But, you cannot call and get them to start filling it now, they are saving it for their customers who are already filling with them. I tried this. lol and they shut down my...
  16. M

    Ultrase MT 20 enzymes

    If you are already getting your Ultrase prescription filled through CF Services Pharmacy, then they can help you stock up. But, you cannot call and get them to start filling it now, they are saving it for their customers who are already filling with them. <br />I tried this. lol and they shut...
  17. M

    CF center in Oklahoma City???

    We have a meet and great with Dr.Royal at the Tulsa Center at the end of this month. I am so excited and I can't wait to have a doctor that finally listens to me and my concerns as a mother.
  18. M

    CF center in Oklahoma City???

    We have a meet and great with Dr.Royal at the Tulsa Center at the end of this month. I am so excited and I can't wait to have a doctor that finally listens to me and my concerns as a mother.
  19. M

    CF center in Oklahoma City???

    We have a meet and great with Dr.Royal at the Tulsa Center at the end of this month. I am so excited and I can't wait to have a doctor that finally listens to me and my concerns as a mother.
  20. M

    Zenpep Conga Line.....

    I would love to do this if my daughter was taking ZenPep. And with this whole FDA approval thing, they might not manufacture her's anymore and we might switch to these. If we do I will get back with you. :-)
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