Cystic Fibrosis Forum (EXP)

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  1. J

    port being placed tomorrow

    Is the whole thing placed under the skin? So is it just a bump?
  2. J

    port being placed tomorrow

    Is the whole thing placed under the skin? So is it just a bump?
  3. J

    port being placed tomorrow

    Well, apparently they are placing my port tomorrow. I am a little unsure where to put it and how it will look. Does anyone have any pictures?
  4. J

    port being placed tomorrow

    Well, apparently they are placing my port tomorrow. I am a little unsure where to put it and how it will look. Does anyone have any pictures?
  5. J

    Nervous

    Well, I did it. I just submitted my disability request to my employer. I am praying that God makes everything go smoothly. It is really hard not to be nervous when my whole life is changing.
  6. J

    Nervous

    Well, I did it. I just submitted my disability request to my employer. I am praying that God makes everything go smoothly. It is really hard not to be nervous when my whole life is changing.
  7. J

    please help

    Thank you for all of your replies. My doctor and I talked quite a bit and we are scheduling my port for Tuesday!!
  8. J

    please help

    Thank you for all of your replies. My doctor and I talked quite a bit and we are scheduling my port for Tuesday!!
  9. J

    doc and I disagree

    We ironed out our disagreement. He allowed that coughing and turning off my machine could cause increased times and that HTS and TOBI take longer than albuterol and pulmozyme. Unfortunately, my doc will not allow me to use eflow except for with Cayston.
  10. J

    doc and I disagree

    We ironed out our disagreement. He allowed that coughing and turning off my machine could cause increased times and that HTS and TOBI take longer than albuterol and pulmozyme. Unfortunately, my doc will not allow me to use eflow except for with Cayston.
  11. J

    please help

    <P>Some specific questions that I have:</P> <P></P> <P>1. Has anyone gotten a tunneled catheter instead of a port and why might a doctor be against ports?</P> <P></P> <P>2. Is accessing your port painful?</P> <P></P> <P>3. Do you need to cover your port each time that you shower?</P> <P></P> <P></P>
  12. J

    please help

    <P>Some specific questions that I have:</P> <P></P> <P>1. Has anyone gotten a tunneled catheter instead of a port and why might a doctor be against ports?</P> <P></P> <P>2. Is accessing your port painful?</P> <P></P> <P>3. Do you need to cover your port each time that you shower?</P> <P></P> <P></P>
  13. J

    please help

    After 2.5 hours of trying every vein in both of my arms, the IV team at my hospital has stated that they are unable to place a PICC line in me. It looks like I will be getting a port. Please tell me about your experience getting one, how it feels/looks afterwards and upkeep. Thanks!
  14. J

    please help

    After 2.5 hours of trying every vein in both of my arms, the IV team at my hospital has stated that they are unable to place a PICC line in me. It looks like I will be getting a port. Please tell me about your experience getting one, how it feels/looks afterwards and upkeep. Thanks!
  15. J

    doc and I disagree

    My Devilbiss Pulmo Aide is relatively new--about 3 months old. Albuterol and pulmozyme each take about 20 min, but Hypertonic and TOBI both take from 35-45 min. Granted, with TOBI in particular, I stop when I have a coughing fit, since I don't want to waste the antibiotic.
  16. J

    doc and I disagree

    My Devilbiss Pulmo Aide is relatively new--about 3 months old. Albuterol and pulmozyme each take about 20 min, but Hypertonic and TOBI both take from 35-45 min. Granted, with TOBI in particular, I stop when I have a coughing fit, since I don't want to waste the antibiotic.
  17. J

    doc and I disagree

    <P>My doc and I disagree--he thinks each nebbed med below should take 20 min or less. I am finding that some of them are taking considerably longer. What is your experience?</P> <P>Pulmozyme</P> <P>Albuterol</P> <P>TOBI</P> <P>Hypertonic </P>
  18. J

    doc and I disagree

    <P>My doc and I disagree--he thinks each nebbed med below should take 20 min or less. I am finding that some of them are taking considerably longer. What is your experience?</P> <P>Pulmozyme</P> <P>Albuterol</P> <P>TOBI</P> <P>Hypertonic </P>
  19. J

    high billirubin

    Apparently, he's going to call again on Friday and we will set up an ultrasound. I was just curious in advance of what some causes could be. <img src="i/expressions/face-icon-small-smile.gif" border="0">
  20. J

    high billirubin

    Apparently, he's going to call again on Friday and we will set up an ultrasound. I was just curious in advance of what some causes could be. <img src="i/expressions/face-icon-small-smile.gif" border="0">
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