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RE: Help me out Cfers...and non Cfers....
You dont necessarily have to tell a story about yourself do you??? You can tell a story about others worse then you. Maybe show a few pictures, (feeding tubes,ect...) Tell why their money is needed because of how close we are to finding a cure.
Every time I get sick my doctor gives me a choice on whether I want Home IVs or hospital. When I get Home IVs I have a nurse come out everyday too, it's called Home health, I love it.
<blockquote>Quote<br><hr><i>Originally posted by: <b>Anonymous</b></i><br>I always thought that questions , and I would have wanted to not have been born. And I would never have a child<hr></blockquote>
Why would you deprive yourself of having a child just cause you have CF. I thought the same...
I agree, I dont do drugs anymore, but there are some drugs that help with the process of forgetting your sick, and I say that if you wanna do them, do them, but dont let it take over your life and ruin it
Im doing the same as Magerly. If I dont take enzymes with EVERYTHING I get severe stomach cramps. Im on Ultrase MT20(4 per meal, 3 per snack) Never heard of just taking them with fatening food
I think all of you that are having distress and constipation are taking too little of enzymes. I am 22 and am on 4 tabs of Ultrase MT20 per meal. I was taking 2 per meal and went to my doctor complaining that I was always constipated and my stomach was cramping all the time, he was surprised I...
Jenhum, I think I know what your problem was. You said you didnt take them for years and you were going to the bathroom a lot. Thats cause the food was not gettin digested properly and just passing right through your system, (and I bet it stunk horribly didnt it?) Then when you started, I...
I dont know what I would trade for CF. This is hard. I guess if I had to choose, it would be the use of my legs. Why? Because then I would have an excuse as to why Im lazy at times. I could have people wait on me, hand and foot. It would be a lot better then wondering if Im going to die soon.
I think the reason why I got on was not cause I was sick at the time but my doctor knew I was in a bad situation. I got kicked out of my home and was living from house to house so basically he was doing me a favor by getting me on because the people that determine whether you get it or not...
Hi Jennifer. Before I got pregnant I was going into the hospital with lung problems about once a year and still am, I was also on Prednizone regularly. My pregnancy didnt seem to change any of that. Im still in the same condition that I was. I dont know exactly what my lung function was...
Hi, I cant realy relate on having a daughter with CF but I do have CF and am a mommy to a 5 mnth old. I would suggest helping her cough the stuff out by pounding lightly on her back, especially in the morning when most of it has settled. But if she gets real bad, DONT HESITATE to take her to...
Wow thanks for all your replies. But unfortunatly it just made me more worried. I have been on a regular dose of prednizone for about 8 or 9 years now, and have been gradually increasing the amount of Enzymes I take so all the signs you guys have mentioned I seem to be going through. But I...
Does anyone know how a person with CF gets Diabetes. It runs in my family so Im kind of scared because I know, A lot of people with CF gets it eventually. Does anyone know why it is so commen with CFers though?
I thank you for all your responses to this topic, sorry for starting a little argument there though. Thank you for the Congrats Julie! Im sooo glad I went through with this pregnancy cause I wanted a child so so bad and she completes me so much. I needed a reason to take better care of myself...
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