Cystic Fibrosis Forum (EXP)

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  1. M

    Blenderized Gtube Feedings...

    My daughter Mariah is solely gtube fed, but does eat some by mouth. I am looking into blending whole foods and putting them through her gtube verus pediasure. My thoughts are that whole foods are a better option than a synthetic formula. Has anyone done this or know anyone who has done this...
  2. M

    Blenderized Gtube Feedings...

    My daughter Mariah is solely gtube fed, but does eat some by mouth. I am looking into blending whole foods and putting them through her gtube verus pediasure. My thoughts are that whole foods are a better option than a synthetic formula. Has anyone done this or know anyone who has done this...
  3. M

    Blenderized Gtube Feedings...

    My daughter Mariah is solely gtube fed, but does eat some by mouth. I am looking into blending whole foods and putting them through her gtube verus pediasure. My thoughts are that whole foods are a better option than a synthetic formula. Has anyone done this or know anyone who has done this...
  4. M

    Blenderized Gtube Feedings...

    My daughter Mariah is solely gtube fed, but does eat some by mouth. I am looking into blending whole foods and putting them through her gtube verus pediasure. My thoughts are that whole foods are a better option than a synthetic formula. Has anyone done this or know anyone who has done this...
  5. M

    Blenderized Gtube Feedings...

    My daughter Mariah is solely gtube fed, but does eat some by mouth. I am looking into blending whole foods and putting them through her gtube verus pediasure. My thoughts are that whole foods are a better option than a synthetic formula. <br /> <br />Has anyone done this or know anyone who has...
  6. M

    Pulmonary Function Test (PFT)

    My daughter recently had an infant PFT and the way they explained it to me was that normal like Marjolein said is between 80 and 100. What is most important though is the trend. Say if you test one visit and it is 93 and then the next visit it drops to 83, then that is obviously cause for...
  7. M

    Pulmonary Function Test (PFT)

    My daughter recently had an infant PFT and the way they explained it to me was that normal like Marjolein said is between 80 and 100. What is most important though is the trend. Say if you test one visit and it is 93 and then the next visit it drops to 83, then that is obviously cause for...
  8. M

    Pulmonary Function Test (PFT)

    My daughter recently had an infant PFT and the way they explained it to me was that normal like Marjolein said is between 80 and 100. What is most important though is the trend. Say if you test one visit and it is 93 and then the next visit it drops to 83, then that is obviously cause for...
  9. M

    Pulmonary Function Test (PFT)

    My daughter recently had an infant PFT and the way they explained it to me was that normal like Marjolein said is between 80 and 100. What is most important though is the trend. Say if you test one visit and it is 93 and then the next visit it drops to 83, then that is obviously cause for...
  10. M

    Pulmonary Function Test (PFT)

    My daughter recently had an infant PFT and the way they explained it to me was that normal like Marjolein said is between 80 and 100. What is most important though is the trend. Say if you test one visit and it is 93 and then the next visit it drops to 83, then that is obviously cause for...
  11. M

    Is it the SALT?

    I used to just estimate how much salt I was giving Mariah by a few shakes from the salt shaker. She would get belly aches, be lethargic, and vomit. After I started measuring out how much they recommended per day, it made a world of difference. Like they said above, I would put it into everything...
  12. M

    Is it the SALT?

    I used to just estimate how much salt I was giving Mariah by a few shakes from the salt shaker. She would get belly aches, be lethargic, and vomit. After I started measuring out how much they recommended per day, it made a world of difference. Like they said above, I would put it into everything...
  13. M

    Is it the SALT?

    I used to just estimate how much salt I was giving Mariah by a few shakes from the salt shaker. She would get belly aches, be lethargic, and vomit. After I started measuring out how much they recommended per day, it made a world of difference. Like they said above, I would put it into everything...
  14. M

    Is it the SALT?

    I used to just estimate how much salt I was giving Mariah by a few shakes from the salt shaker. She would get belly aches, be lethargic, and vomit. After I started measuring out how much they recommended per day, it made a world of difference. Like they said above, I would put it into everything...
  15. M

    Is it the SALT?

    I used to just estimate how much salt I was giving Mariah by a few shakes from the salt shaker. She would get belly aches, be lethargic, and vomit. After I started measuring out how much they recommended per day, it made a world of difference. Like they said above, I would put it into everything...
  16. M

    How responsive is your clinic?

    That is kind of how my daughter's clinic in Arkansas is. I called Monday with a question about the vest. She said her doc was on duty this week so it would be hard to reach him. So Thursday I call and she will have someone get with me if not this afternoon, first thing in the morning. Well it is...
  17. M

    How responsive is your clinic?

    That is kind of how my daughter's clinic in Arkansas is. I called Monday with a question about the vest. She said her doc was on duty this week so it would be hard to reach him. So Thursday I call and she will have someone get with me if not this afternoon, first thing in the morning. Well it is...
  18. M

    How responsive is your clinic?

    That is kind of how my daughter's clinic in Arkansas is. I called Monday with a question about the vest. She said her doc was on duty this week so it would be hard to reach him. So Thursday I call and she will have someone get with me if not this afternoon, first thing in the morning. Well it is...
  19. M

    How responsive is your clinic?

    That is kind of how my daughter's clinic in Arkansas is. I called Monday with a question about the vest. She said her doc was on duty this week so it would be hard to reach him. So Thursday I call and she will have someone get with me if not this afternoon, first thing in the morning. Well it is...
  20. M

    How responsive is your clinic?

    That is kind of how my daughter's clinic in Arkansas is. I called Monday with a question about the vest. She said her doc was on duty this week so it would be hard to reach him. So Thursday I call and she will have someone get with me if not this afternoon, first thing in the morning. Well it is...
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